That's my point. If you research a practitioner for TCM and how it SHOULD be done, they should analayse each patient and treat their particular traits/issues not the condition like in western...
worriedUCer I agree the idenitification of TCM herbs and their potential bad effect are hard to find out. I could not fully negate the risk this is why I went for someone who was reputable and well...
DbwithUCate It was easy to separate the benefit of eliminating lactose effect and herbs as herb enemas stopped the bleed on 2 occasions within 48 hours. Simply eliminating lactose only helped to...
Hi All, Might sound silly but want to keep a presence here because I often wandered how people get on when there is no updates after earlier posts. Still in remission but a better one. My remaining...
for people who want some idea of cost it was about £500 a month average. for most patients i think 6 months would do it. so not cheap but in the end for me it was worth it. I appreciate this is no...
Hi all, Before I start brief history. I have suffered from Colitis for 21 years mostly in remission. Have a flare every 4 to 5 years on average. Before my last flare every one before that was only...
Best thing to get things going again is some prune juice. Start with half a cup at night and see how you do in the morning...
Just as an update the final symptoms that my GI was insisting were IBS turned out to be Lactose intolerance. Basically i was skeptical so got checked for thyroid, celiac diseaes, and Lactose...
this one works for me but worked more towards the end of my flare for the last annoying unconventional symptoms of pain and flatulence...
In terms of probiotics the one that worked towards the end of the flare only was renew life critical care. Its this one for US...
To all my fellow sufferers I have massive respect for you all! Just wanted to share a story that may help others carry on the good fight. Brief background. Have had colitis for 21 years most of it...
As the title says the link below is on a article regarding a company who is looking to take a different approach on treating inflammation by the form of gel that adheres itself in a targeted area of...
Betty, I did the same as I have failed all drugs inculding immuno suppressants and was looking as the next step. Thankfully finally NHS have approved biologics we have another option but dont want to...
thanks for the suggestion ceecee600 re gas x i will give it a try. Betty Lou I am actually based in Leicester so cant help you with local consultants in your area. The reason I use the Brighton...
thanks for your suggestions. tried the psyllium fiber for many months, different brands and type (pills, powder etc) have introduced them very slowly and persisted but waiting it out does not clear...
Hi all, I have tried and failed all prescriptions that were available in the UK (Just recently Humira, Simponi and Remicade/infliximab have been approved for Colitis maintenance if all other...
Calling your gi is a must. Flares don't always start the same way and waiting can make things harder to get back to remission. I dont think its powdered to psyllium as that should dissolve easier the...
I have had similar issues but others that you don't. what really helped calm things down that little bit more was to try a maselazine suppository in addition to the enema. Since your patter at the...
Honestly I can not understand why even an average GI would think coming off all meds is a great idea whilst in remission!!!!!!!! You must always ensure you are on a maintenance med when you achieve...
thats great news good to hear. Best of luck with your recovery...
I would agree with the tiredness but I am too tired to post...... oh wait!........
Not necessarily. You can have D while constipated and it can mean that it is just stool that is backed up finally getting past the harder stool blocking it. The best thing I have found to keep my...
like you I was having rectal pain and the suppositories worked very well. Stick with them and hopefully this will improve. It is good you gi has given you 1g as opposed to 500mg. It may be wise to...
notsosticky - what you describe in terms 1 -2 bms but not much stool blood mucous sounds like what i have experienced a month ago. Cramps are not a common symptom with me. To cut a long story short...
Whenever there is a blood in my case if left untreated it gets worse. What is mild to a gi is not to us in terms of the emotional and the physical pain we go through. Plus the longer you leave it the...
mild tends to mean up to 4 BM's day with little and no blood. I can relate to what you are saying because I am either stick in a very mild flare or a pretty poor remission because docs seem just...
I am having a similar issue and what has helped make things regular it fibre capsuls (metamucil) to keep the constipation in check and even though i was sceptical the biggest boost was to add a...
Hi, Just want to pop my head round and say the best of luck for your op. I am at the point where I feel I am weeks away from deciding to do the same. Like you I feel the prospect of a holiday and no...
Lol I had forgotten that I had even put the original post up! I did trial the distance healing for a month, I did have improvement and then fell backwards up a bit but realised that it was never...
I have been there as far as Imuran and pred are concerned. i did not have the side effect to imuran but then it did not work for me anyway so 6mp was not an option for me. The reason why I am posting...
Duck, It did and it did not. Worked to control my colitis symptoms but i struggled with a very bad side effect of abdominal pain. I found that no matter what form of LDN I tried I could not shake it...
in a word yes. Cant explain why my symptoms worsen on gluten if its effects are limited to small intestine. I just feel the effects of processed foods on general uses is our colons are already not...
Blueinc i am from uk and used to take it and ordered like franny from USA. Just google ccherbal and the site is obvious. takes 2 -3 weeks to arrive. I ordered 3 month supply was around £70 with...
Unfortunately not right. Tapering below 15 or 10mg has been known to bring a return in symptoms. Pred is a double edged sword. It gives your colon time to heal but its effect wears off as you reduce...
This is a very good discussion post. i dont know how to explain it but i have got to a point with UC where the psychological trauma of it all just had to stop! You have to accept the illness...
It is normal to not reduce pred untill bleeding stops. The problem is imuran takes month to kick in and it only works to keep you in remission not to get you into remission. The pred is supposed to...
not directly to do with your question but with regards to being on remicade I was told that the body eventually develops antibodies to it and therefore the positive effect on UC wears off. To keep...
My advice is concentrate on the uc symptoms and bad health side effect. although having moon face is no fun (trust me I know!) it is not the worst thing as if imuran kicks in pred will come down and...
forgot to add that i went for this as it derived from grass fed livestock and does not contain isolate protein which is better. Mercolas is always a quality product but not cheap!...
this is the one I have ordered that is supposed to be ok for colitis. But to be honest it has not arrived yet as I am in the UK and it is being shipped from the states via amazon.co.uk Mercola...
Hi guys, I am now down to 4 mg of pred going down by 1mg a week. My worst days are 3 and best 1 bm. Was having minor issues last week where stool got loose so added a different probiotic (reuteri...
i am in the uk and need to look into how it works here on the NHS and will do my best to try and get a say and choose the best surgeon. Thank you for your answer. Regards to meds I am currently on...
Dear all, 4th pred taper going twice a day but losing weight all the time. This indicates that i am unlikely to not need pred again. I had decided already (reluctantly) that I would have to speak to...
I remember when i black stool and had a panic attack! Until i realised I had blue berries the night before last. Great for identifying transit time but because i am over analytical with my poo...
I would second what quincy said. I was off pred for 2 months but could not get rid of that horrid feeling. Wish I had gone on meatamucil but took the ibd teams advice when feeling would not go away...
i don't know if this is specifically an ibs issue the way it is described. I would hazard a guess that "normal" people who experience stress have some gut issues before any sort of stressful...
ricos, 60 mg is a high dose to be on for 6 months. You are doing a lot of log term damage to your body which in some cases will not be reversible. I do empathize with you that this is what only helps...
ok i know this may seem controversial but in my religion we believe that after a poop! we must wash our anal area with water. then wipe with a paper to dry out. Now for a time when I had to go often...