I've got some enema foams prescribed but I never use them anymore as the preservatives in them make flares worse....
I've had colitis for a few years and technically I have been in remission for some time. I say technically because I am never completely symptom free, I have a lot of inflammation. I am on the top...
Yes, sorry, forgot to include my signature. I'm on Pentasa slow release, 2g twice a day. I have had steroids twice which did nothing, when I was flaring, and if i flare again the plan will be to try...
So my UC has been in remission (at least intestinally speaking) since June. But I went out for my mum's birthday, and got food poisoning. I was very ill for a few days, stopped eating, improved, went...
Hi, Anyone tried this and had any benefit? I read a review paper that suggests it lowers inflammation, TNF-a, PGE and others, which I certaintly have a problem with, in particular systemic...
Dikid - yes I think I will need to go back to my GP and ask her to send me to someone who can help. So far I am getting sent round the houses and not really seeing someone who can look at all of it...
Hi kiptyn - No steroids, the only medication I am taking is Mesalazine 2g twice a day, slow release Pentasa. I've been on that med and dose since the day I was diagnosed. If I miss a dose then I feel...
I've had colitis for almost two years. I had my second flare begin on Christmas Eve and I finally stopped passing blood about a month ago. But along with this flare I developed symptoms external to...
@garylouisville - I've been on some good probiotics most of this year, no change there. Also I'm on a strict diet all the time and no change over Christmas. I have a lot of food intollerances now so...
I started passing blood again on Christmas Eve and have done so since then with blood every few days. This is only my second experience of colitis having been in remission most of 2014. I have pain...
Thanks Donnie, I'm ok now. I quit the abx I was on for Lyme and that combined with avoiding foods I was intolerant to got me into remission. Though I find that lots of vegetables, meat, oats, rice...
I'd never hear that idea before but it sounds really interesting. Has anyone done any published papers on the theory?...
The guy in the blog had ulcerative colitis, I was just being lazy only writing colitis, sorry. If it's the immune system then gut bacteria could be the way to fix it as the gut bacteria interact...
Certainly not everyone who develops colitis did so because of antibiotics, and not everyone who takes antibiotics gets colitis. But it's looks like this guy's colitis looks to have been at least...
That's much closer to what's reported in that blog. He said he ate lots of RS too so maybe that's a factor. We're you eating RS at the time? Also your signature says you take VSL3: we're you taking...
Anyone else had their gut flora tested with uBiome or the other company that do these tests, AmericanGut? Wonder how the results might compare to those on this article....
My daughter ha worms, well, might have worm. And the GP has prescribed her Mebendazole and told us to take it as well. the info sheet says special care to be taken if you have UC as it can make the...
My UC has been better the last five or six weeks since I came off the antibiotics I have been on for a long time for lyme disease and chronic Bartonellosis. My weight loss has stopped, and in fact...
yes, thats possible. I expect my gp will prescribe some antifungal cream as a first guess if i go there this week. seems marginally better today so will see what its like tomorrow. if no improvement...
No, I can't see any. I don't think it's that. Had that when I was a kid and it's a different kind of itch. I checked the ph again and actually found the stool is pretty close to neutral at about 7.5...
I don't think it's about wiping in this case as my stools are pretty well formed right now. When I wipe the tissue comes away clean (too much info, I know. Sorry). I bath every day and haven't...
So, embarrassing as this is, I have had a very itchy anus/rectum the last couple of days. Came on quite suddenly and not sure what is causing it. I figured that maybe my feces ph was acidic, as I...
ok, thanks. Well, hopefully I can find a good batch from somewhere locally. If the health food shop can't help me then I'll be forced to get them off the net though I guess. I don't mind running them...
Yeah it sounds like it's much harder without dairy. I read that the first couple of batches you should use dairy until they are strong again if you get them sent through the post and then move to...
My guts flora is a mess. Post about that here, with my stool test results. http://www.healingwell.com/community/default.aspx?f=38&m=3019817 I'm going to start trying fermented foods to try and...
Thanks for the reploes. I've been taking some bifido probiotics but it also contains L.Acidophilus which apparently kills e.coli, some of which are good for you. My results show zero e.coli and as...
So before i was diagnosed with UC, while the only symptom in my gut was passing a fair amount of mucus, I had a stool test done. This was a year ago now. A few months later I started antibiotics for...
I am praying for you. God loves you. Hold on in there!...
Well indeed, not the way to go as it turned out, but bare in mind that I used to eat these things before I cut them out without this kind of reaction, as this was before the colitis, so I have never...
So I've continued to lose weight, and so I decided to start eating bread again, as being highly nutritious, I thought it might help me put on weight. I haven't eaten bread, of wheat/gluten for 9...
My bowels just aren't absorbing anything. I'm three weeks into an eight week taper of prednisolone and I'm still losing weight - I feel like its just not getting absorbed at all. Not sure what...
I don't think there is much wrong with my stomach acid, could be wrong but doesn't seem to be a problem. These problems are new except for some vocational irritation which originally got diagnosed as...
Just the five. Probably wouldn't have made much difference either way I suppose....
Well, I'm still alive! I didn't sleep well, heart kept racing, but I got a little. Still feel abit rough but I'm alright and back on track. I have a pill box too - helps a lot. Only reason I forgot...
Maybe I'll leave it at 5 then...5 is better than none and close enough to my normal dose that my body woudln't be like, "Where is the rest?!" but not as bad as 7 is what I was thinking...I am so...
Thanks for the quick replies. OK, I just took 5 of the 7 tablets and just ate a bananna as I didnt want to take it on an empty stomach. I guess I'll probably take the other 2 tablets in a minute, but...
I am about to go to bed, and I just realised that I forgot to take my prednisolone at noon today!! I am almost two weeks in so supposed to take 35mg but I completlely forgot. Should I take them now?...
Hi MaxMilian, Sometimes it is quite yellow yes. Sometimes more brown. Stools are loose yes, not D loose, but loose. Break up easily in the water. I am always stressed so I can't answer no, but no...
Something new in the last few weeks is that my food is poorly digested. I am having a larger meal in the evening and the new material in my system seems to create a lot of downward pressure which...
No, I tried the Mesalazine foam again a few weeks ago when I was quite bad but it just seemed to agitate things even more, so i stopped. Part of me thinks I should try again but another bit of me...
I had my first colonoscopy in November and was diagnosed with UC. I started Mesalazine right away and havent had any blood or mucus since, though I have had very up and down symptoms. Around...
I have ME/CFS and Lyme disease as well so my energy is very low. But this also means that I do very little activity, so shouldn't need many calories to maintain weight. Before my colitis I was...
I only have about 20-25cm of colitis, diagnosed in November 2013. I've been on Pentasa (mesalazine) 4g a day since mid November. Since starting treatment the evening of the colonoscopy I had, I've...
Thanks for the suggestions and sharing your experiences. What do you mean by testing @soystud? I've had testing for food intollerances, is that what you mean? I feel like I am in a catch22 with...
I'm finding it hard to work out what foods and drinks are causing a worsening of symptoms, but I have worked out that tomatoes are probably not good for me and additives are also not good so I am...
Yeah it's pretty rough here I have to say. I just really want to get my UC into remission as although it is unlikely to solve all my health issues, it would probably give me at least a 10% health...
I've had the Lyme etc for aroudn 5 years. As it turns out I have probably had UC almost as long, though originally it was diagnosed as IBS and I had lots of mucus but no blood. It only got looked...
It was a 2g foam enema taken at night. I am on probiotics yes - 6billion at night. I'm on longterm abx treatment for Lyme disease and chronic Bartonella so that complicates things further....
I'm not really sure. Sometimes I thought so, other times I didnt. I think it irritated my bowel as well, just to a lesser degree than the asacol one. I might well see if there is any available again...
OK, I'm on Pentasa slow release tablets. I started on 4gs - 2g morning, 2g night. I now take an additional 1g mid day as well. I have left sides colitis only. I had Salofalk foam enema - mesalazine...