I don't know - is there a PM system on this forum? If not, you can send me an email at (broken up so it can't be grabbed by spammers): msbriggs at unh dot edu...
Sorry for not responding sooner, I haven't checked this site in a while. My contention with SCD is that it is not only "bad" bacteria who rely on complex carbs for food - all of them do (other than...
Yes - or at least I have access to a very large number of journals. Not all, but there have not been all that many articles I haven't been able to get. I was able to get all of the 100+ references...
Very interesting and well explained. I also don't buy the auto-immune explanation of IBD. The research seems to pretty convincingly illustrate that it is due to a hyper immune response to bacteria...
Yup. Qing Dai is a strong antioxidant, and since the intestinal damage is caused by oxidation (from reactive oxygen species produced ultimately by TNF alpha), getting rid of those free radicals is...
I haven't heard of this - are there any papers on it you could point me to? My concern with it would be that the reason our immune system ends up causing the damage isn't because our immune system...
I have no symptoms of UC or any digestive disease. I just finished a long course of diflucan and I take herbs, probiotics and supplements, a combination of which I will take for the rest of my life....
According to the research papers I read. There are other inflammatory cytokines also involved (IFN gamma, etc.), which vary between Crohn's and Colitis, but TNF-alpha seems to be a commonality. One...
Ultimately TNF-alpha is a key mediator of the inflammation in all IBD (at least that's what the research indicates). One challenge though is that there are variations in how much an individual...
Not exactly. The basic idea is that once that inflammatory cascade has started, you are not going to be able to heal until you stop it - in particular stopping production of TNF-alpha. Some of the...
Then I assume that he has you fully cured and off all meds. Are you saying that pathogens feed on ammonia or on glutamine? For the most part, bacteria feed on carbohydrates. Did you read the...
Note that I am not advocating a high protein diet. I am advocating a balanced diet. The supplemental glutamine is because it is a primary energy source for epithelial cells (along with butyrate),...
I should point out about glutamine though that it has been found to be much more effective at maintaining the epithelial barrier than at getting inflammation under control initially....
See http://www.ncbi.nlm.nih.gov/pubmed/22038507 They used .5 grams per kg of ideal body weight. So, if your ideal body weight is 70 kg (about 155 pounds), that would be 35 grams. I could point you...
I do not see 'mucin' on the list of ingredients for GI REPAIR...
Huge contribution - Thank you. One thing I find confusing is that RS diet was shown to thicken the mucous layer while meats thin it. Thickening sounded protective yet my new GI doctor said...
Sorry for not responding sooner, free time is hard to come by right now. I'll try to answer as many questions as I can right now.... Ucslayer: I like Jarrow for both. Both seem to be more effective...
First, I'm glad you all like it! PathogenKiller - glutamine is the most common amino acid in our bodies. It's used for a variety of processes, in particular tissue repair - which needs to happen...
In case anyone is interested, here is the very long paper I wrote summarizing the 150 or so research papers I read this summer while coming up with a plan to "cure" myself. Towards the end I lay out...
Sorry for not responding sooner (a lot sooner) - with my UC seeming to be completely gone, I'm getting caught up in other things, so I have to remind myself to occasionally check out this thread....
I started having a problem with gluten about 18 months ago, long before the FT, at the same time as I had appendicitis. I'm not sure if there was any connection between the appendicitis and the...
:) Yeah, that is probably a better approach - and your experience is exactly like mine. The actual transplants are unpleasant, but they paled in comparison to the gas pain from the Interfase. It was...
Can you clarify your low carb diet? Are you on the Specific Carbohydrate diet (no complex carbs), or just low carb? If you want to starve off the bacteria, you need to avoid all *complex* carbs....
Sorry for the late response, I've been away for a while. Yes, that is the biofilm supplement I took. You need to take it well away from meals, since otherwise the enzymes will just go into digesting...
Another thing to consider - for UC it seems to be more effective to spread the FTs out, do one or two a week, but for several weeks. The problem in your case may have been that the spores from the...
The only medication I was on was Remicade, which I am now off. Prednisone and sulfasalazine didn't help me, if anything made things worse. I went on Remicade 7 years ago, getting it every ~11 weeks...
Oh, I forgot to give an update - I got a little bit carried away yesterday with eating complex carbs - I had some more pad thai for brunch, then some nachoes for lunch, then some more pad thai a...
Ok, I've been telling people I'd post a condensed summary of what I did, and I figure I have some time now while my students are taking their final exam (muahahahaahha!!). Step 1: I started on the...
Update: Things are going great. I haven't done a transplant for I think 4 weeks now, but I continue to be fine. In fact, I had a bean burrito on Saturday (with regular refried pinto beans, a brown...
Gary, That's very interesting, and you might be onto something - at least for some people with what seems to be gluten intolerance. In my case, I have no problem at all with cheddar cheese (I eat a...
Update: Things are going good still. I got a little too greedy on Saturday and tried eating some regular pizza. I developed gluten intolerance about 18 months ago (at the same time as I developed...
Sorry for the late response, it's been a busy week. The main reason is that my wife is more regular than our kids, in the sense that she generally goes in the morning - which is a convenient time...
I definitely understand your "don't rock the boat" perspective. Honestly, I can't say that the Interfase definitely made a difference in my case - but based on my understanding of things, I can...
To clarify first - I'm a physicist, not a medical doctor. I've done some medical physics research, but not related to gastrointestinal diseases. That said - my understanding is that UP is really...
Wow, you're taking a lot of different thing. :) The only supplement I'm taking now is the S. Boulardi (unless you count fish oil). How long have you been taking the stuff for biofilm breakup? I...
heh heh (everyone wants to give you sh*t). I always used mine right away. I don't know how fragile the bacteria are - I know they don't survive long when exposed to air (at least the anaerobes...
I talked to him before I started - I haven't told him yet how well it has worked - I'm really looking forward to that. :) My GI actually seemed somewhat supportive when I told him about it -...
Update: Things are going great. Things have been going so well, I decided to not do any transplants this past weekend, and see if things continue to be fine. This would have been my fifth weekend of...
Update: things are going very well. I did one transplant last weekend. I'm planning on just doing one a week for the next few weeks. I've been doing a little playing with eating non-SCD compliant...
Gary, this is very interesting. I want to read through the actual studies and some of the studies they reference before responding in full. I hadn't seen this study before that found that there are...
I'm using the Claire Labs Interfase enzyme. For some reason they give me some major gas. I'm only taking them in the middle of the night, since you're supposed to take them well away from meals,...
When I get to that feeling, I stop, and do a headstand (the type where you use a wall to hold your torso vertical). I twist my body around some so initially the "stuff" can work its way up the left...
The studies that have focused on people with UC/CD have found that in general it takes more transplants, and more time, for a profound improvement compaired to people with a C-diff infection. Borody...
I had never done an enema before doing this, so I was a little apprehensive. I didn't cut the tubes - I wanted to make sure the end was the way it was intended (cutting it could produce sharp edges,...
They're much more satisfying with rice though. :D I've done spaghetti squash a few times. It's not bad, I'd just prefer to be able to eat rice. The biggest thing that's hard to replicate or replace...
The colon pain is interesting. It seems like there could be somewhat of a battle going on in our intestines due to the transplant, as the implanted bacteria try to displace the resident bacteria....
I *love* making stir fries (or eating stir fries at chinese and thai restaurants), so I'd really like to be able to eat rice again. So far it's looking like this will let me do that, as long as...
Update - so far, so good. I only did one transplant this weekend, Saturday, since I was able to retain it for 21 hours! (by the time I finally had a BM on Sunday, I had another committment such that...
I was actually considering grabbing my digital camera to take a picture of it. Hmmm... I wonder if posting that would violate any facebook policies.... ;)...
I just had to share this - I think I just made the longest continuous dookie of my life (of course, considering 12 years of UC or CD, I haven't made much other than runny bloody ones for quite a...