I tried some full-spectrum CBD oil (but with <.3% THC content) a few months ago just to see if it would have any "calming" effect on the gut. No improvement. I honestly didn't notice anything - gut...
Thanks for all the well wishes! Awesome! Just read your thread, hope things are going well. Thank you! Yes, the past few years were terrible. Honestly I felt pretty great the first week after surgery...
I was in a very similar situation to you. At some point you just have to make the decision to move forward if nothing is working. It sounds to me like you're mentally ready to do it and get your life...
Hey all, I wanted to take a moment to share my experience with UC and surgery. Background: I was diagnosed with UC in December 2013, and have been in a constant flare ever since; having never...
I, too, have exhausted nearly all of my non-surgical options at this point. Just got Xeljanz authorized and starting this week. I'm not going in with high expectations given my history of...
I take two Imodiums in the morning if I plan on leaving that day, and that gets me under control to go out. I don't think I'd ever be able to leave the house without it. Note: I have yet to find a...
I visited Mayo Rochester in October for a second opinion. Spent a week in town. It's a fantastic and incredibly smooth operation....
I haven't noticed any unusual bowel stuff after colonoscopies besides increased gas. I did have some abdominal tenderness the next day after my most recent one, though- a cramp-like, bruised feeling....
I also had flu like symptoms that started within a few hours of taking mesalamine for the first time, and lasted until I eventually vomited many hours later. I felt like I was dying, horrible stomach...
I would just take iron pills. My hemoglobin count back when this all began was 6.7g/dL. I was playing hockey every single day and wondering why I was so tired which is why I initially visited the...
I've had two infusions thus far, with my third scheduled for later this week. No [noticeable] change so far. Same as Humira and Remicade; my doctor says I'm an anomaly in that regard. He hasn't...
It only took insurance 2-3 days to approve the Entyvio so I'll be starting that next week. Hoping for the best....
My GIs office is in a clinic/hospital that is just a couple years old. Their are two bathrooms in their suite/office and another one right down the hallway (a public one in the main hospital hallway)...
Well UC is what they diagnose when they can't find anything else that's causing the colitis, correct? When I was taking antibiotics for C-Diff, I did feel perfect almost immediately. No symptoms. We...
I really appreciate all of the input, thanks! I had a colonoscopy earlier this year. April maybe? I think I've had 3 total over the last 11 months or so, including the FMT. I haven't really taken an...
Sorry to hear about your C-Diff and I like what you said about the "monster being removed". Yes, I did take Prednisone about a year ago, last winter. 8 week 40mg taper and it worked great when I was...
xeekk, for some reason my doctor has never mentioned Simponi. Although I have done some reading about it. I will need that to go if this Vedolizumab does not work. I sort of forgot that was an...
Haven't posted here in a while. Back story: I was originally diagnosed with UC in 3/2013 after colonoscopy. Next day, tests found that I had C-Diff. Felt perfect for several months when taking...
It's no different from a colonoscopy, not bad. Got rid of my C-Diff. Unfortunately that's when I found out that I had UC (symptoms didn't disappear)...
My mom read about this on another site the other day and I ordered it (capsules, non DS version). Had the local pharmacy order it as it was cheapest and it will be here on Monday....
There is definitely a psychological factor to UC. For me it's anxiety. We were re-modeling our basement for a week or two last January, and one of our three bathrooms is down there. Which left us...
I live simply. Mostly because getting diagnosed with UC has put my life on hold. Last year was my first year of college but had to drop out at the end of my first semester when I got C-Diff. I don't...
You're only 3 days in. I took several rounds of Vanco with a week or two off of it in between rounds (it took that long to test positive again), and it took a few days once I started it again for me...
Nothing wrong with a band-aid. A band-aid and a cure are really the same end result- me feeling good. Obviously we'd prefer a cure, but have to take what's available to us. lemonhead and John, thanks...
Try Dificid....
Basically the same as UC. Horrible urgency, loose/watery stool, going to bathroom 20+ times a day. In fact after I got rid of my C-Diff I didn't believe it was gone because I still had the same...
Thanks for your thoughts. They're appreciated. I guess my thought is that I don't really have any other options, clinically, at this point besides Simponi and Remicade. So what's to lose by trying...
I had C Diff last year. Hopefully the Vanco works for you- in my case it didn't kill the C-Diff, but I felt perfect while taking it....
Cost is not an issue. Injecting myself once or twice a week is not an issue- I just want to feel better. Can't tolerate mesalamine or Imuran so this is the next step. Thoughts? I can't really find...
Lialda is one of the most mild medications for UC. No side effects for most people. Unfortunately I am intolerant of it....
Ha makes sense......
No need to feel bad. As others have said, you made the right move. That's why the "Subject to Inspection" stipulation is there....
My insurance covered it when I was taking it last month. It was a $10 or $20 copay...
I wish I had that problem. I am basically the opposite. I'm 6'3" and 140lbs. I have always eaten tons of food. My parents call me the "Bottomless Pit". And I'm on Pred. Even with weight lifting, no...
Okay another question. I think I'm feeling a little better today. So when recovering from a flare which do you guys notice first. Formed stools Go less often I have been going a bit less these last...
I tried Lialda and consistently puked several times about 5-8 hours after taking it. I also got severe stomach cramps and more D. Tried Delzicol just to see if it was the Lialda coating that I was...
Anyway, I don't know how to fix our healthcare system. It works great for most people. All I know is Obamacare is making everything worse. Ask anyone in the healthcare field. It hurts the large...
I had a 6.2 hemoglobin level and took off the shelf iron pills from Walgreens which brought it back up quickly. Not sure on the exact Mg....
You need a study to tell you that?...
Shaz, my father owns a business and up until last year our family had an individual plan. It wasn't that expensive. The fact is, if you have any decent amount of money or a good job our healthcare...
Whenever I took C-Diff medicine (vanco or Dificid) I felt perfect and had 1 or less bowel movements per day. Within a few days after stopping medication it would come back. What medication are you...
Speaking of that, I got tested 3 times after my FMT and all were negative, but I should probably get tested again since it's been another month....
How long does it generally take before you start to feel better on Prednisone? Today is my 4th day, I'm just wondering when I should expect to feel a difference. I'm guessing it will take a week or...
After my C-Diff was "cured" I still had the same symptoms. I would go get tested and if it comes back positive they can get you on medication....
@WifeofMars, I'm sure it felt good getting out though. I know for me, if I can muster up the guts to leave the house after staying home for days on end, I often end up going out several more times...
Yeah, I ALWAYS have to know where the bathroom is, even though I really only leave the house lately when I'm feeling very "stable". I also try not to go places at really busy times. I get anxious...
Sorry, that sucks... I took my first dose of both today with zero side effects. I've heard that (rarely), some people get nauseous when they take Imuran for the first few days. So I took it right...
Sorry to hear he is flaring again. A few years ago during hockey tryouts I was getting tired super fast. After visiting the DR I found out my hemoglobin level was 6.2 I just took off-the-shelf iron...
Funny timing on this post. I went to my GI yesterday and am slated to start 40mg Pred and Imuran 50mg today. I just decided I'm going to delay it two weeks though- I'm trying a gluten-free/Paleo diet...
I had one done when I had CDiff and it was successful. I wasn't aware that it could help ulcerative colitis....