thanks for all the replies. I'm so glad that many of you are doing well. my gastro told me the surgeon needs rectum to create the jpouch... if that isn't the case I'm ecstatic. I'm meeting with a...
hey all. hope you're all well. so basically nothing works for me from ASA to remicade to entyvio... surgery at this point seems likely. my whole colon is inflamed and the worst parts are the left...
CGK1998 - i had a similar experience. the first time i was on pred absolutely nothing happened except insomnia. so i was still super sick the whole time. I'm sorry things have been so tough on you....
miestomaga, the side effects I most notice are... *i am quick to anger and if someone bothers me enough i also get the urge to physically lash out, though i never let myself. *i get a racing heart...
haha I'm actually not flaring at the moment so i was so excited to be able to indulge. the prednisone apparently stops flares and then destroys everything else in the process......
that definitely makes sense and yeah i exercised extra hard today haha about to go on an hour walk to finish up. you're probably right about the sodium and prednisone effect on top of menstruation......
i am currently on 25 mg of pred. was originally on 40 for 4 weeks. now tapering at 5 mg a week. ive been doing beautifully. i was under 130 lbs, working out daily, drinking 2L of water a day,...
Hey all. I start entyvio next Tuesday (with 15 mg methotrexate once a week) and they're basically thinking this is my last hurrah before surgery. Was recently hospitalized for a week and steroids got...
Hey all. So what a past couple months... things went haywire inside my little body and i am currently on remicade and tapering off pred (on 20 mg a day from 40)...I'm actually feeling great. Still...
Hello all, So, my colitis keeps flaring. I get a months peace, and then BAM, it comes back full force. Right now it's not so much constant D as constant blood. All the same, my gastro says she can...
Thanks for the input everyone. As for the questions... Was on the nightly enema for about two months. I went from nightly to every second night which quickly turned into every third for both the...
So I was doing pretty badly. Crazy low iron, crazy high inflammation, Constant loose stool, etc. Doctor said we could be looking at remicade soon. NOT my first choice. Anyway, started taking a...
So I have pancolitis. Iron was ridiculously low, inflammation so high, and doctor was explaining that I'd most likely need humira if my disease didn't stop "grumbling". Inititally i was only on four...
So my iron is low, inflammation high. I'm on iron pills, salofalk suppositories in the morning and enemas in the evening with four mezavant pills during the day. The goal here is to reduce the...
hahaha exactly. I think I'd steal the show though then... ;)...
Canada, but I know there are laws like that here. again like we both said it's probably an education issue. Still. I wonder if you'd be allowed to go in an airplane while the seatbelt sign was on......
That's what I thought, but even when I explained my issue I was told that I'd have to wait outside lol. So frustrating....
Okay, so I was at a Play last night. There was a short monologue before the show that said the basic rules, no cell phones, no chatting, etc... However when it came to washroom rules the woman was so...
silver linings playbook...
update... so, i had my gastro appointment and was told that the bleeding and grainy/gross feeling inside myself could be, obviously, the disease, or hemorrhoids and fissures. so i've been given...
ohh that makes sense! is scarring particularly dangerous?...
thanks for both of your replies. the damage in my colon still terrifies me, but I agree it's better to heal it than to allow it to get worse. I made an appointment for Thursday. the food combination...
hello everyone. i am rather distraught at the moment. i've had colitis for almost three years now. i'm 24. now, the past couple months i've had off and on flare ups. it's pretty normal for me around...
I always thought no. but an older friend with colitis just told me it's possible... can someone clear this up because if that's the case i'm pretty terrified... thanks so much...
I know this is the million dollar question, but what seems to help? I recently got a puppy so my sleep schedule is kind of messed up and with school and anxiety problems I have been stressing, also,...
haha don't worry back on it. just wanted to see if the mezavant was causing the black...
so I didn't take my mezavant for two days and no black what so ever. hm...
also no iron pills, killcolitis. love the name lol.. I will cut back on iron rich foods though and see!...
symptom wise the streaking has started again. and geeker, I appreciate your answer... it's not black stoo though which is why im confusedl. just black streaks of mucus on the stool... the stool is...
oh my gosh I'm so happy to find someone else with the black haha. for me there are no other symptoms. no flaring and all my blood counts have been normal. i had a little flare a couple weeks ago...
honestly all I did was lie on the couch watching food network! but I couldn't walk without almost fainting. as I got better I added little walks though and visits from friends were nice....
so this week I had lots of black mucus lining my stool and it bothered me a lot. I'm half convinced its from the mezavant i take, though, as i have no other symptoms and am not losing any blood....
can someone please explain that to me? i know this sounds ignorant but i honestly feel like i've received a diagnosis, take meds, do research.. but still feel so clueless......
nope.. everything is oral. *sigh* haha seriously i wish for once in my life i could have a normal bathroom experience :p...
hey all. so i posted before about this but i had a couple more questions... i sincerely apologize for a second post along the same lines, but again, a couple more questions arose. lately when i go to...
wow thanks for all the answers!! I'm not on iron and my mezavant is red with white filling. I could try to take a photo but its often so minor its hard to notice. I can't believe how much attention I...
thank so much for your answer. it's just, this was happening even before the antibiotics and it's not black stool, just black streaked mucus. i am so confused. the doctor knows about this and doesn't...
hello. i am 24 and have been diagnosed for a little over two years now with ulcerative colitis. last colonoscopy was about two years ago. i am on mezavant, 4 pills daily. also on vancocin right now...