Not necessary to taper - is this your first time with c diff? I have had c. diff 3 times now and they are now making me taper (was on your dosage for 7 weeks, then 3 for a week, 2 for a week, 1 for a...
Thank you nososickly! And bananagirl - wow that's awful!!! Sounds similar to me - got 2 units of blood a couple weeks ago, this week was fluids, iron, potassium, antibiotics, the works. I think I...
I had this issue for a while too (I think when I was flaring). Super weird - I don't have a dairy/lactose issue and no matter what the tea (herbal, black, decaf, green, etc) I would either be puking...
Hi all -- My original post may be found here http://www.healingwell.com/community/default.aspx?f=38&m=3292927 I just wanted to update if anyone wanted to know what happened -- I had been planning on...
Just to update: I think I'm going to heading to the hospital tomorrow. I'm going to talk to my GP, but I think it might be best. I was up all night and can't stop bleeding - I know people say it's...
@Gary - just to clarify, I do understand what you meant and I 100% agree - that's why I'm trying this diet lol. I have tried everything else with diet. @Guardian - agree with you too - I'm fine with...
Also garylouisville, believe me I have no blinders on. I ate white bread products, barely any fruit or veggies (and when I did, they were juiced) for over a year. It's done NOTHING for me. McDonald's...
Thank you all for your input! Although some of the suggestions I've already been doing (bone broth, no grains, etc). I think what I've discovered from reading a lot of reviews is that even the people...
I had the exact same issue - and actually I have had a few specialists and people tell me the Imuran takes MONTHS sometimes to fully work in your system. I took 100mg of Imuran from May 2013 -...
Hello all -- This is long but I just want people to know what I've tried already. Sorry for the novel, there's a "too long; didn't read" at the bottom if you want to just get to the point. I was on...
Has anyone else experienced something like this?! Back in January I woke up one night/early morning about 4am with HORRIBLE back pain. I have ulcerative colitis and with all the medications I am on i...
Hello! I was diagnosed last May with ulcerative pancolitis (it all happened very fast, I didn't have symptoms until about 3 weeks before I was diagnosed). Since then I have constantly been up and...
I bake psyllium into cookies and it worked great for me! http://www.healingwell.com/community/default.aspx?f=38&m=3040900...
Drinking it was so gross, so I found a recipe to make it into cookies. SO much better (and I am horribly picky). http://www.healingwell.com/community/default.aspx?f=38&m=3040900...
Hey everyone! I'm not sure how many people have tried/use psyllium seed or husk powder but I'm sure if you have, you found it pretty gross BUT it works awesome. I have found a recipe that makes it so...
Get a food allergy blood test done and it will show you what foods to avoid, ones that you may not even know were doing harm. I think the others are right, it's not so much what TO eat as what to NOT...
Ides --Sorry yes, the tests did come back as positive for c. diff. I was put on a really high dose of vancomycin but my GI cut the dosage in half because she said that research had been done saying...
Hi, I have been lurking and posting on the UC forum boards for a month or so now because since May 2013 I have been dealing with what my GI said was ulcerative pancolitis (I had a colonoscopy &...
I agree with the above, not a very helpful GI. If he thinks you have UC, he should start you on medications. Try and get a second opinion on your biopsy results. However, if you are not on your...
I am on Asacol 400... I didn't know this was a big deal lol I have been since May. I live in Canada though, does that mean anything as to why?...
Hahaha I would too, deltaforce!! :) And I plan to definitely get another opinion. I have an appointment with my GP tomorrow to discuss my biopsy results, as it's just the medical lingo I need help...
I agree with the above. Flagyl just makes me feel really gross. Also you tend to feel worse if you are taking it on an empty stomach, which since you are taking it at night I assume you are? Perhaps...
Either way, then nix that part of my story. It's not really the main issue :P...
Also both scopes took biopsies...
Oh sorry she had just said she scoped everything and I didn't know that. She just mentioned stuff about Crohns and stuff too but she said my small intestine looked fine so I just assumed??...
That's what we are thinking too. Definitely going to get a second opinion. My mom really agrees too; in her words "you'd get a second opinion if you were going to fix your roof, why wouldn't you on...
Quick history: I was diagnosed in May 2013, where I first was introduced to my GI. He did my colonoscopy (spent about 25 minutes as I think he only looked at my large intestine) and he diagnosed me...
garylouisville, you know your stuff. Exactly right, c. diff is a bugger to get rid of. Glad to hear it's c. diff though, which is probably better than trying to control a flare (for me at least it...
garylouisville, are you american? I'm from Canada, not sure if that makes a difference or adds to the explanation that I get 400mg Asacols....
garylouisville is right. From first hand experience, nothing but antibiotics is going to work, and I can guarantee you will feel sooo much better :)...
Hi! first off, please feel free to e-mail me anytime if you just want to talk or anything. Second, I have been put on 60mg of prednisone before (and I weigh much less than you) and it is very normal...
Thanks for your suggestions. I did notice that they take a long time to break down. One time I took them at 7PM, and ended up puking 6 hours later, and they all came back up full formed :/ I had just...
I've taken straight psyllium seed and husk before (the stuff they use in metamucil, but metamucil has more fillers) and it works great, if you can bare getting it down :/...
I had the same thing happen to me! I ended up having C. Diff which was actually a blessing in disguise, because although it was awful, the treatment was 2 antibiotics - vancomycin and flagyl, within...
Hello! Another quick question (as usual from me) Do you take Asacol with food? I know all the labels say it can be taken without, but I also know having your system try to break any medication down...
Haha, I would probably choose other things as my "occasional treat" instead of pop :)...
Please feel free to send me an e-mail!...
Hi crosses!! I'm 20 years old and was just diagnosed May 2013, and had symptoms starting only a month before that! I know exactly how you are feeling and i'd love to chat anytime. I've had quite a...
Thank you all so much :) Yea I have had a lot of doctors tell me diet doesn't play a part but then say not to have certain things. I know I just have to see what works for me but it's very...
Hi! Quick question :) My specialist always told me to not drink pop because of the carbonation. However, my GP recently told me to drink ginger ale if I feel nauseous and see if it helps but I told...
Hi! Good luck and hope all goes well. I have had 2 colonoscopies this year, and the worst part was the prep. I was given the gallon stuff for my second one and couldn't do it!! But they switched me...
@sherbear46 - sorry! I forgot my signature says I'm on prednisone haha. I need to take that off....
Sherbear46: I haven't been on prednisone since the beginning of December, and I take a prescription zantac twice a day already :( hateuc: I will check that out! Thank you for the tip! Dizzy-noodles:...
I don't think so, I never feel dizzy or light-headed or anything. Also there's no accompanying headaches or earaches....
My WBC count was a bit high while on prednisone too :) I wouldn't worry too much unless you started having worse symptoms or feeling worse....
Hi! I was diagnosed in May 2013 so this is all fairly new to me still. I have had nausea probably every morning since I got diagnosed, but it generally goes away after I get going, take my meds and...
I'm not sure I quite understand your question?...
InSoFla, thank you so much! :) I will check out #3. it's the only thing on that list I haven't done except #7! :)...
I have my period as well, yes. I took one tylenol decongestant yesterday but that's all besides zinc/vit c/vit d I have just recovered from c. diff in the last month too! I don't think I need to add...
thanks so much! :)...