My doctors office had me sign some paperwork and said they would take care of getting me set up with Entyvio Connect, but Saturday I got a huge bill from there office lets just say I'm more than a...
Last Tuesday I stared entyvio and was super excited to start it after the long wait. Unfortunatly I have horrible veins and it took over a half hour, two nurses and three blown veins before I got to...
I just got my first infusion today after four pokes to get an IV :( Within an hour a had a super bad headache and was so tired I almost fell asleep in my lunch. Anyone else react this way to entyvio?...
I started entyvio today. It's a very quick infusion compared to remicade. Almost took them longer to find a decent vain in me that the infusion ran. I was told there is not the risk of PML because it...
Prepopnik is my favorite prep that I have done. Loved that you didn't have to chug down a ridiculous amount of gross liquid. Good luck. I have had my scopes done in both a private and hospital...
Whoohoo! Just got my approval letter from my insurance. Now to call my GI tomorrow and bug them for an infusion appointment. After having my flex sig Thursday and seeing no change since my last one...
Is anyone actually having any good luck trying to get on entyvio soon? My GI wanted a flex sig first but his first opening wasn't until July 21st, when his office told me this I just about lost it on...
I was my GI Friday and he said he would get the ball rolling for me. Unfortunately he wants a flex sig first so I'm waiting on that and on my insurance. The anticipation is killing me I just want to...
I would not switch. I was on Remicade and was fine except I could no longer afford it. I switched to Humira and flared the whole time and when I tried to go back I have built up antibodies :( I think...
I would say if you saw some results in the beginning then its worth trying to move up the next shot. I personally never saw any results with simponi and moved my shots closer together and after four...
Well this morning I met with my GI doctor who I hadn't seen since November when I got my flex sigmoidoscopy. Usually I just keep in really good contact with his nurse practitioner who is amazing. My...
I've been on Simponi since October and honestly feel like it has done nothing for me. Not completely surprised since I already failed Remicade and Humira, but I'm defiantly glad I at least tried it....
Thanks maggiemay. I'll get back to you if I have any questions. Just hoping right now that UW isn't a waste of my time... its a hour and a half drive, but at this point I don't think there really is...
Went to my GI today was excited to talk to her about the possibility of vedolizumab over tysabri. Unfortunately she informed me that she had been excited and that it had been expected to be out in...
It's always something silly I completely overlooked. I just started the iron supplements about two weeks ago, so I think you found my answer. Thanks...
For the last couple weeks every night around 5pm I have been getting really red cheeks and generally feeling yucky for a couple hours everyday. It is something I have noticed since starting back on...
Yes I would defiantly call your doctor and remember you know your body the best. I am also on Prednisone and Simponi now. I hit 20mg and unfortunately can't seem to get lower without feeling...
Thanks for the replies... I'm going to look into a few more things before I get to see my GI doctor on the 13th. I'm just ready to get off prednisone because although it helps, it also kills me more...
I've been in a flare since the July and started uceris which helped a bit but by the beginning of September I was back at the doctors for a flex sigmoidoscopy. After that I started Simponi since I...
So here is a little background information I had been on Remicade and everything was good, but I switched doctors offices and when I did they recommended that I switch to Humira because I have been...
What other drugs are you on? I had a similar thing happen when I had started Lialda and Prednisone at the same time. I was told the Prednisone was keeping the allergic reaction from happening until I...
I am currently on 150mg Imuran and Remicade. I brought up the fact that I am extremely tired all the time to my GI last week and see seemed to blow it off blaming it on me being a college student and...
I don't have answers for all your questions but for your question on the lialda it's probably important that you try to find a way to get it or another similar drug. I couldn't afford it either since...
So I've been searching online all morning trying to find the right GI for myself and I feel like I am not finding much helpful information. If anyone is in the Seattle area and can point me to a good...
I'm currently on both and the more research I do the less I like the idea. My GI wants me to be in remission for at least a year before taking me off one of them. My current concern is since starting...
So I just received a message from my GI telling me to up my Imuran to 150mg from 100mg. Of course by the time I called them back to ask why, they has left the office early for the Holiday weekend. So...
I was diagnosed with left-sided ulcerative colitis in May and then put onto 4 lialda daily, canasa suppositories nightly and 40 mg prednisone daily. Finally at the beginning of July I was feeling a...
I have left-sided colitis and I was still having many (10 to 15) episodes of diarrhea a day with blood and it was getting to the point where I no longer felt I could leave the house because I was...
I was diagnosed about a month ago with Ulcerative Colitis and put on 4 lialda every morning and a canasa suppository at night. Yesterday I went back for a follow up and since I have had no noticeable...