First day back from hospital was nice, dropping down from the IV steroids back to 40mg oral has been a bit of a shock to the system. My body has shut down a little, for example my bones and muscles...
So it's is 10.05pm UK time. I have completed my first infusion of infliximab with no hiccups to speak of ! After a most intense and horrible week I shall be heading home a much happier and relaxed...
Awww thank you for the continued support, bloody hard to keep it together sometimes , but we are all fighters and we make it in our own way. I finally get to see my GI today so hopefully I can get...
Thanks so much old hat ! The painkillers are really helping and I'm making sure that I reduce them day by day as to not to be dependant. I have some form of entertainment as well which is nice. I'm...
I was admitted because my frequency was out of control and so was the pain. I was also jot responding to the oral steroids and thus had no other choice. I'm no longer taking turmeric so no problems...
So I was admitted two days ago and am getting cortisone steroids through IV. I'll be doing this for 5 days in total, at which point I'll be starting infliximab for the year. Now I was pretty shocked...
Im lucky my GI is incredibly diligent and we have a good relationship so im sure if i requested anything he would oblige. Although im not experiencing any c-diff symptoms, plus my tests revealed...
Ive been checked by my GI no c-diff or any thing else that i know of. Im going to try head down to the hospital tomorrow for more tests. I got hold of something to help with spasms and its reduced...
So last night was difficult again, i kept in the enema for a good 10 minutes, but my frequency is making things incredibly hard. Im hoping the suppository today proves to be a little easier. I am...
Thank you very much Quincy! I went through a violent bout of pain and blood today genuinely thought i was going to keel over at one point. managed to pass a stool that was obstructing me and then...
Ah thanks so much for the detailed advice! I think my main concern is keeping it in. I struggle to lie on my side without immediately triggering a toilet trip so perhaps ill chill on my back as long...
Hey everyone! Id say its good to be back, but no one likes to be reminded they are not doing well. As far as things go ive been having irregular bloody movements as far as 2 months ago. During this...
Hey guys thanks for swinging some ideas around. It seems the one on my arm has near enough disappeared , but another one has appeared on my hip (swings and roundabouts). Old hat, as far as remission...
Since i was diagnosed with immune problems as a toddler i would always get these red achey lumps all over my body from time to time. As i grew up they became less frequent, but since being diagnosed...
Thanks Old Hat! Doing pretty good as it stands, everything is normal apart from the ongoing D, i can only assume this will level out in time. Good to see another left sider in remission, hopefully be...
UPDATE - Things are going pretty well as of this morning, Still have D but blood has gone and pain is nearly non existent. Bloating has also gone! I am still being very liberal with my diet and...
Big supporter of medicinal cannabis, it has helped a family member through much pain during her chemo treatments. The problem is England will most likely be the last country in the world to legalise...
Hey Grace, welcome to the wonderful world of colitis! I was diagnosed at 15 so have learnt to deal with things through school / college etc. My best advice would be to take your meds, listen to your...
My Doc is usually very thorough when it comes to my flares. Having not been able to leave the house to meet him we spoke via phone call. He just palmed off what i had to say and told me to go on...
Looks like its going to be a sucky birthday, still got D and had my first bloody BM this morning. I suppose remission has run its course for me again, back to the drawing board. Another week of...
Just ordered some 70 Billion CFU probiotics (expected tomorrow). What Reuteri brand would you recommend? Is it not a tad much to have both?...
Will get some probiotics as soon as possible. I do not expect to recover in two days, but i plan to go in to town and eat with some close friends. Would be nice to eat something other than rice or...
So its been just over a week since Norovirus struck me out of nowhere, there is nothing more scary then waking up randomly at 4 in the morning needing to puke and D. This especially worried me as ive...
I mean I have researched intently like most of us do with new breakthroughs . My GI is very highly regarded in London which is why I was thrown off by his lack of knowledge . Every drug I have used I...
Hmm does not sound too promising . I have a meeting booked in for next Tuesday (Dr is on annual leave ) . I think my flare is certainly down to University results stress , hopefully once that Is out...
So I am aware people have already posted about entyvio , I am currently waiting on my private physician to give me the go ahead . He , surprisingly has never heard of the drug and I was wondering if...
I've been getting this rather frequently since I've been battling a recent flare . Writing directly from the throne I can confirm that I tend to pass my asacol if I take it directly before I eat...
Currently i am having bad intestinal pains , the frequency is not terrible but if i need to go i need to go, im also loosing a lot of blood and there is plenty mucus. To be honest i wish i could just...
I am currently on Aza and have been for over a year. It has served me well the majority of the time but i cannot seem to go more than 6 months without a flare. Currently i have a lot of subconscious...
Thanks for the imput! I suppose we all just crave a quick fix, ill be sure not to pump myself full of the stuff....
Beer really does not affect me adversely. After having a long chat about alcohol with my specialist (i am a university student so have been a tad bad with the drink recently) he said that me reducing...
I had a pretty bad flare up over February and started taking Symprove around 3 weeks ago, and my god i have not recovered so quickly and felt so healthy in a very long time! I currently have enough...
In your case, if you think something sets you off just stay away in future. Hopefully if its just the glutamine that has set you off, you will be out of the flare in no time. good luck!...
surely this whole disease is trial and error? Because everyone reacts differently to differing treatments and supplements is it not best to try most things on the spectrum and take the best out of...
i had a look at the product and imo i think it might help to try a better product. i personally stand by this...
ah that sucks! its just such a double edged sword. im currently in a small flare and am considering maybe having a couple roll ups a day to see if it makes any difference again...
in my experience if it is good quality glutamine then theres nothing bad that could really happen. Glutamine is known for its anti-inflammatory benefits so does not make much sense to me....
stopped smoking two months ago in a bid to become all round a healthier person, just wanted to know what you guys think about the effects of nicotine and if maybe it helps a little....
Just as a note i am taking symprove as a probiotic. To be honest ive been ill the whole two weeks i have been taking it so not sure of any notable differences. Can anyone recommend an inexpensive...
thanks for the reply! i have had UC for over 6 years now and have been weight training through the majority of that time. The only supplement i have stopped taking because of it is the aforementioned...
So i thought i had finally beaten this horrible disease. i had enjoyed 11 months in remission, literally no pain, no urgency and 1-2 movements per day. during this time i had started university and...
pink1, would you say you were in remission for the full 7 years? i too also will be on aza for at least this period of time. im really hoping i can get my life back on track for at least a handful of...
i am in love with this drug! it has brought me out of a terrible flare and seemed to put me back on the path of remmsion. i can only imagine with more time things can only get better, well i hope...
i have heard muscle milk is full of unhealthy sugars just to boost the taste, although saying that im lucky enough only to have stomach troubles with dairy products. i think those people who have...
thanks Adam and Mike. its great to hear there are people who want to make the effort to have the health and body they want even through such a debilitating disease. a couple of months ago i looked in...
yeh, i was pretty much supplementing exactly the same way. currently i am also at 56KG and im about 5,8. Not a big guy in the slightest but my goal will be to hit 70KG for the moment. as always the...
my best mate who happens to be a personal trainer put forward the idea of egg white protien to me. that is probably what i will go with. also i know the pressures of eating like 6 meals a day, but i...
during my time in remission i was mad about gym. i think the fact that my UC made me feel so unhealthy i wanted to make a drastic change in my health. i was totally dedicated for a good 16 months and...
Blueheron thats really interesting. i literally get identical symptoms and it is just such a hassle over the winter. especially living in london its freezing down here 6 months of the year! im going...
it sucks to know there is nothing we can do about it. i may be wrong but it also seems that there is such a lack of studies in to autoimmune diseases. i have never had a clear cut answer from any...