Spring - I see that you are down to 5mg pred and assume from your reply you don't have the myopathy symptoms anymore. Do you remember at all at what point they went away? Tapered to 25 today. I...
I think your opinion John is very consistent with my doctor's. I'm on the fence. Will wait to hear back from him....
John, have a great GI and I've been on a double dose (10mg) of Remicade from the beginning. He also shortened the time before my 2nd infusion to 10 days instead of 2 weeks, and my next one will be in...
Thanks Mark. Running it by my GI. He's pretty anti-supplements but maybe he'll say ok. These side effects are pretty unbearable....
thanks for your reply John. BTW enjoying your posts, they are very helpful, and your sense of humor as well with your "you might have UC" comments! I'm also thankful for Remicade, finally found...
Just found this thread. Officially diagnosed at 64 (this past May). However always had stomach issues since I was a kid, but nothing like this. UC symptoms started a year ago when I was taking...
I have a whole box I paid a fortune for, not using it if anyone wants to purchase it from me I'm happy to sell it. It's in my fridge.......
I have been diagnosed with steroid myopathy caused by the length of time and current high dosage of prednisone that I'm currently on. I've been on the drug for 4 years now, 3 years for Polymyalgia...
I'm curious if your experience of flares and/or pain corresponds to your crp and sed levels? On Remicade and my blood work was taken before my infusion and results for both crp and sed levels were...
I've already suffered damage from corticosteroids, been on them for almost 4 years for another condition and was almost off until now when my GI wanted to increase. Got osteoporosis and cataracts...
Trying to pick up this thread again as I was diagnosed with UC in May, nothing is working and considering Qing Dai. Purchased some but hesitant to start as my GI is against TCM, and I don't want to...