I know how you feel. I heard that apple cider vinegar will help with gas pains and irregularity, so I've been taking 2 tbs with a big glass of warm water every morning for 2 weeks now. It works, but...
I found that since taking meds I get burping, not just with predinsone, but asacol and now lialda. I take Soloray peppermint capsules and recently started taking Braggs apple cider vinegar. The...
I was on an 8 hour flight a week after my diagnosis. My doc gave me lomotil, better than Imodium. I was on 60 mgs of predinsone at the time, but I didn't have any issues other that the worry of...
I finally quit smoking 3 months ago with no real ill effects this time. I'm uncomfortable and get some serious cramping most days, but while I think the smoking helps, I myself am tired of the...
My situation is that Asocal has been discontinued and express scripts recommended something else. I faxed it to my Doc and when I checked express scripts today, apparently I have Pentasa coming my...
Maybe taper more slowly. I can't remember, but I was on 40 mg of prednisone for a month (or so), then my Doc had me cut it down to 20. Then it was 10 - 5 - 10 - 7.5 - 5 - 2.5 - 5 - 2 - 1.5 - 1 -...
Anucort-HC worked for me right after my colonoscopy. It's a suppository prescribed by your Doc, but it works immediately. My Doc had to check me first to rule out a fissure. Doc also suggested...
Someone posted a question along this line months ago. I have had allergies forever, a little eczema patch that I've had as long as I can remember has turned into a few more miniscule patches in the...
Thank you! I'll try squeezing the air out. I didn't even think about that! I haven't used them in over a week now. This weekend... Question? What does it do? I've read here that you tackle it from...
I just saw my Doc last week and when I told him my hair was growing back and that I assumed it was from the prednisone, he said it was from the colitis itself that caused it. Stress has caused my...
I haven't been here in a while and ya'll have been very helpful in the past. My meds have changed. I'm back on Asacol and have been prescribed Rowasa enemas to use daily. My pharmacy gave me the...
What was your blood pressure like? I have always had low blood pressure and the symptoms you noted are very familiar to me, although when I stand up to quick, everything turns white, not black....
You were diagnosed the same month I was. I've been thinking the same thing as you. I've been sick for nearly a year, what next? I take comfort in the fact that my meds work and I can work full time....
Prednisone made my allergies go away completely until I got down to 10 mg. I've been off for a month now and allergies are back, including my cat, dog, grass, burning wood, etc. allergies. I'm...
I have pancolitis, just diagnosed last April. I'm doing quite well now that I know what is wrong and I'm properly medicated. It's not the end of the world, although some days it feels that way. My...
I get the shakes on pred. Now that I'm almost off it, it's a lot better although not gone. I read that this can go on for awhile after getting off it. Another side effect. It also makes me really...
Two weeks after my dx, I was on a plane from the west coast to the east coast, 4 airports. I was scared to death because I wasn't even able to make it through the night yet. I had Lomotil, just in...
That is so funny! Thank you :-)...
I've only taken an antibiotic 4 times in my life. One of those was prior to diagnosis to rule out c-diff before the test came back. I'm 48 years old, have had 2 bladder infections and 1 food...
1/4 of a generic unisom knocks me out, but I can wake up easy. If I take a half, it takes forever to wake up....
I've had to do a VERY slow taper. I went from 40 to 20 after 1 month. Then to 10 and stayed at 10 for quite some time. I dropped to 5, had a Doc visit and he told me to go back to 10 because I was...
I've had tummy/potty problems since birth. In my late 20's, Doc chalked it up to IBS...due to bleeding. I had a really bad (likely my first flare) episode going on 6 years ago, but no health...
Have you changed anything in your diet? If I drink red wine, it changes the color. What causes you to feel it's blood and not something you ate?...
I truly believe the 40 mg's of pred stopped my bleeding. It was really bad and has not returned. I started out on Asocal, but it's hard to believe that stopped it. I'm down to 1mg of pred and...
Sconnie, What actually are my "UC related symptoms"? I've had no blood since dx. I have some urgency some mornings. I actually had some urgency in a grocery store a few weeks ago, but I let it pass...
Yes, I would definitely have to say I have UC issues. Only in the morning though. When I was on Sulfazine, I was great! Then I was off meds for 3 weeks, other than prednisone. I had to slowly...
I need your opinions please... I've been at 2.5mg for 2 weeks now and feeling the same. My Doc told me I could just stop taking it after I got down to 2.5 for a couple of weeks, but I'm worried. I've...
Hi Bookworm, I don't have much to offer, but you have a great sense of humor! I have IBS and pancolitis. I haven't quite figured out the difference yet. I had joint pain when I tapered prednisone too...
I have a very mild case of rosacea. I was dx about 15 years ago. I used metrogel for a few years, but figured out my trigger foods/drinks and avoiding those keeps mine under control. My Dad was dx...
Maybe try red raspberry leaf tea. When I was younger, my cramps were unbearable. I tried this tea and had 2-3 cups a day the week before my period and I didn't have any cramps. My best to your...
Just tell the flight attendant when you board. I flew 2 weeks after my dx and never had to check my carry on because "I had medication that I couldn't live without". I never needed the bathroom, but...
Ken, Thanks so much for time you spend to post this information! I found an old post of yours last week and went to all of the links you listed. I'm still looking into Canada drugs. Just wanted to...
Hi Lou, Thanks for responding. You're not taking anything right now? I'm considering it, but I'm afraid to stop everything. My heart rate has been high, but my doc said that was normal for me. Then...
I can't eat pasta or bread anymore. I finally figured it out from reading here. I can put cheese and mayo on a tortilla and I'm fine. Black beans don't like me, but I'm fine with pinto or lima. I...
I hate this disease! My arms have scabs on them. They got all red, bumpy and swollen last week. My doc told me to quit taking the sulfazine and I see him next week. I guess I'm lucky that only my...
Mine has gotten better, but it's only been about 3 months now. I think it's the prednisone? Who knows...I'm no longer spending the day in the girls room and I can leave the house and take long road...
Thanks everyone! I just went out of town for the holiday and stayed with my family. No weird dreams all weekend! Maybe it's stress? I don't take anything else other than Sulfazine and 10 mg of pred....
Hi! I'm in the same boat. I'm in WA now, but used to live in So Cal for many years. I was recently let go from my job and opted out of COBRA due to it's expense. I told my Doc and he only charges me...
I just searched this and found 3 old threads that haven't answered my question...I'm wondering if it's medication related? I'm having the weirdest dreams imaginable since I've been on UC meds. I'm at...
I used to take this regularly, years ago. Certain foods make my belly feel gassy and painful. A capsule or 2 worked wonders! It made the pain go away in 15-20 minutes. Now I just don't eat the foods...
Wow! Very interesting stuff here... 5 years ago I think I picked up a parasite from my Dad's well water. I had severe cramps and bloody d for 3-4 months. I didn't have insurance at the time and it...
Hi Ju, I'm newly dx'd as well. I didn't know my eye problems were related. I have the same. I have new drops called Naphcon-A. 2 drops 2xdaily is the only thing that works for me. My pharmacist...
Thanks to you both. I have perfect oral hygiene already and drink plenty of water. I don't think it's the pred. I think it's the sulfazine. I started liquid chlorophyll 2 days ago and that seems to...
My bf told me tonight that "I have the funk!" Talking about my breath. I feel/taste it throughout the day and brush/mouthwash often, but I've wondered if others can smell what I feel in my mouth...
I had a highly stressful biz for 10 years which closed 5 years ago. 15 or so years ago I started fast walking every day. Some call it power walking, but I just got up early and walked to Starbucks,...
I had my 1 month follow up today from the last 2 week follow up from being initially diagnosed. I'm back to 10mg's for the next 2 months. Reason being...my osteoarthritic knees and 1 hand have come...
Supa & Songlady, I thought I was taking about the same qty of meds as most on here. Maybe my sig doesn't read correctly... I take 2 500mg sulfazine and 2 400mg asacol in the morning and the same dose...
Mine were wrinkly and peeling before my dx. I was severely dehydrated though. It was severe dry skin for me....
I asked my doc this same question at my last visit, "What does normal look like?" He said he didn't think I "know" normal. He said 1-2 stools in the morning and maybe another later in the day. Likely...
Thanks Laura! The prednisone tapering worries me more than this disease. I'm actually getting off the asacol (can't afford it anyway) since I don't have side effects from the sulfazine. When I'm out...