for 8 days in the hospital they had me on solumedrol 100mg I'm pretty sure. Then they put me on 40mg oral prednisone...then 60mg prednisone, and then when I finally seen my GI he thought 60 was too...
Yes I agree, I have written down the 3 times I've tested it so far. I have a feeling she will just send me to someone else. I just want to feel normal at this point....
dad checked my blood about an hour ago and it was 9.1 and now I think it might be a bit higher, feeling cruddy. If it is just the prednisone I can't wait to be off of it. If i'm diabetic, well, that...
yeah, i'd say my anxiety is too high, which doesn't help. also the prednisone makes you anxious. so that too. dad just checked, I'm 9.1 right now. I will mention it to my doctor tomorrow....
Just a question... PCP is my regular family doctor right? Because I'm going to see her tomorrow and it was originally for my anxiety, which I was very close to cancelling this week because of how...
Judy what did you do when this happened to you? I'm back home visiting my parents while trying to get my health under control and I think I'm stressing them out with all of this. I have both of them...
Hey thank you so much! I posted it in both forums and have been going back and forth, since it's related to the prednisone i wasn't sure if the ulcerative colitis forum would delete it or not. I had...
yeah I wish there was one of dad's old ones here but he ended up throwing them out. That is exactly why I'm so worried, because dad came down with type one at the age of 32. His father, my...
Thanks for the link, these drugs are scary. I know I tend to freak out sometimes but when I'm sitting there shaking and feel like I'm going mental... I'm glad dad tested me maybe that's why I've felt...
I should add that I did take it last night around 11 after him taking it at 730 and it was down to 4.7 so either I came crashing down from the prednisone or I can't trust the blood checker. Which is...
Thanks for replying over there but felt I had put it in the wrong forum and stuck it over here too. Unfortunately dad took his checker to work and never woke me up this morning so I don't know what...
fellow UCer here! I just today tested my blood and was shocked to see an 11.1. my father has type 1, I've had a rough month or so (maybe rough year so far..) and think I'm in for a ride too. do you...
hello everyone! i'm originally from the ulcerative colitis side of things, but I just wanted some input. After all you are the best people to ask. After seeing my doctor and her looking at me like...
I was on prednisone for the first time at age 12, don't remember feeling like this, and again at age 21, then last year at age 25 for mono for a week. the first two times I remember being on a taper...
Hey again everyone, I just wanted some input. After seeing my doctor and her looking at me like I'm nuts because of my side effects with the prednisone last thursday and doing absolutely nothing for...
I'll share - I FEEL LIKE I'M GOING NUTS. I have been on it before but this time is the worst. 30mg currently, not much different from when I came home on 40mg. moon face,sweating,...
I've had this before and I'm not sure if it is linked to our UC or not but I do know low-grade fevers are common amongst us and might explain all of that....
I'm in the same sort of situation, only I pulled the owner of the store I worked at aside and told him what was going on. Said he would help me...guess there was no point in being honest with my...
I am on the exact same thing right now, and scared it's going to happen to me too. I've only been on the Imuran since around the first week of April, and right now 35mg of prednisone and will wean by...
So a bit of an update I've still been feeling really run down, its persistent and I'm still not entirely sure what it is. I got my Gi to check my mouth for thrush. Nope. Thinks I can't taste well and...
I will mention it to him when I see him, they did have me on just 50mg in the hospital but they only did that for a couple of days and then put it up to 150mg....
I know it's the prednisone that got me out of this flare for sure, today I have gone 3 times, which is the most I've had since I came back from the hospital. Would like to see it more formed, but...
Ah, so I'm not the only one for sure! I don't know if I can stick with the Imuran. I have an appointment on the 24th that I made just for these reasons (especially the mouth issue) The other day it...
Thanks for the replies :) I do take the Imuran before bed, but am curious if because I take that big of a dose, can it carry over into the next day? A few days even felt like getting sick and had to...
Not sure if anyone remembers, but I recently was in the hospital, got out on April 11th. I was there for 15 days... They have me on 40mg prednisone and 150mg of Imuran, and I feel like I have zero...
I'm wondering the exact same thing as you right now. I got out of the hospital on the 11th and have been wondering if its worth all these drugs they have me on (imuran, prednisone, vitamin d...
I'm on 40mg right now, so far so good, haven't been on them very long but was scared to go on them again because I remember the mood swings I got back in 2009, not fun at all! I have yet to notice a...
so after 15 days in the hospital, I asked to come home. The last few days the nurses were barely checking up on me, hadn't had a fever in days, they were kind of letting me do my own thing....
hey! thanks for the reply, yes I am allowed to eat, I could order yogurts as part of my meal, is that something you would suggest? I've been in the same room all week and have one other person in...
thanks rbartolo, I know its not good to panic. Just feels like I got hit with a tonne of bricks with all the stuff he was telling me this morning :/ the hospital is trying to help me get everything...
UPDATE: good news - I just met my GI, very very nice man, told me hes not a fan of people being on prednisone, 60 mg is too high so he wants me to go back down to 40mg and slowly work my way down,...
They tested me for c-diff when I first came in and it was negative, so that was a load off when I found out I don't have that. I've been in the same room for a week now and highly doubt I will get...
I will definitely bring it up to the GI tomorrow and see what he says :) any choices I may have that will work faster than the meds I'm on would be nice....
I did ask about cyclosporine and the doctor told me they would rather not try that one. He came in this morning while my cousins were visiting and told me he wants to up the prednisone to 50mg...
So a bit of an update, I've been on the oral prednisone 2 days now and nothing has really changed, there is still blood in my stool, most times when I go I double over in pain. Still have pain in...
no...but the doctor said they will keep an eye on me with the oral prednisone and if it doesn't have a good effect they will go back to the liquid. I have no idea how long I will be in here....
They want to try me on Imuran, take me off the liquid steroids and put me on oral ones. they are keeping me on iv still to keep me hydrated....
Oh and just so everyone knows a GI did come to talk to me today, but after 5 mins talking down to me and making me feel like an idiot I went straight to the nurses to ask for another GI. Everything I...
Wow, several weeks. Well, they still haven't exactly decided anything yet. In regards to the private room, I personally think I should have one now but ultimately I guess it's their decision. I've...
Yeah my other flares weren't like this. It's the worst one by far. Also im not rushing to surgery, I'm going day by day just like the doctors are, that's all I can do. and yes Cyn, I'm hoping...
I don't think that's wise making someone leave the hospital in the shape I'm in. If they are concerned all they have to do is move me to a private room. You don't try a medication and not wait for...
I just got my TB shot they said they'd come look and see if it's raised up which would mean I have TB, which I highly doubt....
Well if they use the remicade they better not discharge me! They should've kept an eye on you to see how you reacted instead of making you suffer more. My doctor said they aren't letting me go...
They still have me on the steroids. Could be later today or tomorrow that they do the TB test. The doctor said something about because I'm on the steroids that they will have to test me for TB...
they want a TB test done on me does that mean they will try the remicade?...
I'm glad to know I'm not the only one who has been here for a week, freaking out about it. Colitis is a tricky one, and unfortunately its different for all of us. I despise those enemas and the...
Thanks for the replies everyone. There is still blood present, the doctor says I'm not reacting to the steroids like they hoped, and they are probably going to try remicade tomorrow or the day after....
thanks for the reply. I am still waiting around for a doctor to come around... I'm worried about the remicade, and also worried about the steroids they have me on. They don't seem to be working very...
Hello, My name is Sarah and i'm 26 years old. I've had colitis since i was 12. I'm currently in my third flare, and this is day 6 in the hospital, still hooked up to iv's. I have never EVER brought...