Marauder , Interesting that it could be muscular because I do run quite a bit . I will bring it up to my GI. I just don't want to end up with liver disease . Im wondering if Asacol could cause liver...
Thanks Gary , I'll give it a try ....
Hi , I've recently had a blood test and noticed that 2 of my liver enzymes are high . My AST is 77 and My ALT is 41. My GI is repeating blood test to check for liver disease . Has anyone had this...
Hi, I had cellulitis last summer on my wrist bone . It started out as a little swelling , and since I had trouble moving it properly I went to see my doctor . She prescribed antibiotics and so I took...
Hi, I don't post very often, but I wanted to offer some support and let you know that there is light at the end of the tunnel. When my days looked the darkest I just kept hoping I Wouid get better ....
Toronto also Pancolitis - diagnosed 21 years ago 47 year old female Current meds- asacol, prednisone 4mg...
@ Gary, thank you so much ! Interesting how my own G.I doesn't even bother to give me this important information .This is Very very helpful. I will do that and perhaps the side effects will be...
@ Gary I am going to google adrenal Shock so that I am aleast aware of what it is . Thanks I appreciate all your help....
@ marauder : I see you were on Remicade- why did you stop it ? I also want to Leave Remicade for a last resort drug in case I'm in a very bad state and I've got nothing left ....
@ marauder I'm scared to try biologics . Any major drug I've tried I've gotten really sick from. I'm scared the same thing will happen with remicade . I'm mostly afraid that it can cause other auto...
Thanks Gary, you are very helpful! How would I know if my body stopped manufacturing cortisol on its own when I taper lower then 8-12 mgs. Would there be specific side effects that I would feel or...
Hi all, I always read posts and find everyone so intelligent and informative . I've asked questions before , but here I go again . After reading so many negative posts about prednisone and it's...
Thanks for your advice , it really helps me look at all angles ....
I'm in Toronto, Canada and my dr had mentioned putting me in a study about 6 weeks ago when I was flaring . Now that I am back to normal ( on 1.5 pills of prednisone and tapering ) he hasn't...
That's good to know , because it won't surprise me at all If I land up on that drug ! It's my last resort card !...
I have never tried tapering off prednisone using the mesalamine enemas, but I am so scared to try . It's possible it may work , and possible it may end up landing me in a vicious cycle flare up . All...
Hi Gary , You may be right about that ! My only other choice is starting the biologics ( remicade , or simponi ) . Really hard to know which will be worse . The devil I know , or the devil I don't...
Kiptyn,- that's a very good idea the 1 mg pills . That way I go down really really slowly . Obviously that's what I Wouid like to do get to zero prednisone . My husband takes turmeric , and it's on...
Hi Indy Cat, That makes me feel better to know that your Dr said the same thing as mine . It's really the only thing for me that also keeps me out of a full flare as well . When I tried to get down...
Nice cup of tea- I feel for you , I really do. I do think psychological counselling is important before during and after a surgery like this . I can think of times my dr wanted me to have the surgery...
Thanks for your advice ! So much to think about all the time . I'm going to try the salofalk enemas ....
Hi fruit girl, It's half a pill ( sorry 2.5 mg ) not .5 mg that I Wouid stay on. Each prednisone pill is 5 mg's . I'm in canada and on a generic version of asacol, and they are 400 mg pills , and I...
Hi ipoop, I can't take any of those immunosuppressives I've taken them before and it caused acute pancreatitis and landed me in the hospital with terrible pain . I don't have a ton of choices either...
Hi Pam Smith, I've tried pretty much all the UC meds . 6mp gave me pancreatitis , entocort same thing , for some reason prednisone at not such a high dose ( 20 mg ) helps me achieve remission . I...
Hi Fruit girl, I have used mesalamine enemas , but it's been a while .ive mainly used salofalk suppositories and cortifoam . Mostly because they are just easier to use . I would definitely try that...
I've had colitis for 21 years . I'm now 47 . I've mostly been able to function pretty well on 10 asacol a day . However I've had flare ups over the years where I've needed to take prednisone . The...
Hi, I've used immodium many many times for years now with no problems whatsoever. My dr said it's perfectly safe as long as you don't take more then the recommended dose . I've been taking it for...
Hi, I had a colonoscopy in March and I got really sick after it . It turned into a 3-4 week ordeal where I was completely nauseous , weak, and ended up needing 40 mg of prednisone . I also ended up...
Hey thanks ! Makes me feel better . Always something to worry or panic over with this disease ! Either it's a flare up, low iron, medication side effects . When things are starting to improve, I'm so...
Thanks for your answer , I appreciate it ....
Hi, I recently had a pretty bad flare which was complicated by an episode of pancreatitis , which I think was related to medication I was taking . My blood work was not great CRP was 25 and normally...
Hi Stealthguardian, Awesome that you do all that exercise , yes it's definitely a must . There is definitely a fine line between doing too much and doing the right amount . We have to know our own...
Thanks hateuc and ScienceGirl, No I have never run Boston , but that's the ultimate marathon to run amongst all my running buddies . I am planning on running NYC in November . UC Pancolitis Diagnosed...
Hi rbartolo, I've never been to TGH only SunnyBrook And Mt Sinai which are known for the treatment of IBD . You need to have your family member keep pushing for treatment or answers . Your Gastro...
Hi rbartolo, I too live in Ontario and to be exact live in Toronto. I have been in hospital several times for my uc and have never experienced that kind of treatment . It seems to me because you are...
Do you think it's ok to take iron before it gets to a point my ferritin is quite low ? Because by the time I'm told to take iron it takes so long for it to improve . Basically I want to catch it...
Hi Banana girl, Wow you've had a lot of infusions ! I guess it's something that I will just need to watch . It's especially important to me because I'm a marathon runner as well and I know low...
Hi , Thanks for the info ! I too used to see a hematologist about 10 years ago and once I needed iron iv , but I never went back since then . I didn't realize you could have a normal hemoglobin and...
Hey soy stud , Running does not take away my symptoms , but I'm pretty sure if I didn't run I'd have the same symptoms but worse and be in pretty bad physical shape . And yes we were designed to run...
Hi, I'm wondering if anyone knows why I would have a low ferritin level ( 19) normal is 50-400 .My hemoglobin is a little on the low side, but still normal. I ended up having to take iron pills...
Hi Jackson Call, If you love running you should get back into it ! I basically always have chronic low grade Inflammtion in most or all of my colon , but really find that the running has helped my...
Hi vet member , Maybe I have to work harder then the average person without UC to be able to run, but I also appreciate what it does for me psychologically and physically . Uc can make you feel...
Hi, Firstly I love the Wilma Rudolph quote . That's my motto as well. It's awesome that you run. It's so good for you physically and mentally . Don't you find you are stronger because of it ?...
Very interesting ! My doctor mentioned a few of the biological such as remicade, humira , and simponi as well. But I didn't know of anyone on that drug . I'm glad I found out some information from...
No never had any issues with my gallbladder. I had ercp test , ultrasound and they found a little narrowing in my pancreas but don't know if that was caused by my attack or not .its very confusing...
Hi , I've had uc for 21 years . Started out as proctosigmoiditis and in the last few years went to pancolitis . Have been on and off asacol , mostly because thought it was causing pancreatitis . Now...
Is pentasa the same as Asacol? Uc -Pancolitis 21 years...
Thank you ! Very helpful information there . UC pancolitis 21 years...
Do you know if they ever developped pancreatitis again while not being on a medication ? UC- pancolitis 21 years...
I'm interested to know if anyone has ever been diagnosed with UC and Pancreatitis ? It's hard to know if the pancreatitis has been from some of the meds I've taken or not . Anyone ever develop...