Thinking about starting it. Wanted some feedback. But then again, if one was successful might not be on these boards. Thoughts?...
What exactly constitutes a flare? Right now, I have urgency in the morning, but no blood or mucus. Does this mean Im in remission? Or is flare status based on being able to reduce medication?...
Thank you for sharing your paper with us. I havent been able to read all of it yet, but how and who can prescribe 100 mg of Wellbutrin 3x daily? Did your GP write an RX for this? Thanks again....
@Quincy, I am glad that you brought this to my attention, I was actually diagnosed in November 2013. I need to fix that in my signature. I was breastfeeding and did not want to take medication...
Poppie, walking through the dark in a remote place sounds spooky! I am so sorry to hear that you suspect cardiac problems. I am glad that you trusted your instincts and headed home to get checked...
Oh my wise fellow UC'ers, First thank you for reading this. Your time out of the bathroom is precious and limited. I appreciate that. Second, was on Lialda (along with Rowasa enemas, daily, and...
My OB told me that if you have UC, often it is better in pregnancy because your body "turns down" your immune system so that it wont attack the fetus. That was little solace to me while UC was...
Sorry to hear about your situation. I have asthma and UC. My asthma is triggered by allergies and exercise. I take an albuetrol inhaler before I work out (that is when my UC isnt flaring and I have...
@notsosickly, thx for the info. I hope things get better for you! @fruit, just called and left a message requesting apriso since my pharmacy can't get uceris for another two days. We will see how...
I am new here, so forgive me if this is unhelpful. Do you avoid caffeine in all forms, including chocolate? I found that cutting out all caffeine helps. Also, I feel like the suppositories fast track...
Thank you for sharing this! It was the hope I needed tonight. Congratulations and enjoy yourself!...
@notsosickly, This may sound stupid, but can you please explain to me how can you have 20 cm of inflammation and have pancolitis? Did it use to extend farther and meds brought it down to 20 cm, but...
@notsosickly, Thank you for your reply. I am wondering the same thing- what will I do for maintenance? I am on Rowasa and Canasa, but will that be enough. I am going to ask about Colazol. I wasnt...
So the nurse of my Dr. from the esteemed Johns Hopkins IBD Program finally called me back after THREE days and EIGHT calls to his office, so I am feeling mighty blessed. The blinding migraines which...
@michele, glad it never gave you any trouble! I appreciate your feedback. @mom2twoboys, thanks for reminding me to call. I did and am waiting for a reply. I thought I could tough it out and I started...
@embersglow, I am still taking canasa and rowasa. Do you think I might incur a flare if I miss two days. My dr did not return my call today. I'm hoping he calls tomorrow. I switched to the Hopkins...
Hey all! Currently in bed with a crazy headache. Started 2 pills of Lialda a day on June 18. Several days later, I noticed that I was getting migranes. I was wondering if it was some type of sudden...
Read your post. Good for you to get sober and take control of your life and situation. I'm sorry I don't have advice for you on your medical problems, as I am newly diagnosed, but I'm sure someone...
If you feel up to it, go for it! I don't think the rides will cause a flare....
Yes, I do! I'm sure the crazy grumbling noises my gut makes also trick me into thinking my stomach is growling and I'm hungry....
Thank you so much for sharing this link. Besides generally upsetting my UC, I needed another reason to kick my diet coke habit to the curb. saving this link. thanks again!...
Just wanted to share my two cents. I was seeing an awful doctor who was very unhelpful, so I recently changed to the John Hopkins IBD program. My new doctor there told me he has had very limited...
I currently live in Washington DC and am a stay-at-home mom to a 9-month old and a two-year-old. It is the hardest job I have ever had! Prior to this, I worked as a school psychologist in NY, HI, and...
Currently awake and trying to figure out if I should head to the ER or not. Had a major bout of black D from 6-8 today. I think I'm completely "cleared out" now after 8 or so rounds, but still some...
I am a newbie here, but I find if I skip a day of Rowasa, the next dosage loosens things up a bit. I think it is the colon adjusting to the additional liquid introduced. When I first started, my...
Im so sorry to hear about your worry and frustration with your scars. My thoughts, feel blessed that you have a bullshit filter. If anyone doesnt like you because you have scars, they arent worth...
I am so sorry I cant be more helpful. I am newly diagnosed and quite confused. Just wanted to wish you luck and congratulate you on your daughter's wedding. Hope you are feeling better soon!...
There is not enough data to draw a conclusion either way. My doctor told me he thought that it would be fine, but ultimately the decision was up to me. He acknowledged that there is no data to...
Thank you for your feedback. Im so glad you had a good experience and baby was happy. My doctor looked it up and thinks it is fine, but they really dont know what the long term effects of Lialda are...
Its a FATAL lymphoma you cannot just stop the drug and stop the cancer otherwise I would have said yes and done the routine bloodwork etc. When you are one of the 6 in 10,000 then you really don't...
Thank you for this information. Is remicade a chemotherapy drug? I have to take a look at it. I am sorry that you arent feeling better and I hope your surgery goes well! PLease keep me updated. I am...
Thanks for letting me know you are in the same boat. I am sorry to hear that you arent feeling well. This forum has been such a great source of information. I hope that you feel better soon....
I will have to look at your previous posts to see what you mean. I am so sorry that you were miserable. I hope you find something that brings you good health! Thanks for your feedback....
I am glad you shared this. I had no idea that this would be an option for anyone. I will not take this decision lightly. My family, like evreyone else's is my life, and I want to do whatever I can...
I am glad that you found something that helped, even if it was difficult. It is so kind of you to be on this forum giving people hope and support! Amazing. Your parents raised you well to show such...
Every other day. do you think I should step it up to everyday? My last doc had me on MWF which did not work. I got rid of him and last Friday went to Hopkins IBD program. Yes, one. I woke up in the...
I have a bottle of Lialda sitting in my cabinet. I just changed doctors to be seen at the Hopkins IBD Center. My new doctor said I can try to take Rowasa PM and Canasa AM for one month. If it doesnt...
This may be a stupid question, but I'm recently diagnosed, and Id appreciate an answer to this question. Right now my doctors are tweaking the 5 ASA drugs to figure out if they will work. I am on a...
Thank you for posting this link! I can add this to my reasons to get up and moving. Pity party over! Time to get moving! Good find!...
Long story short- Intense, brown porridge like diarrhea in response to Rowasa taken over several weeks. Came down with a cold for a few days. Was in bed. Forgot to take Rowasa. Crazy D went away!!!...
Did you just ride out the intense D? Was it better than your "regular" symptoms? I was nursing a baby. My doc said I could do Rowasa and he thought I could still nurse "with caution" and watch the...
Thank you for saying this. I dont want to offend anyone or make them uncomfortable. Talking about fecal matter and my bum is a whole new world for me. Everyone on here is so kind with their advice...
I am so sorry that this happened to you as well. It is pretty awful being trapped in the bathroom. I wonder if this is just the body getting used to the medication as the pharamcist told me, or...
I am so sorry to hear that your son is going through this. I am 33 and newly diagnosed and it is overwhelming for me, so I cant imagine the stress of having your son go through this. I am currently...
Thank you all for your replies! I'm glad to know that this type of D is likely an intolerance. As luck would have it, my Colon and Rectal Surgeon had a major surgery of his own, and is out of the...
This post is going to be graphic. It is not for the faint of heart, and I am not writing with the intent to offend or upset anyone. If you think you might be upset or disgusted, please look away now....
Wanted to update this post, just ion case someone searches for this issue later and needs the info. Ask the pharmacist today about sulfa allergy and the sufite preservative in the Perrigo brand...
Well said! I think it is hard for him to understand that sometimes I cant continue to eat a meal, even if we are out to eat, or even if he takes the time to prepare it. Sometimes I feel sick, and I...
Thank you for your replies. My husband thinks its all in my head. I have tried denial and deluding myself into trying to think its not real ,but alas, that is not working. I will ask my doc next...
Congratulations! Thank you for sharing the good news. Always nice to see a familiar face, especially at the hospital! I needed some good news today. Hugs to you!!!...