Thank you insurance! Hahahaha...Our insurance won't cover twice in less than 6 months. New GI is putting him on Sulfasalazine for now. We will plan a scope for 3 months from now. Hallelujah!...
We repeat stool cultures every 2-3 weeks. He continues to show negative for C. diff and other bacterial infections. They did the calprotectin test but I don't know what it showed or what it means. At...
Howdy! My 4 yo has been on an elimination diet ever since the Remicade failure. We are still working on completely eliminating some foods as I have found that corn is ridiculously hard to eliminate....
We are just learning too. I started a food and stool diary for my son. Immensely helpful as he is 4 and cannot always articulate what's bothering him. I put him on a complete elimination diet. It is...
They are completely unwilling to try any of the 5-ASa's. They 'aren't aggressive enough'. We're weaning off prednisone now. Down to 20 mg a day from 35 originally. Seems to be going well, but like I...
Ok, so flares started in April. This was my son's 3rd round of Remicade and he went into anaphylaxis within 15 minutes of the IV starting. They do not want to start azothioprine, and frankly, I don't...
Thank you all for your kind words and support. We are going to see the Pediatric GIs in St. Louis this week, so hopefully they can tell us something. At this point, I would take just a decent...
Thank you all for your encouragement! I was super exhausted verging on hysteria when I posted the other day. We are back home now and keeping a close eye on him. I have a second opinion scheduled in...
Well, they've already given him the Remicade. I am not happy but was made to feel that I had no choice. Initially I was told that they would only do 3 doses of Remicade to see how he responds, now...
My vote counts for absolute nothing since my experience is very limited, but I think if something is working for you, stick with it. I am hoping to try SCD on my son once we get his IBD under control....
I am wondering the same thing! They said that chronic inflammation indicated that it was IBD and not just from the C diff. I am obviously no GI, but the pics of his large bowel looked pink, not pale...
Oh, gee! I hope the heart failure thing is only for adults!...
I'm putting him on FloraStor. The GIs were not thrilled with adding anything but I will be doing the dosing at home, won't I?...
Yes, he had no signs prior to the C diff infection. Totally healthy, happy kid. Gaining weight well, above average (95th percentile) on height, no stomachaches, no nothing. This has come completely...
We are in day 10 of a hospital stay for newly diagnosed IBD. It all started with C Diff. Textbook bloody diarrhea that refused to respond to Flagyl. Started Vanco...symptoms worsened. He is now...