Thanks for all the positive thoughts :) I don't think my eating habits have changed although I wasn't being as careful since I was feeling better....which included some wine here and there. I thought...
Those of you who had post partum flares....we're you ever able to get out of them? Did you go on to have another baby? I'm still struggling a year later and desperately want another baby.......
Im feeling extremely discouraged today. I had my fourth Remi infusion just over a week ago and was finally starting to feel "normal". No blood, urgency or cramping in two months!!! I really thought...
Yes... All the lovely things that come with this lovely disease. This will be the last time anything is injected in my butt!!...
Thank you ladies :) It's great to hear some real life stories. I'm really hoping for another healthy baby with Remicade!!...
I was in medication free remission for 6+ years, including my pregnancy. Near the end of my pregnancy I noticed some mild symptoms and had a full blown flare about 6 weeks post partum. It was a FLARE...
Thanks Mark....the injection is supposed to go into the muscle no?? I am worried about nerve injury or leakage of the iron itself. Ugh....just hoping it will resolve in time....
We would like to start thinking of baby #2..... I have finally reached what I hope is remission from Remicade infusions every 8 weeks. I would love to hear from anyone who has had a successful...
Hi all, I'm from the UC forum but thought I'd post this here too!! I just finished a round of 8 Venofer iron injections for my low ferritin levels. The first 7 were ok but the last one went very...
Hi all, I just finished a round of 8 Venofer iron injections for my low ferritin levels. The first 7 were ok but the last one went very wrong.....I now have intense pain surrounding the injection...
I've had two UTIs.....possibly Remicade induced :(...
I don't think I've been tested for it specifically but I did have a scope back in Feb. I've also been on antibiotics twice since this flare started....would that be a factor? How is C Diff tested for?...
ByeByeUC- did you try upping the dose?...
Anyone else? I currently have no bleeding (other than my fissures!!!), very little mucous, and about 3-5 loose but formed BMs a day. My main issue is the CONSTANT cramping and pain in my abdomen. It...
I have no idea on the fish oil....might try cutting that. I have been doing gluten dairy free for about a month and have seen no indication that it's helping. I was desperate to try anything! I think...
This is very hopeful for me :) I had my third infusion on Friday and still feeling pretty bad. Only 3-5 BMs a day but extreme cramping and pain all the time. I admit I have been giving up hope after...
Canadagirl- hello from a fellow canadian! Where are you located? I am feeling very discouraged with my Remi experience. Did you keep up the double dose after your second infusion? Are you on any...
I just had my third infusion last Friday and was trying to be hopeful that I would see improvement (even if it's slow!!). By Sunday I was feeling worse than ever with increased BMs and horrible...
Hi, I feel your pain! I currently have two painful fissures, although I am also in the midst of a horrible flare. Just when I think they are healing I move the wrong way or wipe too hard and BAM...
I have my third infusion tomorrow....feeling slightly better but not even close to 100 percent. I want this to work more than anything!! I might not sleep tonight....
I really hope this becomes available in Canada soon!...
Good times!!! We have the same name as well :)...
No neither........
For the first time I my life I have been getting a lovely external anal fissure. It came about 2 months into my current flare. I got some Diltiazem gel from my GI and it went away after a couple of...
Hi all, Looking for some thoughts on this.....I am in between my second and third Remicade infusions and have recently started having extremely itchy hands and feet. My skin reddens in the itchy...
I think Remicade has helped with the blood and mucous but not the back aches or cramps. I really hope the third time is a charm!...
Thanks- I may call my Dr today and see about either upping the dose or adding another med. The lower back pain and stomach cramps are honestly my worst symptom. After 6+ months of flaring you just...
I'm in a really similar situation as you....currently waiting for my 3rd infusion but still having 2-3 BMs and really bad cramps all day. Did you see a difference when you upped the dosage?? I really...
Thanks for all the suggestions!! I have decided to start with gluten...then dairy..then SCD if nothing else helps. I find the diet part so hard to identify...especially when I always feel bad!!!...
Hi, I am desperate for remission and willing to try anything. I know drs say diet doesn't play a role but anyone out there have success when nothing else worked? I see a lot about SCD and Paleo which...
Hello all. :) I am a 32 year old female from Vancouver Canada. My UC diagnosis was back in 2006 and after a short course of Salofalk suppositories I enjoyed almost 7 years of solid remission! I gave...