I hear you. I am already taking Humira, but I guess I see the value in making sure there is not too much low-level inflammation happening in the background....
I had six inches of small intestine cut out in 2018 due to Crohn's inflammation. I had a follow up colonoscopy shortly after that. Five-ish years later am now set to get a follow-up colonoscopy...
Yeah I was a thigh-only for a long time, but I started running so much that the fat on top of my leg is basically zero and it got really difficult to find a soft place on the top, because if you're...
Hi all, Having some issues with my Humira injections. The fluid seems to stay underneath my skin...like I can push or squeeze the skin on my abdomen and feel it still there. I injected like 14 hours...
Got blood results, no call from NP to explain yet. I've been on Humira for 8 or 9 months I suppose but this is the first bloodtest I have with an inflated AST SGOT: it's 56 u/l (the normal is lower...
The latter...
I’m not having any obvious bleeding, but sometimes my gas really smells like GI bleed to me and it makes me paranoid that this about to happen all over again...anyone else get this way?...
Hi all, For about 24 hours I've had a mild to moderate burning sensation/pain confined to a very exact location just to the bottom left of my bellybutton. It doesn't seem like gas pain because it...
classic example of doctors always assuming the problem is anything but IBD...
Started Humira yesterday with the quadruple injection dose (ouch!). Now I just want to know what I should be careful about/pay attention to. The main thing I'm worried about it my immune system and...
during the q&a this morning there was some exchange that made it sound like the initial remission results were not that good but I didn't quite understand it...something like a "treatment effect" of...
Is anyone in here knowledgable about it? It's a MAP therapy drug to eliminate Crohns. The theory behind it is not accepted by mainstream medical science. The company expects preliminary results in 3...
This is a real problem for a lot of people. They don't get treated for their very real bowel problems and GI's who don't know anything just attribute their misery to psychological problems....
Stuff like this is so frustrating. This is literally the opposite of what most Crohns docs would say. No one knows what they're talking about...
Right... It's just that this is a new thing, not something I've been experiencing since surgery....
I've been pretty solid since getting a resection about 5 weeks ago, but for the last two nights I've been dealing with a problem that I'm worried won't go away. I've been developing really painful,...
Update: No more Remicade. They don't want to risk an even more effed up reaction, they said. In fact, they aren't going to give me anything for the time being and are going to asses how serious they...
It's interesting to me how much variation there is among medical professionals about treatment choice. My GI, a crohn's specialist (so they say), is very much in the "Remicade first" camp. I...
I was wondering if this forum has ever had a long, serious thread on marijuana. If not, I'd be interested in hearing from more. I live in a state that has medical marijuana from crohns so I've...
Yeah I'll see what they think about doing another round with the steroids. I happen to have a very anti-steroids gi--he opted for resection for my bleeding bowel instead of steroids first because he...
1)I'm in remission since the diseased part of my bowel was removed. 2) I was pre-med'ed with Benadryl and Tylenol for both doses. 3) I'm going to request Humira--saw some studies showing infliximab...
Welp, I'm waiting on a call back from my GI that I'm assuming will say "No more Remicade for you." Went to my second dosage, which was a bit delayed (3 weeks after first instead of 2 weeks). When I...
Just had first resection 3 weeks ago. It's an incredibly routine surgery for colorectal surgeons at this point, so don't be scared of the procedure itself. That said, the recovery could be very...
Any other tips are greatly appreciated....
Is unbearable. I'm 5 days from resection surgery now and this by far the worse than all the GI symptoms and other pain. It's not supposed to last this long and apparently there is nothing you can do...
yeah the plan is to fend of relapse with drugs, 100%...
The reason for the resection now is the bleeding wont stop and hemoglobin went down to 5.4. The plan of course is to continue with medicines post-op....
Both GI and colorectal are on board....
I have a slow bleed from an ulcer that won't heal further up the ileum than the scope can see, and due to depth of ulcers, they don't want to give me Prednisone. Five days of pentasa and remicade...
Everyone on here keeps saying pentasa is worthless for crohns--so why do so many doctors give it out? What am I missing?...
yes, especially when i bend over...
is this anemia from blood loss typically? i've been worthless today, unable to move around much and getting up and bending down have made my head miserable. also difficult to focus my eyes....
Flash forward to 2018 and I have been diagnosed with Crohns with bleeding in the ileum. Just started Remicade and Pentasa after a week in the hospital and there is blood in the stool. Just gave blood...
I incredibly managed to get my doctor on the phone who told me not to go to the ER yet because... it wasn't full blown diarrhea on the level it was when I went to the hospital more than a week ago/or...
thanks to all, i am waiting it out. please disregard meds in signature, I thought I deleted....they are from a bout of illness abroad 4 years ago that was diagnosed as UC and then overturned when I...
Yeah it's much less than what was in hospital--which was like loose stools consisting of mostly blood and lots of thick blood on the paper. However that cleared up almost entirely while I was there...
He basically told me while I was in the hospital not call him over blood and to make the judgement call on my own......
Hi all, I was discharged Friday with a Crohn's diagnosis and I'm having dark stool with some red-wine color on the toilet paper. My doctor was vague about how much bleeding necessitated a return to...
FOLLLOW UP: I had my endoscopy which found: Some non-bleeding ulcers in my stomach A Hiatal Hernia And inflammation in the small intestine Doc says after biopsy to stay off Lialda and take Omeprazole...
OK I was not at all familiar with this concept of non-reoccuring colonic ulceration of any kind. at time of diagnosis there was only inflammation in the rectum and sigmoid colon, but they could not...
the main goal is to see what happens when I take 1 lialda...i suppose......
Hello All, I was diagnosed with UC (rectal and sigmoid) in December in Europe. It was described as moderately active and colonoscopy and biopsy were done which revealed typical ulcerations. I had a...
I don't want to say which country I'm in, but just think Financial Crisis Europe....
any other experiences people have would be helpful...
Yeah but in our case...maybe our gas is not such an indication of health......
um...gonna need you elaborate......
Im currently living in a country where even private medical service is crap and handled in a cheap-o, in and out manner. Wont know a damn thing for 10 days. No doctor spoke to me. I asked a nurse how...
My first colonoscopy came 6 days into a hospital visit in which i had only recieved intravenous nourishment and one clear broth per day. Somehow, they couldnt see further than the "hepatic angle"...
I have to take a laxative at 8 am for a colonoscopy that's at 5:30 pm. Should I just wait till it's over to take my daily Lialda or go ahead and do it in the morning before or with the laxative?...
I have to down my first Citrafleet packet tonight for scope prep. I'm worried because when I was given it in the hospital during a flare, citrafleet caused some of the most intense pain I have ever...