Hey Solomon, I hope you're doing alright? Any updates since your last scope?...
Right after surgery (the first week or so I'd say) you can expect blood. I'm 2 weeks out and my daily discharge is more mucusy-brown now. If you're having blood for longer, I'd ask your Dr if you can...
I'm so sorry to hear about your discomfort. My situation - just had a second surgery, temporary loop ileostomy creation recently - but for the last few days I have also curiously been woken up by...
Thanks a bunch ByeByeUC - I'm guessing all these problems resolved when you had your reversal? Others with similar experiences please feel free to add too - I wish you all with the loop the best....
Hey all, I just had my step 2 jpouch creation/loop ileostomy surgery a little under 2 weeks ago. I was great the first week, but then ended up having a partial obstruction. It cleared after a few...
I just had my step 2 about 13 days ago. In the hospital, the days following my surgery when I could sit on the toilet I discharged a lot of dark and bright red liquid blood. In the days at home...
Thank you! I'm sorry to hear that you're having some rectal troubles now. I hope that if you have surgery soon to fix it, that you'll no longer have to worry about any parts getting inflamed again!...
Thanks so much for the reply, SuperBlanks! That makes sense. I was burping quite a bit now that I remember one of those days. I was just concerned since surgery #2 is approaching, and I had two...
Hello all, My signature isn't budging despite me changing it, but I had end ileostomy surgery for UC about 3 months ago, part 1 of 3 for the j-pouch. Pathology came back suggestive of UC. I have been...
Hey HealthFreak, I see that it's been a while since you last posted - I hope you are doing better now. Others have answered, but from speaking with my surgeon, they of course would love for you to be...
I've been having the same concern since I got my ileostomy a few months ago! I'm male, but I've found that using something with a small head like a bikini trimmer gives you precision and control in...
Hello all, For those of you whom have found success with Humira or Cimzia for your UC (either off the bat or transitioning from Remicade, etc.), how long would you say it took for you to have a good...
Congratulations and wishing you and others for whom Remi has worked many more happy years of remission!...
Hello all, Thank you so much for your thoughtful advice and encouragement. I have been in the hospital since Saturday (today is Day 6) and have been on IV steroids, which seem to have made me about...
Thank you for all of your responses to my prior questions. To recap, I have been on Remi for a little over a year and was in complete remission. The prior infusion cycle, I began experiencing...
Hello Katmom, Sorry for creating a whole post to ask you this! I am currently doing not so great on my treatment and my UC seems to be putting up a fight! I read some of your posts about your...
Thank you for your updates and hoping things keep on going uphill!...
Wishing you all the best blksteeda! I also found this point about bridge therapy to be interesting and was wondering if it would be too late to start an immunomodulator at the onset of Entyvio...
Ah, sorry to hear you did indeed end up in the hospital! I'm seeing lots of tips from others and I hope all of these will help somehow. I'm guessing the doctors are coming in and assessing your...
Thank you for the response iPoop! The antibody test is something we are exploring. It does indeed look like I'll have to wait until my right before my next Remi infusion, now at 6 weeks, before we...
Hey all, I've been enjoying a great remission on Remicade since August 2013, shortly after my initial UC diagnosis. Standard dosage every 8 weeks has kept me in check. This past cycle, I noticed pain...
Personally, I have been on Zyrtec well before my UC diagnosis (due to an autoimmune type of allergy, which I developed several years before UC), and have maintained it through my first flare and...
It's really strange how I keep on hearing about others who also were healthy eaters/were health nuts prior to UC diagnosis. As a fellow nutrition fanatic it was crushing for me having to eat white...
Hey, just wanted to chime in and say hope you're feeling better, and that I'm kind of in a similar boat with being frustrated at not knowing how long the biologics can give you in terms of years of...
Hey garette, sorry to hear about your situation and hope you are on the road to improvement. I actually have a really similar timeline! I (luckily) had my first/major flare shortly after graduation...
Sorry for the attractive subject title, but I also had one more question for you guys! Has anyone gotten internal hemorrhoids from bowel prep? And do they go away on their own? I have never dealt...
Hey all, I just had a scope the other day after being in "clinical remission" (mostly formed/sometimes soft stools, usually 1x a day) on Remicade for several months. I have had over 5-6 infusions,...
Hey Cindershadow, sorry to hear about that :(. Your doctor may discuss other medication options with you. Could you describe your symptoms more - I'm assuming when you mean "sick", you are referring...
Hey komics, sorry to hear about that. I was on asacol and tolerated it fine (now on Lialda), but had heard that some people may be allergic or have a bad reaction to the mesalamines and have an...
Hey sweety5, welcome! My family is from a similar background and I also have no history of the disease in my family, with a previously great gut too! It was so random! I am sorry to hear you were...
Lots of great advice has already been given here, but just wanted to add some support! I was diagnosed when I was 21 about a year ago and have been doing fine on maintenance medication too!...
Just wanted to reiterate some of the aforementioned suggestions! Your doctor should probably start tapering you off of prednisone, especially at somewhat of a high dose; this may take a little while....
Hey blonde0724, hope you're doing ok! Sorry for another long post... I need to learn to summarize lol. But just wanted to chime in and wish you the best in your decision! In regards to your Remicade...
Hey phil9, I hope you're doing better or at least staying afloat! That's interesting you mention that; my first flare happened completely out of the blue when I was very stressed for a period of time...
Hey phil9! Sorry to hear about your flare and achilles troubles! All the best to you. I got out of my first major flare last year and returning to sports/activity was a big breath of fresh air for me...
Aw of course, I can totally relate! I really wish when I was first diagnosed I had reached out more to others. It was an incredibly trying time, as it affected me in a very painful and personal way...
Canada Mark - Wow, thanks for those articles links! What an interesting topic. I have a lot of reading to add to my current lists thanks to this forum! Marauder 93 - Thanks, I'd really appreciate it!...
Hey Gina! Like others above, I'm so sorry to hear about your story but also wanted to chime in and send some positive energy and all the hope that you get well soon! I am really happy to hear that...
All the best Reluctant2Be! I hope the symptoms stay away! artvark - Sure, I should have clarified! I actually was still seeing the pediatrician then and had not switched to an adult doctor :p. After...
This is very interesting. Are there any major studies on the effect of IBD on healthy levels of neurotransmitters in the body? As a random aside, Marauder93 I actually am really interested in IBD...
Hi everyone! Same with me Contentprof, I read this forum when I was very ill and it helped me begin this line of therapy when I was very scared but other options had failed! Got my life back too; on...
Hello, I am so sorry to hear about your son and what you've been going through. I'm not a parent but my parents went through a very similar thing when I was in the hospital for my first severe UC...
In reading about UC its apparent that everybody reacts differently, but I just wanted to echo some of the above statements. I just had my third infusion as well and so far haven't had any infusion...
Hey all, I'm a 21 year old male, new college grad, recently diagnosed with pancolitis. I spent a lot of this summer in the hospital and had the scare of my life. I was severe, steroid refractory, and...