Thanks for the replies! I used to get really upset having to stay home when dealing with flares...at the very least now I tend to enjoy some time to just stay home and relax....
It's been a little while since I've posted on here, and I'm sure there are other posts about this, but I always appreciate the moral support from others on the forum. I'm wondering if it's possible,...
I haven't been able to find dandy blend, but whole foods sells chicory root 'coffee' called teachino that is just like coffee (but no caffeine)....
Hope things improve soon. At the end of the day just try to believe that everything will get worked out eventually, because it will. I was actually in a fairly similar situation when I was first...
Hi sephora, maybe you should try uceris? I believe you can add it to your current regime without switching anything around. For food, it definitely makes a difference. You don't have to eat only one...
It sounds like it could be the start of a flare. I've had issues with stress trigger symptoms too. If I were you I'd go on a diet of 'safe' foods and force myself to relax 1 hour before bed. In the...
Hi Dro, I have been vegetarian for most of my life and I do think it's possible to be vegan and eat things you like with UC. I also know someone who controls her UC without meds, but she has a very...
Hi SurferChick, sorry to hear you are having such a hard time right now. I was flaring for about 6-8 months (it's still hard for me to tell when exactly I'm having one) with symptoms very similar to...
Hmm, those are some good options to consider. The only other thing I can think of is to try again taking Lialda 2x/day now. I have about 3 weeks of pills left before starting Asacol. That would...
That is my worry Gary. That was a few months ago when I was still in a flare. I feel completely normal now (for the first time in a long time) so I hope my body is better able to handle the switch....
@AZYooper - My insurance has actually been more helpful than the exchange so far. I logged on to see what was going on and it wouldn't let me access anything useful, including what my income is...
Thanks everyone for the replies. I am still on Lialda for a few more weeks, but was thinking to discuss with my doctor using Rowasa while I switch. I'll see if she has any other suggestions as well....
I actually just called my insurance and found out my premium is going up 200% and my deductible is going up 800% on Obamacare. And my subsidy was cut by 50%. I have had nothing but my problems with...
Hi everyone, Earlier this year I was flaring and having a lot of UC issues and feeling horrible. My doctor wanted me to take Simponi, but I didn't feel ready to give up on Lialda. After some time,...
Unfortunately I don't think you can get coverage so fast, not in NY at least. My debacle happened where I tried switching insurance on the 16th of the month and they canceled my old insurance and...
I had a similar problem with Obamacare recently, where it was impossible for me to have coverage for one month. I would say to visit your doctor ASAP if possible and explain the situation and get...
I've had thyroid issues too...but hyper, not hypo. And it seems to come and go and doctor's never understood why. I'm guess it's somehow because of UC... I also once had a weird/very scary bout of...
Hi all, I am very happy to say that I've been doing well for a few months now and am finished with Uceris with no problems! (fingers crossed) Stress and anxiety have always been a big issue for me in...
I agree with Thoreau about gallbladder. When I was in the process of getting diagnosed with UC, I had an ultrasound and found that I have 2 gallstones, which is apparently not common for young women....
I get bouts of fatigue too. It's happened to me years before I ever had any sort of UC symptoms or diagnosis. I'd get so tired that I would have to leave work, and I feel my boss always thought I was...
What seemed to help me is going on a mostly liquid diet for a week or two, then slowly adding foods back in. I have never been a fan of the white bread/potato/rice diet for feeling better. My logic...
I have definitely noticed a relation to stress and flares in my case. The flares I have experienced (including when I was getting diagnosed) all seemed to have revolved around very stressful...
Funny, I've had more problems with red wine and beer than with white wine. I am a bit too scared to even try a cocktail or hard alcohol. Just curious, how much did you all tend to drink before...
One more thing, have you asked your doctor about Colazal? It's the same class of drugs (5-ASA) as the ones you were on, but it's balsalazide disodium and not mesalamine. I don't know too much about...
Hmm, I think I've liked just about every juice variation I've tried. However, I do avoid ones that have garlic, ginger or lemon as I think they can be a bit harsh (in taste and internally). I drink...
Coffee! I miss it so much. Even when I'm not in a flare I don't seem to tolerate it so well anymore :( It's the acidity, caffeine is fine for me. I did cheat and have a frappachino the other day, but...
Hi Rob, I've had some luck during bad flares of going on a juice diet. A friend only drank juice for a month and has been in remission with no meds for about 3 years. I did not go that extreme, but...
I agree with Tidbits. I've heard a lot about avoiding, gluten, dairy, meat, etc. but it seems like everyone is different. One of the few things I can eat without trouble during a flare is middle...
Hang in there! I'm learning just how big an impact stress can have on triggering a flare for me. I'd say do your best to rest and relax every evening! Good luck with everything....
Well, I wound up stopping the hydrocordisone and after a few days I am back to normal. It's unfortunate though since it was very effective!...
I've been doing my best to rest, and I am usually at a computer all day, just not this week sadly. The hydrocortisone seemed to be working very well. I'm also on Uceris, week 9 (my doctor extended me...
Hi all, I've been doing hydrocordisone enemas for a week and a half and in the last few days I've noticed that my feet/ankles/calves have been really swollen. I looked it up and it says this is a...
Well, I've only just started them yesterday! We shall see!...
Precious precious coffee! How I miss it. I have been sometimes having a product called Teacchino as a substitute. It is made from carob and a few other things. It's caffeine free and much easier on...
Thanks for all of these ideas everyone! I'm feeling more confident that I can get into remission without biologics now. I'll probably have to bite the bullet and start them someday, but I am hoping...
Insofla, I've never even heard of it, what is it?...
Maybe my doctor is reading the forum. Over the weekend my symptoms started acting up again (think it was due to menstrual cycle), so I thought for sure when I met with her today she'd be all about...
Sorry to hear you are having so much trouble. I can definitely relate, especially the thought of the world passing by. But, as I am still learning myself, it will get better. And when you are feeling...
Thanks again for all the feedback from everyone here. Talking to people who understand what having UC is like helps so much! The good news is that yesterday my doctor called to check in and she's...
I've only had 2 scopes, and was put under for both. But, I think I tend to develop immunity to anesthesia and things like that quickly, because I woke up halfway through last time! I remember hearing...
Well I find it very encouraging the variety of things people seem to do despite us all having to deal with flares and all the other things that come along with UC! However I must say having UC has...
@Old Hat Thanks for all this info - very helpful. I will talk to my doc about the hydrocortisone, I have another appointment next week. I believe she does do some research, but she's never mentioned...
Sounds like a lot of people work from home! I work part time for a small architecture office, and the rest I work from home on my own projects. I used to work full time in an office and I couldn't...
I've never heard of ex2go, what kind of prep is it? I've only used Suprep and I find it hard not to gag from it! The first time I took it, after a few hours I had to run to the bathroom mid-sentence!...
Poppie, being an artist sounds great! I loved architecture school, but reality has me doing more paperwork and going to meetings than doing anything creative. I dream of quitting and becoming an...
Princess, I definitely avoid artificial sweeteners and MSG. Except for the junk I ate as a kid, I've always been a really healthy eater, and a vegetarian most of my life. I like for everything I eat...
To be honest I can't remember ever having an issue with bathrooms in NYC. It's true that there aren't many public ones, and restaurants might only have 1 or 2. Places like Starbucks, McDonalds, etc....
I am new to the forum, but liking it here already. One thing I was curious about, is where everyone here lives and does, and how that might affect living with UC. I live in Brooklyn and work as an...
Thanks for all of the ideas. I just filled a prescription for Rowasa, but I'll talk to my doctor about Canasa when I see her again in a week or so. I have a feeling at some point I will wind up on...
Thanks, all. It's nice to hear from people who understand. In the beginning I was on Rowasa continually, until I had successfully tapered down to 2.4g of Lialda. Then I tapered off the Rowasa. I met...