Welcome beatlegirl,I am curious to know why you've having surgery if the Remicade is working? I understand the suffering and being unable to function. I fought having surgery for quite a while. I was...
Your story sounds a lot like mine. I was very ill for several years, functioned as best as I could. I failed every treatment that I tried (Lialda, 6mp, Mercaptopurine, Remicade, Imuran, Cimzia, etc)....
Thank you, both! This is great news! I'm very excited for this treatment - was told I have a 94% cure rate (which is amazing)! I always said I would never do the Interferon treatment again. It was so...
CONGRATS!! I know it's beyond exciting. It will be a slow recovery but certainly worth it!! Best wishes to you!...
Has the rash gone away? I wouldn't worry about it - just keep an eye on it. I didn't have a reaction until my 5th or 6th Remicade infusion. The first reaction I had anaphylaxis. My doctor didn't...
Has your disease been under control at all while on Imuran and Prednisone? I think it should be under control before coming off Prednisone. Imuran was the ONLY medication that somewhat helped me...
I tried every diet under the sun - Specific Carbohydrate Diet, the Maker's Diet, as well as diets suggested by my nutritionist. While some foods made me feel better (my head didn't feel as cloudy and...
Hello, I haven't posted in a while but had a question about the Sovaldi and Ribavirin treatment. I have done a few interferon treatments in the past. One put me into remission (Regular Interferon and...
Sorry to hear this ppm guy! Are you on an antidepressant? Is there anything they can do for the bloatiness?...
My most recent liver biopsy was when I had my gall bladder removed, June 2008. The doctor said I was at the beginning of "Stage 2" liver disease. My GI doctor said that what may look like "Stage 2"...
The thing that scares me about the anal irritation is that I've had colorectal surgery. I have 10 bm's daily (on average) and they are not firm at all. So to live in misery daily does not sound like...
Thank you hepmom and Connie! Carol, I'm so sorry to hear about Mike. I hope he continues to do well as he continues recovering. I completely understand his desire to not rush into another treatment....
I'll do more research on the treatment. I'm sorry you've having a rough time! I hope you have a complete turn around soon. I'll be praying for you....
Thank you Marianne! I appreciate your encouragement! It's good to hear that you're doing so well. That gives me hope! All the best to you as you continue to enjoy life UC-free! :)...
hep93, Thank you for your reply. I pray that you recover quickly from your transplant! I'm a big fan of Mayo in Jax. I saw a GI doctor there for a second opinion regarding my bowel disease. I wish my...
I'm impressed with how well everyone has done with their surgeries!! I had the ileostomy reversal July 28, 2011 and came out of the hospital going to the bathroom 40x daily. I had accidents...
Since my reversal surgery, I have had a series of other complications. I will never have "normal" output. But as long as it's under 10x daily, I'm happy. (It's all relative!) Exercise increases my...
I battled UC for nearly four years. I thought some people who have ileostomies would check this forum to offer advice for others - I know I have. I didn't realize there was an ostomy forum. I will go...
I contacted Hep C as a baby. I was premature and required a blood transfusion. In 1985, they just knew "non-A, non-B hepatitis." So I've been on and off Interferon since seventh grade. Although I'm...
I had an emergency total colectomy 10/10/10. I had the J-pouch surgery in May of 2011 and the ileostomy reversal July of 2011. I didn't have surgery because I was told I had Crohns. Surgery is not a...
I've heard marshmellows work, which seems a little surprising to me because of the sugar. I'll try it though! Thanks!...
THANK YOU everyone for your suggestions and encouragement! I truly truly appreciate it!!...
Thank you for your help and encouragement!! I saw my doctor yesterday and he was happy with my progress. I was surprised. haha. He promised things will slow down as well. I'm going to start...
Thank you both for your insight! I'm optimistic that it'll slow down eventually. I've heard to avoid sugary things, but in attempt to stay hydrated I've had to keep the Gatorade going. And since I'm...
Hey everyone! I had my Ileostomy reversal 2.5 weeks ago. I have incredibly high output. I was going to the bathroom around 40x daily, but am now down to about 20x. I still can't be too far from a...
Good luck to Rachel!! I will be thinking about you both during her procedure. I just had my take-down on July 28 so I'm not too far along in the recovery process, but can tell you what I've...
Hey! Congrats on your reversal surgery! I also had my J-pouch surgery on May 3!! I had emergency surgery last October, so I went through the 3 steps as well. I had my reversal last week. Just got...
I took allergy shots when I was younger. I recently was retested and showed little/no allergies to the most common things people are allergic to. I just had my fifth infusion of Remicade. I did...
I was diagnosed with Crohn's one year ago. I've been on and off (mostly on) Prednisone for most of the year. I am on Lialda pills and have had five Remi infusions. This past infusion (one month ago)...