I had my follow up to review my labs. Thyroid is fine. Stupid Prednisone. Only thing he was concerned about was my cholesterol. My LDL was high. But my HDL was also high. I told him when I'm feeling...
Tunnel, I guess it's a little of both. My son, who quit smoking right after I did, said "Mom, don't start again. What's the lesser of two evils? Cancer or pooping a lot?" I had to get down and dirty...
Are there any others that believe they started to flare after quitting smoking? I quit July 29 and my current flare started the end of September. I'm vaping 18mg juice but it's not doing anything for...
Hellmanns mayo is GF. SOYBEAN OIL, WATER, WHOLE EGGS AND EGG YOLKS, VINEGAR, SALT, SUGAR, LEMON JUICE, CALCIUM DISODIUM EDTA (USED TO PROTECT QUALITY), NATURAL FLAVORS. GLUTEN-FREE....
Yes, we are at 5mg/kg. I'm going to call tomorrow about having the lab work done. I'm trying to be patient and positive that Remicade WILL be the answer....
I'm so sorry. I think the painful cramps was the worst symptom for me. Shaking, sweats and doubled over in pain. I hope you get some relief soon!...
Yes, I checked with my pharmacist afterwards. He agreed that the daily dose is 9mg. I think what Guardian what talking about is after taking high doses or long term Prednisone it can cause lazy...
I actually think it was lost in translation. He is on another bloody vacation and the nurse had to call him to get instructions for the latest treatment plan. I really need a new dr....
I think what bothers me most is the insurance claim manager and my co-workers and boss not really understanding what is going on. It's honest ignorance. I'm not blaming them, but all they have to do...
Thanks. That's what I thought. I'm only taking 1. Geesh. What is this guy trying to do to me?...
Just returned from the GI. He's stopping the Prednisone. I was down to 5mg anyway. Starting back on the Uceris. He said 3 tabs all at once, once a day. Really? I'm not sure about that. He also wants...
Boy do I miss those days! I'm not sure why my dr went right to Remicade. He did say that the immunosuppressive drugs take a while to start working and we didn't have time for that. Well, I'm 6 weeks...
I've been in this current flare for 2 months with the cramping only for the past week or so. I've started to have semi-solid BMs and only have the cramping when I'm passing them. I'm thinking that...
Thanks kiptyn. Eating, as we know, always promotes bowel motion. Morning and evening seems to be the worst. This morning I woke with a terrible migraine. No sure if it's the prednisone taper or...
I'm scheduled to return to work tomorrow after being out with this flare for 2 months. I've had 2 Remicade infusions and am still waiting for it to kick in. I know it can take a while and maybe not...
Congrats! Great to hear. I'm only two loading doses in and really haven't seen any improvement yet. Do you remember when you really started seeing some results? I'm trying to be patient and know it...
I saw my GP last week for what I thought was side effects of Prednisone, he had me go for bloodwork thinking it might be thyroid. I'm waiting on results. I'll update the board when I get them. I have...
And you had labs and colonoscopy to prove remission? Or do you mean asymptomatic?...
I had a physical today and we talked about what's been going on with my flare and new symptoms. What I thought was prednisone side effects and anxiety might be my thyroid. Fasting bloodwork tomorrow...
Nice to hear a success story for long term Remicade. I'm a Remi newbie and this gives me hope. Thank you and glad you are doing well :)...
Maybe the enteric coating? Maybe colon absorbtion is lower with Asacol so the dosage needs to be higher? I'm just guessing.....
Happychick- the skin across my knuckles on my hands is cracked and so sore. I just told my daughter that my hands look 80 years old. soy- i straightened those out ;) some days I think he needs the...
4 Apriso twice a day? Isn't the max dose 1.5g, which is 4 total per day?...
nssg- Yes! 40mg and I was fine. I thought I was having some weird delayed reaction to my first Remicade infusion but I bet it was the taper. I also am extremely irritable. I'm snapping at everyone...
zen, I also started this most recent flare after quitting smoking. Started vaping, hoping it would curb the flare. Like you, it hasn't done a thing for my symptoms. I even tried smoking a few...
I've been on Prednisone for almost 2 months with no relief, even with Canasa, Cortifoam and Apriso. We stopped the Apriso after starting Remicade 2 weeks ago. I have my next infusion this Thursday....
Hi Mauxley, I found it very easy to insert Canasa while sitting in the toilet, my last trip before bed. If you have inflammation it might be a little uncomfortable at first but as it starts to work...
1. No idea. And why are the bigger pills often less potent? Well in my case, bigger pills are just anti-inflammatory, vitamins.. Where the tiny pills that I can swallow are the evil prednisone. Are...
Captain Slow- Remicade infusions DO NOT take 8 hours. 2 hours, 3 max. Teddy- sorry the Remi doesn't seem to be working anymore. I'm curious, did your symptoms return after starting Uceris?...
I did premedicate with Benedryl and Tylenol. Left a message with the nurse. My GI is on vacation AGAIN. This guy is never in the office. I'm going to take some Benedryl and see if that helps. The...
I had my first infusion on Friday. Over the weekend, my face seemed to get more swollen than the normal prednisone moon face. I've been on 40mg of prednisone for almost 2 months. I can feel how tight...
Good luck on the Entyvio! I hope it helps you quickly. How long where you on Remicade for and how often were you getting it?...
Thanks for letting me know....
No, from start to finish it was only 3 hours. And it should get a little shorter, as the first few times they infuse very slowly to ensure there is no reaction....
After searching posts for options on vitamins and minerals, I was wondering if you are still using the Active Health brand liquids? If so, do you add it to something or just take by the spoonful?...
Thanks pb4!...
I was a little anxious at my appointment, but the infusion was uneventful. Pre- medicated with Tylenol and Benedryl. Vitals stayed consistent and normal. I "talked" to the Remicade as my nurse mixed...
I work in a pretty stressful, sales position and I've been there almost 12 years. Luckily, I have great benefits that allows me to take STD after using a certain amount of vacation days. I'm also...
I'm taking it now along with my other meds and it doesn't seem to be helping. I'm adding Cortifoam tomorrow....
RockerGirl-Yes, we talked about immunosuppressants and the length of time for them to start to work. I did get a little aggravated when he said "difficult spot" and told him exactly what you said,...
I had a follow up visit today after my colonoscopy last Wednesday. I'm still on 40mg prednisone, Apriso and Canasa with no changes at all. The Dr went right to Remicade, saying that all my...
Well, I was going all night. Up until about a hour before scope. Guess I was clean enough. They got some good pics. Unfortunately, I have progression to the transverse. I have a follow up appt next...
I drank it about 4 hours ago. Chased it with about 16oz of Gatorade and have had 3 bottles of water, 2 cups of chicken broth and a cup of tea. There's some bowel sounds and a little cramping going...
Prepped today, clear liquids all day followed by mag citrate and more fluids. I have a lot going in and I'm peeing like crazy but only a little grumbly in the belly and no "running clear". I did have...
The inside of my cheeks and lips are torn to crap. I've always been a mild chewer but right now it's terrible. I have to stop whatever I'm doing and control the urge and sort of breath through it....
Lol @ soy! Flair is a noun, having talent for something. Flare is also a noun, widening, growing, "flaring up". I'm sure we all have a little talent in how we approach our disease ;) but I use flare...
Massachusetts has approved for CD and "and other conditions as determined in writing by a qualifying patient’s physician".... Not sure if UC is under that. I'm not a user and it causes me more...
Delta, I called my bestie (who's a pharmacist) and he did some research for me. The generic emema cash price is $176 for a 7 day kit. They also have a 28 day kit. Perhaps Rite Aid gave you the 7 day...
I was wondering why my co-pay went up significantly. It's too bad that it's all about the almighty dollar with these companies....
My co-workers mentioned that my last flare was around this time of year, three years ago....