I've ended up getting VSL#3, my doctor was able to prescribe it for me and due to income support I didn't need to pay for it. I was wondering when's the best time to take a probiotic? Morning on an...
Did that help out with the problem I have?...
So, I have crohn's-colitis, I've currently stopped flaring up, identified food intolorences to lower my bowel movements to 3/4 (of course there are days where it goes higher) but I'm struggling to...
@iPoop The allopurinol is actually used to increase the potency of Aza. Hence why I'm on 25/50mg. But it is very sporadic indeed. There is no consistency for when it shows up. I think the last time I...
Every so often, I get black/dark brown urine that leaves a purple looking mark on my toilet after use. My theory is that my azathioprine/allopurinol is the main cause of this. In fact I forgot to...
How comes? Did it cause you issues? ...
I responded really well to it for the first 5 infusions. I'm about to go on my 7th or 8th now. Well my Gastro plan to change up my treatment as I'm not progressing fast enough (but my blood cultures...
Yeah I already know I have IBS, I'm currently seen a dietitian. I near enough know what my main triggers are (fructose, lactose, high fiber/high fatty foods, spice, onions and garlic). I'm trying out...
I'm not sure if anybody is aware of this, but they're researching into a cure for Crohns. http://crohnsmapvaccine.com/ I wasn't that convinced until I saw my hospital (Kings College London -...
Oh I forgot to include I'm on remicade. I go to the hospital every 8 weeks for an infusion but this could be bumped up to every 6 weeks. What's 'humira' and 'simponi'? ...
My first major flare up started August 2014, I started to get on the mend from around March 2015. Right now, I rarely see any blood, infact besides the past week where its popped up a little on the...
Haha yeah my legs go dead and numb after a while but I prefer that to an hour plus of stomach cramps. I found it really uncomfortable to use at first but it's worth it no?...
I'm going toilet 5 - 7 times but my fecal count from my blood results keep improving, which is great, so I'm going towards remission. So this makes me think IBS is the reason for my toilet habits....
I know many of you will laugh at this suggestion but if you're having cramp issues after you go toilet, consider buying a 'Squat Potty'. I'm not sure if I'm allowed to post links but it's available...
Well thats with suppositories as well. Is it the liquidness that makes it harder then?...
Yeah true but it just seemed a bit of a coincidence is all...
I missed VSL#3 for 1 day and I immediately had bloating problems the next day. Is this normal? Taking into account I've only been on it for like 2 weeks now...
Yeah that's how I felt about my suppositories too. I used em properly a month ago and they helped so much because my inflammation starts from my rectum but just painful at times to use. But I think...
Ah right, I thought suppositories would be harder. That's annoying. I'll bring this up with my Gastroenterologist, thanks....
I was wondering if anybody has tried both a suppository and an enema, and which they found more comfortable/effective?...
Glad to hear it's working for you guys too :D Did you find the impact of it increased the longer you continued taking it?...
My son, with UC, started with 2 VSL3 pills per day, which is about 1/4 the strength of the VSL# DS he takes now. He has been on the DS packets daily now for about 9 months and feels great. He does...
Agreed, you've all spoken sense to me. Im going to start with 1/4 when I get it and increase it by another 1/4 the next day and see what happens. Yep definitely. It may not work for me but I bought...
Hmm you make a good point, I'll go with Garys and your plan then, thanks! Yeah I agree with that, that's why I tried Probio 7 but because I've heard a lot of good things about VSL and Im having...
Well it's not creating any problems, I just feel it's helped a bit slow or rather, I don't know how it's supposed to be helping. I'm still getting bloated at night, which I know probiotics supposedly...
So I've basically caved to reading all these great reviews about VSL#3. I'm currently using Probio 7, which has 10 billion bacteria compared to VSL#3's massive 450. I have a few questions before it...
Have you tried not using 'Higher Nature Aloe Vera Juice' btw? I used Aloe Vera tablets for like 2 or 3 days and I found it made me go toilet a lot more? Also I think I remember you asking me on one...
I think my problem was how I've been taking it. Putting it on the tongue and downing it with water is the best way. You don't even taste it. I don't think I'll buy PS powder just yet, I'll see how...
My first update First day: - 5 bowel movements - Solid stool returned (only 2nd and 3rd bm) - Nothing else has changed Second day: - 3 bowel movements - No change (same state before taking QD) Third...
I was about to say that after taking it a second time today, it doesn't really mix by stirring so I'm just gonna buy some empty capsules and stick em in there. i've seen so many people take P-seed,...
Sure no problem: State of health: - bowel movements on a good day = 3 - bowel movements on a bad day = 5 - past couple days there's been blood in majority of my stool, before that it appeared 1 or 2...
So my Qing Dai came like an hour ago and I've just taken it using Kevin's method. Didn't taste too bad tbh..just hoping I've done it right. I'll report every day/whenever there's a change on this...
@ipoop I'm on pentasa sachets (2g morning and night) and pentasa suppositories (1g). I've been on aza(25mg)/allpurinol(100mg) for 16 weeks but I've recently been getting bad reactions and will be...
Excellent. Would you say about 2 fingers of hot water is good enough then fill up the rest of a 300ml glass with cold water? Sorry, I just wanna make sure I get it down right...
I've dropped quite a significant amount of weight since August with my flare up. I started gaining weight again at one point but now I'm really struggling. When it comes to eating, I'm definitely...
I'm not too sure but I ordered a large amount off ebay for £15. The stuff I found else where is much more expensive and less is given....
I've read in some posts they put the QD into capsules, some mix it with water and some put it on their tongue and drink water. Ideally, I'd like to just buy empty capsules but theres so many...
Are you on allopurinol too? I was trying to find someone on here who is currently on it along with aza. You must, like me, not able to metabolize it properly by itself. How long have you been on the...
I went into hospital for a few days when my symptoms got really bad and they gave me a plan of when to take my medicine. Yep, I think it's because I've had 2, 2 month courses of pred. Almost side by...
Yeah I didn't want to increase my dosage anyway. No I've had blood work done once a month since October, but I don't think my doctor has asked to see them next month or month after. I'll be sure to...
I'm definitely sure my improvement isn't due to the pred as I'm doing only a 2 week course of pred (1 week of 30, tomorrow I'll taper it to 10 then 5 on Sunday) and my bowel movements have been...
I'm on 25mg of Aza (night time) and my other meds are: Pentasa (2g morning/2g night) Allopurinol (100mg morning) Pred (15g - tapering down - morning) Omeprazole (20mg - morning) Wouldn't increasing...
I seem to be feeling fine during the day, obviously morning being a little rocky but I only have about 3 bowel movements till I take my azathioprine in the evening during my dinner. I get bloated,...
Thanks for the tips! They worked like a charm. The shortest time I've kept it in has been 6/7 hours and longest 21 :D...
How long roughly over time? I've used 6 so far..the past 2/3 days I've not even made half an hour. But before that I managed 5 hours and before that, 1 hour. There isn't any consistency in how long...
How long do you need to keep a pentasa suppository in? My prescription says to do it at night, obviously meaning to make sure it stays in whilst you sleep. But, after using the suppositories for the...
Have you tried drinking tea without milk? I usually go toilet when I have milk with my tea (I use unsweetened almond milk as I can't tolerate normal milk whilst on Azathioprine - well that's a guess...
Haha oh right, feel a bit silly now. Are you ordering the one I posted? Just want to ensure I order the correct stuff....
Yep I'll defo take that on board. I'll be monitoring myself as I reduce to see the effects. If it worsens I'll just put it back to how it was. Thanks G....
Yep I saw his posts. What are King Die? I've not come across this...