WorriedUCer My son, while flaring did worse (seemingly) on the enemas. Once things cleared up, they seem to be keeping him in remission?? Hope....
My son uses them every 3 nights. Important "tricks" as someone said. Be sure to shake it well. Squeeze out all the air in the enema before using....
They are saying to reuse the enema? My sons are disposable. No reusing. I think it't trial and error (sadly) what works. My 26 yr old son uses 4 mg every 3 days in remission....
My son with Autism( 26) uses enemas every 3 nights. I wait till he is seconds from going to sleep. Yes, he does push out gas and or go the the bathroom before if needed. YES! get all the air out of...
My son goes through phases where he feels sick beinning around 2-5 pm and lasts for a few hours? He seems to be in remission otherwise. When he was in full blown flare, we saw this this everyday....
How much (mg) of Pred did you take and for how long? My son was on 40mg. Doctor said wasn't working and we were days away from Remicade. We had done the tests and insurance was on board. Then the Doc...
I don't understand why you would rather be in pain than take Prednisone? It saved my son, but clearly you have reasons. So sorry you aren't feeling well. I agree that maybe ER might move things along...
You need a blood test....
I was all about ordering from Amazon. I live on Amazon, lol. I read several complaints that the VSL#3 was delivered unrefrigerated. I wasn't willing to run that risk, so I ordered through our...
My son can't swallow pills. We dissolve his Sulfa. We try for 2 grams a day (4 pills) but , usually get half that. Some say it will never reach the colon? I have had conflicting information about...
UPDATE: He kept having these bad days. None of the UC symptoms I had seen during the flares. Just the same, he doesn't feel well.." headache and stomachache" Long story, I had been working so hard to...
I also went to soy cheese, eggbeaters, non dairy. I know I don't digest all that so well all the time.. ' My son went on white rice, potatoes, white pasta (realize this was against anything I had...
Was there anything that triggered "last night"? Foods?...
Tara, No way I give medical advice, I also am very new to this. My son was diagnosed March this year, 2014. When my son first got this, had his first bad flare, sounds a little like what you are...
I don't how to use this site to respond the way I see threads. Please advise. Thank you ByeByeUC for your input. deltaforce. You have a lot of questions, and I wish I knew how to format this to...
Hi again. My 25 yr old son is often saying he doesn't feel well. Due to his Autism, he isn't clear what hurts or where. He was diagnosed with UC last May and had severe D and bleeding. Sulfa meds and...
Another thing. Why isn't he taking Prednisone? or any UC medications? This really sounds like a flare....
Hi, My son was diagnosed with UC this last May. His reactive protein was 11. His Doctor said that was high ( not sky high, but high). He is finally! in remission and test is .3 I am wondering if this...
I HOPE I am over analyzing!! In all seriousness. He was so distraught, depressed and talking about wanting to die ( no, he made no attempts), but I went into high gear. I have seen a lot in my life....
Thank ALL of you for the comments. I get these pills are 100% meant to be dissolved in the intestine and colon.. that said, I find it odd while he experiments taking them , they dissolve at a hyper...
We are very new here. I read and have found making sure to squeeze all the air out of the bottle helps a lot! No need for added air....
Sorry, I wasn't entirely clear, and I doubt I can be in a post or two as his situation is complicated. And me being so new to this, I am probably not explaining things well, my apologies. His first...
Hello all. I have been reading here for a few months now. I have a unique situation here, obviously. I have a million questions, but let me start with this. My son, 25, can't swallow pills. He is...