The cost for Humira is average $300 per month for me. First two refills are $5 using Humira Complete and then I have to pay deductible ($3600) for few refills. After that co-pay is $75 for 2 refills....
I started Humira in May, 2016 and taper off Pred by the end of July, 2016. Since then I am also diagnosed with Osteoporosis. For the past few weeks, my bm frequency has increased to 5-7 times a day....
Yes, UC diagnosis was May, 2014. Blepharitis in August, 2014. Small Fiber Neuropathy in Jan, 2015. Now heaviness and stiffness for last 6 months. Do not know when it is going to stop.......
My PCP does not do anything and that is the reason I am in a process of finding a new PCP. She is no help at all. Seems like I have no joint issue. I can bend my knee OK. But it hurts going up and...
My symptoms are in control since I started Humira four months ago. However I feel stiffness and pain on my knees and ankles for past 6 months. What kind of doctor I have to go to? I am keep visiting...
TY for the response. My Dr gave me a choice between Humira and Remicade. I thought Humira will be better as it will be at home treatment vs Remicade going to the hospital. I know someone who went on...
I was diagnosed with Pancolitis (80% of the colon is affected according to GI) in April, 2014 and Small Fiber Neuropathy in January, 2015. I was on Pred for 4 months and tapered off in January, 2016....
I was in a 8 month long flare. I was on Prednisone for about 4 months. Got off Prednisone in late January. Then this issue started. I am on 75 mg Azatheoprine and 6 Delzicol per day. This is my 2nd...
The bottle of the Steroid enemas are easier to use. I clean them and save them. I empty the contents of Rowasa enema in the Steroid enema bottle. I also warm up bottle in the microwave for 10 sec or...
I taste bad smell in my mouth. What could be the cause and how to relieve it? I have UC and Hiatal Hernia....
Since I got diagnosed with UC last year one thing after another and it is not ending. Right after UC diagnosis, I had Blepharitis, then I started having nerve issues. I went to emergency room...
I am on Predisone. Started at 60mg 2 months ago. Current dosage is 30mg. I am extremely tired. Is there something I can do to get some energy? Also this is my first time on Pred. Any tips how to...
I am taking 35 mg and tapering slowly. I started at 60mg 5 weeks ago. Underneath my eyes are very swollen and eyes bother me. I also have Blepharitis condition (inflammation of eye-lids) since I got...
No fat on my body left. I am only 80lb right now and 4 feet 8 inches tall. TY! I will call insurance company today....
I was diagnosed with Pancolitis in May, 2014. I was in remission from July 2014 thru April, 2015 taking Asacol. I developed nerve issue in early Jan, 2015 and Neurologist advised me to get off Asacol...
I am only 4 feet 8 inches and 87lb. My first flare since diagnosis. What should I start at?...
She is 23 in dental school. She went to Montana hiking but she is back for 15 days....
I am Uceris for few weeks. I still see watery stool, little blood, 4-5 bm. Dr says pred at 60mg. Is not that high dose?...
My young daughter is complaining about several watery bm, upset stomach and gas pain for a week. I need well wishes. I have uc and diagnosed last year. So worried...
I am on nightly enemas for flare. In the morning around 5.30am, dirty cloudy watery bm happens. After that few times not watery, not formed, but semi-formed bm comes. Is this normal with enemas? Is...
I am on Uceris 9mg for a week. Feeling little better. Any suggestions for supplements while on it and to get off successfully? I have stopped everything and only taking prescribed meds (ASACOL,...
I quickly look and overall results compared to other people looks good. I will look little bit more and see if they have further break-down. More to come....
garylouisville, Would the Firmicutes and Bacteroidetes in equal percentage in a healthy person?...
My uBiome results came. I need help! Please note that I took sample during flare. Firmicutes 53.27% Bacteroidetes 36.47% Proteobacteria 5.83% Actinobacteria 3.37% Euryarchaeota .84%...
How much calcium I should take Predisone?...
Your upper Gastric discomfort symptoms sound like what I have. I have UC and 3-4 months after UC diagnosis in Endoscopy hiatial hernia was found. I never had any issue before UC diagnosis....
1) I have Hiatal Hernia. Last year right after my first flare, acidity was bothering me. In this forum some one advice me to go to Chiropractor and I did. I was Ok for 6-7 months. My current flare...
I know some one who ate only red matta rice with carrots, some Indian spices and ghee for one year. He is off all the medications for several years now....
It was "free" for IBD patients, so I got it done. Otherwise it costs $99....
Did you run your results using Genetic Genie? I do not see that rs#....
I received results from 23andMe and I ran it thru genetic genie. Gene "GSTT1" is present. MTHFR A1298C is yellow Homozygous Mutations: COMT V158M, COMT H62H, VDR Taq, CBS C699T Heterozygous...
I started VSL3 - DS last week and blood is reduced. However it is not helping me with mucus and frequency. When I go to pee and it leaks out. Is there anything I can do reduce these symptoms?...
What is the cost of American Gut Analysis test? Which company did you use for the test?...
OK. I will take in the morning at the empty stomach. I read that you add Barley powder with it? Do I need to? Neuro thinks I have SFN. I am suppose to get some tests done, but NeuroMuscular...
Which area/state are you planning to go? There is an Indian facebook group that I can ask. I know few doctors in Gujarat that I am planning to visit. I know Kerala is the best for Aryuvedic treatment....
How much VSL # 3 DS I should take? When? I have been taking Culturelle for past week or so. Otherwise I eat homemade yogurt and fermented vegetables....
TY! Last year when I got diagnosed I took Lialda first. It did not put me in remission. Then Dr changed Lialda to ASACOL and I went in remission with 3 pills a day. Since then I had no issues. I was...
TY for advice. I am new to this and learning from veterans....
Do I need to call GI to increase the dose or can I just start increasing slowly? I am in flare....
I am taking 800mg ASACOL HD 3 times a day. How many I can take during a flare? Can I increase it? I am using Hydrocortizone enemas nightly. I have called doctor to replace them with Rowasa as they...
I am planning to go to India this year for Aryuvedic treatment. I know people who are in long term remission after the treatment. I do not know any Aryuvedic doctors in US. Good doctors will not...
Please help what supplements I should try for Small Fiber Neuropathy? I have moderate UC of whole colon and currently in flare....
What do you eat during a flare? What are safe foods for most people?...
I was taking ASACOL HD and was doing well. Since the pins and needles started, GI put me on Aza. I am more worried about Pins and needles issue, then UC. Neuro cannot figure out why I have these...
Lot of blood tests, X-Rays, MRI are done and no deficiency. I am mostly vegetarian (occasional bone broth) and stop eating all processed foods, spicy, dairy, wheat etc. No idea what to do next....
In last year I was diagnosed with 2 diseases and one more is still undiagnosed. When does it get better? I mean when body simmers down after attacking itself....
I had all Neuro work done few months ago. It feels like rain drop on skin (numbness), razor blade scraping like feeling. Yes, painful. Going for Neuromuscular doctor appointment next month. I stopped...
Should I call Dr to get back on ASACOL or just wait it out? Can you please recommend me Probiotic easy on my tummy? I do eat home-made yogurt....
I was diagnosed last year in April. I was doing well on ASACOL. I am having pins and needles since Jan. 2015. Dr. thought may be side effect of ASACOL. About a month ago he put me on Azathioprine. I...
Welcome to Boston! Dr. DeSilva at Bringham and Women's. I noticed that when I am in flare or have a question, it is hard to get appointment of the doctor at B & W. I only go there for the 2nd...