CDASinCO, i love that description! haha its perfect gypsyfp, i dont really have any other symptoms, ive had achy knees for as long as i can remember, and things didnt get really bad until the morning...
thank you!...
hey guys! sorry ive been bugging you but a lot of things are starting to click for mee. and a lot of connections from prediagnosis to postdiagnosis are being made. is crohns arthris a real thing or...
not exactly. they partially think that i have crohns arthritis. and they think its just serum something. im doing a lot better. i only stayed overnight...
it doesnt exactl mean no more remicade, the doctors arent ready to rule that out. they think that i might have a small case of crohn-arthitis. i havent been specifically diagnosed with crohns or...
they admitted me just to observe me over night (going home at 12ish hopefully) they have me on benadryl, ibuprofen, iv fluids, and toradol to control things. they're almost positive i have serum...
im currently in the er...
in currently in the er as well. doing bloodwork to do some testing. good luck! i wish nothing but the best!...
thanks! doctors told us to go to the er so thats where i am. theyre doing bloodwork right now...
just a little extra input.. i dont know if this is exactly a reaction to the remicade itself or the iv steroid, but the past two days ive been experiencing major muscle pain in my arms and shoulders,...
i think that i took my last dose of remicade, i think im just having a bad reaction to the remicade and i honestly dont know if it's worth it to take it again. i cant do much physically by myself,...
also, something new that started last night, if i move my right arm too much, its does something like a spasm...
platinumpixie, the left arm is where it started and thats where i had my iv. Dikid, they gave me benadryl and tylenol when they werent giving me iv steroids (i was taking prednisone for my first...
My mom plans on calling again today. im not really able to get to school (driving would be impossible, plus i cant carry a backpack) and my mom doesnt let me off the hook easily when it comes to...
hey everyone i got off steroids in between infusions of remicade, so they had to give mee an iv steroid before the remicade infusion. that was yesterday. today, about mid morning during school, i...
a little less, but today im really struggling with severe arm and shoulder pain. i think its a side effect of the iv infusion...
remicade is the best thing ever, i took it a week after being diagnosed (i was in the hospital for a week and was super super weak and tired) and it was a night and day difference! i just had my...
congratulations! hope everything works out for you! keep us posted!...
let us know how this goes, im currently received remicade (currently doing an infusion while i type), but still interested to know!...
im not, i just had my appointment about an hour ago and i asked and they didnt say anything about it, currently getting my infusion! haha...
maybe your body's just getting used to the change?...
im 17 too! i was diagnosed in june.. didnt have any surgery but i was in the hospital for a week, dont worry you'll make it through! if you want to talk more about it (just cause its nice to talk to...
i wouldnt be worried about him taking prednisone. im 17 and i was on 60mg for like two months then tapered off. the only problems i had was that i was always hungry for anything and everything and...
i usually try to stay away from too much food like that! i know its soooo good but maybe try to stay away for awhile until you're better?...
i was first diagnosed in june of this year, i wasnt even eaten what youre trying to eat. lost 30 pounds in three weeks and spent a week in the hospital. if it was me, id go to the hospital while it's...
im not sure.. it was awhile ago that i was told. ill definitely know more tomorrow. getting my blood drawn today for tomorrows treatment. also, the doctors arent quite sure if i have crohns or UC....
pim sorry to hear about that! ive never heard about crohns arthritis symptoms.. im barely 18 ans havent thought about it...
remicade has helped a ton! i havent had a flare up since being off prednisone. ill probably mention everything to my doctor tomorrow and see what he says. how did remicade work for you?...
seeing this article at first made me upset because i didnt see it as a disability. but looking and thinking about it, it is, but in our own sense. thanks flr sharing!...
congrats! i knew i was in remission before my doctor said so but him saying it felt amazing! so happy for you!...
ive also heard negative side effects of remicade, but i think id rather take other medications and such to help the side effects rather than not take the remicade, tit works so well and i havent been...
i started like the first week of june. its in my knees, hips, and ankles. remicade for mee has been the greatest thing ever. its a night and day difference for me!...
hello everyone! i just have a question about experience with leg pain. ive had it for the past two weeks possibily. i got off prednisone aug 23 and receive my fourth treatment of remicade tomorrow. i...
im so sorry jim! but welcome! im new too, figuring out the website was even a struggle for me! haha...
the day after my first remicade infusion, i was a completely different person. i had just been diagnosed a week before and had just gotten out of the hospital. i was really sick for a month before...
ive had three infusions of remicade so far. i took the first when i was still sick after the hospital, but the next day i was completely different. i havent noticed any side effects. if i have...
i completely agree! i bet he regrets saying that! haha...
i never leave the house with my hair up. my mom continuously asks why im soo self concious of this but she doesnt really get it. she says its not as bad as it looks but then people look at mee and...
its actually really niice to hear that someone else has been called that. i have coworkers that have asked and they know i was jn the hospital and such they just never really knew the story. thanks...
how long did it take the moonface to go away when you got off of it?...
i completely understand what you mean with no one understanding, they may think so just because theyre there right next to you the whole time but it doesnt matter. youre the one having to changed...
im newly diagnosed with ibd.. not even confirmed if i have UC or crohns disease yet. but ive been on prednisone since june and im going to be off august 23rd. the moonface came recently and its...