I asked to belong to facebook warriors today. The pain is coming from the lower abdominal area. Below the belly button, and yes they come for a short period of time and feel like stabbing...
Please keep us informed on your progress. Some of us have not been able to make the decision for surgery, and your progress would be helpful....
So one week past the 5th entyvio infusion. Bleeding has subsided for the most part, but abdominal pain still persists. At times he is doubled over on the floor. Can anyone explain why this happens??...
Thank you for your responses. We have tried Delzicol, 6-mp (liver levels became toxic), remicade (no response), . He responded to delzicol for a really short period of time, but he was also on...
My 14 year old Dominick has not responded well to anything! He just had his 5th entyvio infusion, and we are discouraged. He is complaining of severe pain in his stomach every few hours. He has not...
Thank you DMC2011 I know that patience is key to this disease. Trying to teach that to a 14 year old is difficult. Can you tell me anything about any of the new treatments? I keep looking on line for...
Thank you so much for all of the helpful and informative information. I will look into all of the items and methods that you mentioned. I was skeptical about the SCD diet. It is difficult to start...
Yes it really does suck when it effects children. My son just told me he had to run out of math class today to make it to the restroom. All stool tests came back negative. I am nervous that surgery...
Thank you so much. I can not tell if the Aloe works, but it certainly does not hurt. I also do believe in the probiotics. It is difficult with a teenager to have them be faithful in their routine. I...
Best of luck. It is a brave decision and I pray for a speedy recovery. It is normal to have fear. Please let us know how you do, as surgery is something that we all think of....
Hi All This is my second time messaging. Such a great forum. My 14 year old is going on one year with UC. We can not seem to get his UC under control. One day he is bleeding, and one day he is not....
Thank you. Yes I have spent enough time beating myself up about it. It was not accutane. It was something milder, I think it was mercocycline. We are taking him to the GI department at the Mayo...
I keep trying to think what could have started it, but I just can not pin point one specific thing. He has just started acne medicine in late september and was diagnosed in mid october. I am not sure...
Thank you for your response. He has had 4 entyvio infusions. I have read that there are more drugs getting approved this year. I am holding out hope. Surgery has always been on my mind, but i feel as...
Hi all. I am a parent of a teenager with ulcerative colitis. He is 14 and has been suffering for over a year. I am just looking for advise. He has been on everything from delzical, 6-mp, remicade,...