Thank you to those who have responded! So far, it seems like there's something to this hormone thing. I do recall hearing that pregnancy can send things out of whack as well. What a joy this all is......
Hi all, I've had UC for about 18 years. I've been lucky enough to have some multi-year remissions between major flares, although there have been smaller flares interspersed as well. I take...
Hi Quincy!! Hi Worried Girl!! Hope you have a more successful scope next time. What a pain to do the prep and then have it be for naught. So I heard back from my GI but it was a rather dissatisfying...
My colon has been described as "redundant", "tortuous", and as having "excessive looping". A few of my colonoscopy summaries have described the need for "manual pressure" in order for the GI to get...
I had the same issue after my colonoscopy this year. I've had increasing constipation over the past five years or so, and UC for about 13 years. I also have a tortuous, or redundant, colon, meaning...
Thank you so much for all the positive feedback. I was a little hesitant to post but I'm so glad I did! This is such a helpful, supportive place. Grateful! Jane...
Hi forum. I wrote this for a writing assignment. I thought some might appreciate it here. I don't mean for it to scare anyone who is newly diagnosed. I've had UC for over 12 years now and, unless I'm...
Sorry you're worrying. I can relate. It is tough to always be analyzing symptoms, especially since the path out of a flare is rarely a straight line. A few thoughts: - Christmas indulgences may have...
Thank you - very helpful!...
I know it's a question for the GI, but wanted people's experience on here. As I improve, I am increasing my ability to use rectal meds. They have been effective maintenance meds in the past but this...
I started pred a couple weeks ago. Started at 40mgs and, per doctor's instructions, I stayed at 40 for 5 days then dropped to 30. I've been at 30 for 9 days and am now wondering if I should drop to...
Interesting article in the NY Times. It's not discussed in the article but it made me wonder about collecting our own stool while we're in remission and using it as FT material when we're flaring....
Still didn't work. I give up. Sorry for multiple posts......
Didn't realize my signature from a long time ago would come up - I updated it to reflect my current state of affairs :)...
Try the sulfasalazine first!! I tried Colazal, Asacol, and Pentasa with no significant improvement, but I have done well with sulfasalazine for years. You need to get your urine checked regularly,...
Definitely adds some validity to the resistant starch/prebiotic argument. Enjoy! http://www.nytimes.com/2013/05/19/magazine/say-hello-to-the-100-trillion-bacteria-that-make-up-your-microbiome.html?hp...
Just a post to express my deep gratitude for this forum. I first found this forum when I got really sick with UC back in 2005. It was a huge source of comfort to know that I was not going through it...
I go to twice a day. I do one after things calm down in the morning and try to lie on my side for a few minutes before I leave the house. I've been doing almost nightly enemas for 6 years so it might...
Not sure how strict you're being but if you're willing to trust some labels your options increase. I've used yellow mustard, Spectrum canola mayonnaise (delicious!) and pesto. There are also brands...
I've been using Rowasa enemas almost nightly for at least four years at this point. I personally think they work better than any of the oral meds. Any time I've tried to taper, I flare. So here are a...
Hi Juliemon, My heart goes out to you - I had the same issue a while back. I did a lot of searching on the internet and really freaked myself out when I found that there seems to be a substantial...
L-glutamine is also thought to be involved in repair of the intestinal mucosa. I take it when I think I may be getting sick along with a few other things. Of course it's hard to know what exactly is...
Isn't Celebrex an NSAID? Aren't we supposed to stay away from those since they are so hard on the intestines?...
A timely post indeed! I am appraoching the two-month mark of being in a vaginal infection vortex. I started out with yeast, fixed that, BV emerged, fixed that, it came back, and the grand finale was,...
I've been on the SCD for almost 2 years. I think it has helped immensely and perhaps the reason you don't see many SCD success stories on here is that the successful people don't have to come to this...
I have that daunting task ahead of me too. I've often wondered if a slow taper (2 a day, 1 a day, 1 every other day, etc.) might successfully stop the flare from developing. Probably harder to do...
Burli, Just to follow up. Either I wasn't sick enough, or I just don't have the patience for those elimination diet things. I didn't add one food a week. Because I was feeling well when I started, I...
Hi everyone, Just thought I'd weigh in here. Burli - I remember you and I bashing the SCD a while back. I was quite sick with a flare and tried going on it, hoping to see a miraculous turnaround in...
Hi Damo, Here's waht I think: 1) i think so. that has been my experience and I've had varying degrees of uc - from proctitis to pancolitis. with pancolitis it was completely liquid. 2) could be....