But it's hard to exercise when experiencing extreme fatigue and joint paint from coming off the prednisone. Also, since I'm not as hungry as I was on prednisone, I'm eating a lot less. Won't that...
bump!...
I stopped prednisone almost a week ago and noticed the hair growth starting to slow down. But as far as weight goes, I'm still 116-117 when I should be like 103 pounds. It's so upsetting. I have a...
I have now been off prednisone for 3 days. My face is starting to thin out but my stomach is still pregnant looking. I still weigh around 116 to 117, not happy about that. I'm not eating as much...
Thank you! I hope it goes away fast, I hate it :-\...
Tomorrow is my last day of 5mg of prednisone. I have been on and off of it since the end of July when I had bad side effects from Humira and had to come off of it. (I am now on remicade) I'm 28 years...
I did get a second opinion with a crohns and colitis specialist and they also agreed that I need remicade or 6mp but they don't recommend the 6mp type meds because I had pancreatitis. The only reason...
They skipped immunosuppressants because I got pancreatitis from the humira. They are more likely to cause it....
I am on the max dose, sorry if I worded it weird. I take 2.4 grams twice a day which is 4.8 grams. They don't recommend 6mp for me or any immunomodulators because of the fact that I had pancreatitis...
So I was diagnosed with mild UC 4 years ago. I was put on Lialda 2.4g twice a day. In May I had my first and major flare and the doctors said Lialda wasn't working anymore and put me on Humira. I was...
I was given rectal meds a week ago but can't really take them yet because of my urgency to use the bathroom. I honestly feel like these drugs are worse than the actual disease. I only have mild...
Entyvio also has bad side effects, I'd rather not suppress my immune system. Anyone else??...
I was diagnosed with UC 4 years ago, put on Lialda and was fine. Then at the end of May I had my first flare. I had no idea what flare symptoms were because I had never had one. I was going to the...
I was on prednisone for a short time but I stopped it almost a month again, that's when I started Humira. So I am currently on Humira and still taking Lialda until I see my doctor again....
I've posted here before but I'll give a quick summary of my background. I was on Lialda for 4 years, then it stopped working and my doctor put me on Humira, which I just took my second dose today,...
Sorry I wasn't more specific. I have been on 4 lialda a day for 4 years. I just meant my 2 morning pills that I tried not taking seem to change things. I take 2 I'm the morning and 2 at night. I...
Okay, so I've posted on here before, but I'll give a quick summary. I was diagnosed with UC in 2011 and have been on Lialda ever since without any problems, until 4 weeks ago. I had a bad flare and...
Thank you all for your positive feedback. It makes me feel a little better. I'm also worried about the risk of cancer though. I know it was a small risk, but it's just nerve-wracking!! :-\...
Hello. So after my bad flare and being sick for almost a month, seeing my Lialda stopped working, my doctor decided to switch me to Humira. I am on prednisone in the meantime. I'm waiting for the...
I know I've only been diagnosed for years ago with UC and just had my first bad flare but I've been looking into surgery to remove my colon. Is this too extreme?? I know there are meds to try and...
Thank you all for your opinions. It's given me a lot to think about. I didn't know that Lialda was supposed to be taken once daily. I have read that other people take it twice a day but I'll...
I'm most worried about the fact that it suppresses my immune system. I'm afraid I'll get sick all the time :-/...
I've been on Lialda since I was diagnosed with UC 4 years ago. (I'm 27 year old, female) I started with 1 pill 2x a day then I had more diarrhea so they increased my dose to 2 pills 2x a day. Ever...