Thank you for your response, Michelejc. I was concerned about substituting something without the electrolytes in it, but I could drink the Smart Water in between. I would still REALLY like to hear...
Thanks again for your input, everyone. KSmomof2, I have a bottle of Smart Water in my refrigerator right now to try to see how I tolerate it! I have been putting off trying it, but with your...
Thank you all for your responses so far. The Prepopik is by prescription only, so I am stuck there. The GI is not prescribing Prepopik due to any individual heart problems with me, so that's not it....
Hello all, In a month or so I will be due for the dreaded colonoscopy checkup. I've had mild UC for almost twenty years and have had, on average, a colonoscopy every two years. I control my UC with...
No Lialda listed? That is what I had to switch to when they wouldn't pay for Asacol anymore. With the discount card that Lialda sent me, it got me down to what I had been paying for Asacol. It has...
It takes a few days due to all of the biopsies (28-30 for me) and the prep. Gassy pain and some blood are to be expected. However, after my last colonoscopy, I also had spotty bleeding from my Vagina...
Thank you for the suggestions! The nasogastric tube sounds like an alternative I would be interested in. I did some research on it, and it looks like the patient has to be hospitalized for at least...
Hi again, Everyone. I'm just reposting this thread again in hopes of receiving some replies. Thanks!...
I've had mild to moderate UC since around 1997. Back then the doctors recommended colonoscopies every 1-3 years. My current doctor is still old school--he wants a colonoscopy every 2 years, whether...
Hi Everyone. I have a colonoscopy every two years, and as a result, I have built up a very bad intolerance to the oral preps of any kind. I simply cannot keep enough solution down to adequately clean...
I agree London, if you can't get anything else, have your doc prescribe mesalamine enemas. They come in generic, so most companies should cover them. I have taken Asacol and used the enemas together...
Same thought crossed my mind...I wondered if one of the class action medical lawyers would be interested in this, or if there just wouldn't be enough grounds to sue. Not sure if the manufacturer...
friskie, I never did take Asacol with meals. Since I was taking it three times a day, I would take it when I first got up, again around 2-4 pm, and again right before I went to bed. Can you delay...
Thank you for your advice, GaryLouisville; I will follow up on looking at the policy. (I used to live in Richmond, Ky for most of my life, by the way, and I miss it.) The insurance company is telling...
First of all, thank you everyone for this wonderfully informative forum and to all of the people who take the time to post. It has helped me immensely over the years. Last week I also tried to refill...
I also started taking Forvia vitamins about two years ago and swear by them. I also started taking Digestive Advantage probiotics at the same time, and I have not had a flair in over two years....
I 100% believe in probiotics. I started on a probiotic about a year ago after having three flares in one year and was sick of taking Prednisone. My doctor is one of the "old schools" who hasn't come...
Hello All, My husband is getting a colonoscopy on Friday and the doctor has ordered Movi-Prep to "clean him out". He was ordered to start it at 7 p.m. the night before, and then drink the second...
When I upped my dosage of Asacol to nine per day, the side effect I had was noticable hair loss--it was literally coming out in my hands. It went back to normal when I lowered my dosage back to six...
Every time I have been on Prednisone, I have always had to get up to pee at least once during the night. This will go back to normal when you stop taking the Pred....
I had very bad hair loss last summer after a bad flare and pred taper. The whole top of my head was sore for at least three months. I took Biotin to make my hair stronger (still taking it now). My...
Look for the sunbutter in the peanut butter section of your local supermarket. Publix in Florida has it, but Wal-Mart in Florida does not. I have also looked for it in Winn Dixie with no luck....
I use Digestive Advantage Crohn's and Colitis Therapy (purple box), and I totally believe it is helping me to stay in remission. I really like it because it does not have to be refrigerated, and they...
I had a bad case of hair loss earlier this year. At first, when it was at its worst, the whole top of my head was sore (like when you wear your hair differently than you are used to). I had gotten a...
Publix supermarkets in Florida have it with the peanut butter. Someone on here also said they have found it in the organic foods section....
I also had significant hair loss for a couple of months for the first time after a bad flare. I had used Prednizone and upped my Asacol dosage while in the flare. I started taking the biotin vitamin,...
I totally agree with Quincy. Try the Rowasa before going to Prednisone. If you think Asacol is giving you all of those negative side effects, the Pred is 100 times worse (in my opinion). I have never...
I was in my third flair in one year a few months ago, and I was determined not to take Prednisone again. So I tried the Digestive Advantage purple pill I had read about on here...and I truly believe...
I also want to add that I think starting a probiotic helped me more than anything--I use Digestive Advantage (purple box). Can find it at most drug stores....
I am just coming off of a flare--without having to resort to Prednisone for the first time ever!!--by upping my mesalamine medicines and sticking faithfully to a low residue diet (no fried foods,...
I did the Dulcolax/Miralax prep for the first time in April this year, and I would definitely reccommend it over the other preps. I have had several colonoscopies with most of the other preps, and...
Where can you buy Biotin?...
I am also losing a lot of hair right now, and I have read from two different sources that you can have a lot of hair loss three to four months after an illness. Sounds like that is about your time...
My blood tests all came back normal--no rhuematoid arthritis. My joint pain has finally started to lessen during the past two weeks. I definitely think my body is still adjusting to going off of the...
Definitely consider a desk job where you have access to the restroom at all times. Last year I took a cashier's position at a well known home improvement store, and that proved to be a disaster. I...
I just refilled my prescript ion for mesalamine enemas (same thing as Asacol pills--different form--and Rowasa enemas), and one of the possible side effects listed is hair loss. I've been using...
I agree that most GI's do not think out of their very small, self induced box. I have had UC for eleven years, and not one of four GI's ever ordered a blood test. I asked for one myself through my...
Thanks, quincy! I will definitely find out what perm solution was used. No sores--but according to my husband, no new hair growing, either. I will probably take a long vacation from getting my hair...
I too am experiencing a lot of pain in most of my joints after coming off of Pred about three months ago. The pain has not lessened, so I have had bloodwork done and am waiting for the results to see...
I have the same problem sometimes when I am not careful to keep my "crack" completely dry. If I don't dry well enough after bathing, or if I sweat, my butt crack can get really sore for a few days...
I am also currently going through hair loss, which has lasted about five weeks so far. I pretty much can pull it out by the handful after washing my hair. I am waiting on blood tests to see if that...
Drinking alcohol has never caused a flare for me, but definitely causes a lot of problems while I am in a flare. Beer contains CO2 (the "bubbles"), so that would be harder on your system than other...
I agree that there is not a lot of point in decreasing your dose of Pred if you are still bleeding. I have had to take 40 mg of Pred for several weeks before to stop the bleeding, and during one...
I always sweat a lot, especially at night, when taking Prednisone. Just another one of those "great" side effects of Pred. Not really a whole lot you can do except to bear it. Staying off of alcohol...
The highest dose of Pred I have ever taken is 60 mg, and whatever level of Pred I might currently be on, I divide it up into three times daily to balance out the "coverage". However, this does make...
I had been thinking about writing about basically your same question. If you have a flare and choose to up your maintenance drugs but not take the Prednisone, if the flare does not get better, what...
I agree, totally normal--I have been on mesalamine enemas for years as a maintainence drug, with no side affects whatsoever. They will come out in the toilet the next morning with my bm's (white...
I also have increasing joint pain after my latest flare and bout with Prednisone. ( I am off of it now and in remission. ) I am also on Asacol and mesalamine enemas, which I have used for ten years...
Hello everyone. Has anyone had any good results from using an over the counter or prescript ion appetite suppression drug to try to take off the Prednizone weight gain after their flare is cleared...
I used Rowasa enemas for several years and then had to switch over to the generic enemas two years ago because of the insurance coverage. I do not believe they work as well for me (I have had three...