Husband had jpouch 10 yrs ago and is doing well. No pouchitis, full control. His biggest complaint is occasional "butt burn". The 10% erectile dysfunctiion sounds high to me. I think it is much lower...
So surgery is tentatively scheduled for Wed. We are in hospital now. He is having imaging of small intestine today to see if there is any chrons. My son is actually excited for surgery. He is so...
Old Mike: How old was your son when he had surgery? Was he thin and weak? My husband has jpouch so I am familiar with it. Although, my husband was strong at the time of surgery, never on pred and at...
We've been given these 2 options for my 15 yrs old son. I'm not sure what the maintenance drug would be after cyclosporine, either 6mp or Entyvio. My son is 5'9" and down to 94 lbs and not able to go...
I though that the mesalamine's were more of a maintenence drug not a rescue drug. He's in a nasty flare and unable to go to school or even have tutoring. Plus since he has pancolitis, I don't think...
He was taking cort enemas. But that was after the scope showed no rectal involvement....
He is going to get imaging of small intestine before we decide on surgery. So, he was diagnosed with pancolitis, but his rectum is clear, which I thought was odd because doesn't UC usually start in...
I realized the risk is small, but Dr. informed us of the increased risk of malignancy in adolescent boys. Just not sure if we want to take that risk. ________________________________________ 15 yr...
Just wondering how common it is to be diagnosed with UC and then later have that change to Chrons? Considering surgery, but want to be sure it's UC. _________________________________________________...
My son has shown very little response to Remicade. Maybe a few fairly good days after each infusion. He had his level tested prior to his 3rd infusion and it was 2 (should have been 8). Bumped up the...
My son is trying Remicade and is on his 4th infusion. The first 3 were 10mg/kg and the last one 15mg/kg. He has some small improvements. You seem to be doing much better than my son. At the last...
He was tested 2x for cdiff and he does not have it....
My son's Dr said Entyvio takes 3 -6 months to kick in? Is this true in other's experience?...
He does take 1 cortisone enema per day. As for the fecal transplant, do you have to get into a trial and how do you do that? Can they do a fecal transplant while you're in a flare or do things have...
Hi. My 15 year old son was just diagnosed in Sept with pancolitis. He is in a nasty flare which we can't get under control. He has not responded to Delzicol (seemed to make him worse), predisone (up...
Does anyone know if dragonpack forum is still up and running? I do not see any new posts. I have been trying to sign up but can't get activated and I never get any email response to my inquiries....