hi, my son never responded to pred or Remicade and ended up getting a full colectomy last January. He is now a j poucher and we couldn't be happier. Of course everytime he has some pain we panic, but...
Hi everyone. Its been awhile I know. My sons j pouch surgery went fine in June and he has been healing up nicely. Take down was in August. I have a question though. He has been fine in regards to...
thanks for the suggestion. I will have to try that one :)...
thanks...he also has some blood coming out. Not much though. Is that a worry? Its mostly just on the toilet paper....
Thunder Bay, ON, Canada. My son had his surgery preformed at Victoria Hospital in London,ON....
My son just experienced this for the first time today. He also says the mid area of his back hurts from time to time. :(...
ByeByeUC-yes the mucus and he is in between surgeries for a j pouch. Thanks, teacheraxel. Do either of you know a way to lessen the pain?...
Hi, so my son has been out of surgery for a month now but he still discharges from time to time. How long will this last for? Also he is in some discomfort while he discharges ( out of his rectum )....
Hi everyone, so I was changing my sons bag etc when upon cleaning I found there to be a small amount of blood coming out of the stoma and a small amount coming out between the skin wall and stoma....
Hi DMC, thanks for asking. We are all getting better. My spouse and I have yet to return to work and our son has not been to school yet as he is too weak to go, but the is getting stronger everyday...
I say that because its a very taxing sport on your body. Its obviously very physically demanding but also your body goes through hell...even is you're merely training. With the Bjj, lots of pressure...
I think that MMA would be a poor choice for an activity. My son who just went through the first surgery has been in the sport for a while. I was also in it for a period of time. I can see lots of...
It turned out to be an abscess. It drained out in the morning and we took him to emerg to have a doc finish it off....
thanks!...
does anyone have any experiences with this?:(...
how can you tell if there is a blockage? My son does have output, but he has a large lump near the stoma closer to his stomach. Just wondering if that is an indication of a blockage....
The next surgery is sometime in June I believe. So three months after the initial one....
Hi, my son has recently had the 1st stage of the j-pouch surgery and we were finally discharged and flew home. Today I notice a lump to his left of the stoma ( maybe 3 or 4 inches away ). Is this...
Hi, he is doing pretty good considering. We flew home a few days ago and are adjusting to the life with an ostomy. He did lose weight while being in the hospital for so long with out eating, but he...
thanks :)...
They are going to do a 2 step surgery. He is in there right now :( . Thanks to everyone for the positive thoughts. I really appreciate it....
thanks, bania. How long does it typically take to heal?...
thanks. I just need to learn more about this. I don't know how he will react when he wakes up from surgery and has the ostomy bag attached to him....
thank you DMC, I really appreciate it. I'm just in shock right now....
He is doing the step 2 surgery. This happened so fast....
thank you so much byebyeuc. What is your daily life like with the j pouch? My son is very active. I know that he can exercise, but is it limited? If he falls on his stomach, is it safe ( silly...
yes they did. He is on his way to surgery right now :( . Atleast he will be 'cured' of uc. I cannot believe this happened and happened so fast. This is only his 2nd flare are we caught it when it was...
Hi everyone, my son has ulcerative colitis and his bowel is not responding to the meds that his is on ( he has been in the hospital for almost 3 weeks now /community/emoticons/confused.gif ). The...
nobody in my family...
thanks for the thread :)...
The doctors are worried about using too many drugs and wiping out his immue system completely. Its too risky incase he goes into surgery. My spouse will still tell me that he will have brown loose...
hey everyone- his hemoglobin dropped into the 80s so he may need a transfusion. They have him on a liquid diet hoping that the bowel can heal. I'm losing hope :( . he is on pred, remicade and some...
I am relying on anyone. I'm looking for a list of meds safe for children. Simple. I am also not in a position to talk to the doctor....
Hi, just looking for a list of safe meds for children. My son has taken remicade and predisone. Pentasa was his maintenance drug. He did his 2nd infusion today and he just pooed blood. starting to...
he has been on pred for 3 weeks now. can he become dependent after that lone?30 mg.iv was 50mg for 12 days...
did your doc just double to dosage or did you request it. I am just worried that they r not giving the remicade enough time to work....
yes, he had a relapse after being taken off of iv pred and placed on oral pred with smaller dosage. But yesterday his body bounced back so I would like to delay it a bit....
nice find! thanks for the info...
Hey all, just wondering if anyone has experienced this? The doc wants to give my son his 2nd infusion already. Is that a good idea or should the doc wait for the 1st round to work more? He is also on...
thanks. his last bm last night was a lot of blood but this morning blood and brown poo. I figure that some bm will be bad and hopefully the majority of them are more poo then blood....
initially they wanted to do his second infusion tomorrow ( the first one was only Saturday , but now after improvements I want it postponed...
dmc- dx was last spring. he went into remission late June with prednisone and fell out dec 24th we used a bland diet overall but we have tried him on most foods with nothing really causing him pain....
and since the iv was attached, he has only experienced a few bm...
hey everyone Well I stopped the surgery and they rehooked up his iv with just saline and he starts iv pred in the am. Funny this is now the stool is becoming brown and thickening. :)...
last time I was down there he weighed 70 lbs at age 9. surgeon says steroid depentent...
he had his first remi infusion 4 days ago. it was looking great until they switched from iv pred to oral. then he relapsed. he at a good hospital, but it felt that as soon as we arrived the surgeons...
As some of you know, my son is in the hospital for uc fllareup. Well I was just informed that he is steroid dependent and he need to remove his colon and create a j pouch. Is this what happens? He...
thanks everyone. just really scared. He woke up this morning and had 3 bm between 5am and 630am. but went all night without one. I think last one was at 930pm...
my son just did his first infusion. The following day he went from 8 bm to 3 with little blood. Following day the same. Now he is bleeding more and back up to 8 :(...
thanks, ipoop...