Right, gastro appointment went well. He said that normally, he treats flares with a flare dosage for at least 6 months, if not 12 months, and only encourages patients to gradually reduce medication...
I'm seeing him this Tuesday (10th). I know right? I was stoked when I heard they had an appointment then. Being the public health system, you take what you're given. The woman I spoke to at the...
Update for those interested. I phoned the gastro clinic at the hospital last week, as I was due for a 2-yearly checkup with a GI doc. Last time I saw him, I was in the throes of blissful remission (I...
I'm in New Zealand...
I dropped the dosage last time as that was all my script allowed for. I'm not sure how scripts work in other countries but here you are only prescribed with up to 3 months' worth at a time. The...
After continuing to improve but very slowly, I've decided I will keep my appointment with my doc this afternoon. I'm going to see how long he thinks I should be on the flare dosage of oral meds, and...
I've made an appointment to see my doc on Thursday. In saying that, I've also made an interesting discovery over the past 24 hours. On the advice of a nutritionist I saw speak a few months back, I...
The same as last time. Oral Asacol, 4g per day for a week....
Considering UC comes on of its own accord, in my strong view, thanks to nothing other than the mind, I'd consider a 'placebo' that works a complete success....
Completely. I remember about 6 months after I first was DX'd and got my meds under control, I had a really stressful afternoon when I was supposed to travel up country for a training session that...
Well that recovery was short-lived. My flare calmed down over the weekend, but slowly came back and seemed to fluctuate over the week. However, today I had my first ever "HAVE TO GO RIGHT NOW"...
Update for those interested, I'm pretty sure I have got this flare under control. It's early days so I don't want to speak too soon. If I'm still improving after a couple more days, I'll post an...
2019 is turning out to be a monumentally forgettable year for me, health-wise. In May I got sick with a bad cold, but due to work pressures, mostly worked through it. I never quite shook it, and it...
Thanks for the advice, everyone. I have an appointment with my doctor late this afternoon so will talk it through with them. Also made an appointment to talk to a therapist about the stuff at work...
I was DX with UC in early 2016, and got it fully in remission with mesalamine oral and supps in mid 2016. This year, I've started off with some pretty stressful stuff at work, which has been causing...
Thanks for the replies everyone. I've settled down again and had another supp a couple of nights ago, without any unexpected issues. Glad it wasn't something to be alarmed about....
Hi all I've been completely stable with my UC symptoms over the last few years. Meds are Mesalazine 2.4g orally per day, and 500mg rectally 1-2 times a week. I'm symptom-free, but if I miss a few...
As much as I'm trying to tackle this using lifestyle changes, the problem is that exercising is harder when I'm anxious, and I fatigue much easier. I also am likely to get hungry mid-workout, and...
The short version of this post is: What do others here take to help with depression/anxiety occurring as a result of UC? The longer version: I have proctosigmoiditis, DX in 2016, and managed through...
Actually, on reflection, I think you might well have nailed it there. It would explain an awful lot of things. I think it's time for some deep self-reflection, as I suspect I know what may be the...
I bought myself a blood glucose meter and used that when I was having the heavy crashes and brain fog episodes. Oddly, even when I was ravenous, it wasn't showing anything particularly low. 'Brain...
Give a builder a hammer, and everything looks like a nail. I think it's easy to over-diagnose everything as being psychosomatic. That's one of the dangers of TMS, in that it's easy to apply that...
Natof9, can you let me know what teas you were taking that you found helpful in your recovery? beave, whether TMS is acknowledged by mainstream medicine or not, there's no denying the fact that...
The only meds I'm on right now are mesalamine (2.4g daily orally, and a 1g suppository once a week). I've never been on pred for my UC. Only ever mesalamine. You have triggered a thought, however....
No I haven't. However, looking at the list of symptoms, the only ones that apply to me really are fatigue, and malaise....
I've posted on here before about my battles with fatigue, and while I thought I'd gotten to the bottom of it, the root issues are still there. From about October last year, I've been having terrible...
FYI if anyone is interested, it's looking like this issue is being caused by not enough protein and too much carbs in my diet. In all my trials of different foods to try and figure out if any...
I did have a pretty comprehensive blood test done, which showed no deficiencies to speak of. It's interesting how you talk about exercise. I used to be a very enthusiastic group fitness junkie. I'd...
Not as yet, but it's also a common symptom of things like adrenal fatigue, depression, and burn-out, all of which cause the overall feeling of being 'wiped out'. I would imagine a sleep issue would...
My UC symptoms are very manageable these days. In saying that, I've been struggling with fatigue and wanted to get some thoughts. In July/August last year, I was hit with a run of debilitating...
I'm so glad we have this place as a resource. Once again, there's loads of explanations that are far more informative than anything I've had from a doctor to date. Thanks everyone. I'm back on the...
Since starting on suppositories, my symptoms have remained totally manageable. My GP advised me that, once things start to settle down, I should try and drop back to using either just oral meds or...
I hadn't been told as much, but figured it would probably take a while for the urgency to resolve. Another thing I know will take time is for me to build confidence to actually pass wind in any place...
I saw my GP on Monday to discuss my meds, and he gave me a script for suppositories. The initial dosage is 1g per day, but he said I can incrase to 2g/day if that doesn't help. After starting on...
This week I believe I have confirmed as a fact that my UC is extremely closely correlated with stress/anxiety. For a while I've noticed a few things: * My symptoms are never as bad on weekends *...
When I say 'potato-based products' I really am talking about food that has potato in it (as opposed to just potatoes on their own). Fries and potato chips, are suspects for me at the moment, but as...
My gluten elimination process started with me going completely gluten-free at the start of the year. After finding that there was no apparent change after a month or so, I didn't exactly switch back...
I've finally got around to adding a signature, which has some basic info. There's some good advice here. I do think that integrating elements of a particular diet is probably the more practical route...
I had a pretty stressful week last week, and my symptoms flared quite badly as a result. They are improving again, but still aren't back where they were beforehand - UNLESS I eat fermented cabbage....
I decided not so long ago I would all but abandon diet modification. Before I had any medication for my UC, I tried so many different diet combinations, none of which seemed to have any lasting...
After a long wait, I had an appointment with the gastro specialist last week to discuss my treatment and progress to date. Since being diagnosed with UC in early feb (the gastro said on a scale of 1...
I've been meaning to ask this for a little while. Is back pain a symptom of UC during a flare? The reason I ask is because, since my symptoms have worsened over the past 3-4 months, my thoracic spine...
I phoned my GP, who referred me to the hospital, where I was lucky enough to get the receptionist to catch the GI specialist in between patients. He said he has started me on a low dose deliberately...
Rectal meds are something I've already learned about from idling around here, so I'll definitely keep that in mind if my symptoms don't improve. This morning has been.... interesting.... as far as...
Asacol is exactly what I've been given today. I'm in New Zealand....
Hi all I had my colonoscopy today and, as I suspected would be the case, I have been diagnosed with UC. The specialist's report said it has affected the rectum and sigmoid colon, with the changes...
I'm relatively new when it comes to all this. I don't even have a diagnosis of UC myself as yet. What I can tell you about my own experience is that my IBD definitely came on due to stress. My...
Hi all I'm pleased to advise that avoiding all high FODMAP foods has caused a dramatic improvement of my symptoms. This morning, I had only one BM and it began with wind, rather than mucus. The mucus...
Thanks for the advice. I'm going to adopt a slightly different strategy to that. Because I started on low residue foods, I cut out a large majority of raw fruit and vegetables. This means that I only...
Things appear to have settled down a little over the last day whilst eating low FODMAP foods. More dry wind last night, and an even more settled BM this morning (and just the one, even). I'm not...