No the foam doesn't say anything about lying down. However last night I did it and went and laid on my left side and fell asleep on that side and it made a BIG difference. Nobody reported any noisy...
Could I maybe do some in the daytime? Does anyone do enemas in the day? Are they as effective? I work in a noisy place so the noises wouldn't be so noticeable!...
I have successfully been of the pred for nearly a month now which is good. You are right I probably shouldn't miss any nights. Just sick of waking up at 3am and waking my partner up. I'm in the uk...
Hm some good thoughts there guys. I do wonder whether I haven't 100% kicked this flare yet and these are the last healing bits to happen. I don't lay on my left side to be fair so maybe need to try...
I'm nearly 2 months out of a flare. I have stuck with the mesalamine enemas as they work well. I mainly take them nightly tho usually skip one or two at weekend. The nights I take them I have the...
I'm dropping to 10mg from 20mg tomorrow so fingers crossed. Was on 40mg for 10 days, 30mg for 7 days then 20mg for 4 weeks. Then have 10 days at 10mg then 10 days of 5mg. I'm the same as the poster...
It's bizarre as here in the U.K he is a top professor and U.K. Leader in uc at a top university hospital but I find some of his advice really odd. Anyhow, I stopped the steroid enema 2 weeks ago with...
Well interestingly the doc told me as I hadn't bled in a couple of weeks to immediately stop the steroid emema AND the mesalamine enema and just taper the pred. I absolutely do not feel comfortable...
Ye okay thanks. I think I will stay on the mesalamine enema twice a day till I am well off the pred...
had a fairly horrible flare just before Christmas. I was put on oral pred, a steroid emema nightly and to up my normal mesalamine foam enema to every morning and increase my oral mesalamine to max...
The consultant was on about changing to Pentasa as that would be a better med for my uc but can't see much difference between asacol and pentasa...
I started flaring again before xmas whilst on a maintenance dose of oral and rectal mesalamine. These were upped to the maximum with no relief so was given a course of oral pred and a predsol enema....
Bloods were run on Friday night Quincy so suppose I will find out in couple of days for those but will ask for stool samples to be done tho hard to find the stool from the blood at the mo!!...
Ye was thinking about that. The problem is in all honesty the movements don't stop!! I am currently going to the loo about every hour or so mainly just to strain and pass a bit of blood so I can't...
I was prescribed predsol enema couple of days ago as having quite a bad flare. I was taking asacol foam 1g enema but that wasn't making a huge difference. The predsol was given to me as a step before...
I'm in the uk and I left with a prescription the day I had my colonoscopy and was diagnosed. I had the medication that day. I find your doctors responses odd to be honest....
Different people have different views on it but it helps me loads. Esp whilst I am waiting for meds to kick in....
Anti diarrhea medicine. Slows everything down a bit. Helps me with the urgency....
It's grim. I really feel for you. I know not all folk like it but have you tried Imodium or similar. Works well for me in emergencies...
Okay thanks for the advice and thoughts guys. I did wonder about infection as my uc symtoms are not as bad as prev flairs but I feel worse than ever. Funny old thing is uc. Not in a ha ha way tho!!!!...
Just picked up the prescription.. Seriously these pred retention enemas... I am actually supposed to hold this in for any length of time???? It's 100ml of liquid!!!! Surely that's too hard to hold in?...
40mg of oral pred for 7 days then a long taper down (3months)...
Yes on my prev flare last year I had oral pred, no emema. This willl be my first time using a pred enema. With prev flares whilst symptoms were horrid, I generally felt okay. This time I feel...
I have been flaring quite badly for a couple of weeks. Have had about a year of remission on 2.4g of oral mesalamine and 2 applications of a mesalamine foam enema per week. My flare this time seems...
My diagnosis sheet said mild to moderate left sided uc involving rectum and part of sigmoid. That was when I was diagnosed about 10 months ago. I was started off on 2.4gof oral mesalamine which...
Left sided distal uc. First time in using ememas. Better response from them than 30mg of pred! Symptoms before I started pred and enemas were urgency, blood, mucus, not formed stools. When that flare...
been tapering slowly off pred and finished that 2 weeks ago. Been on the foam mesalamine enemas for 5 weeks and they have made the biggest difference. Not the pred. Last bits of blood went about 2...
U.K. Here too and have the foam ones. Come out really easy with one squirt. Can you seen about foam ones?...
Ye thanks guys pretty much what I thought. 2 days on from My post and things are as good as they have been in a long time so don't see the point and terrified it sets me back. They didn't actually...
Think they wanted me to have another flex sig as oral mesalamine was no longer working and I had been flaring for 2 months. They only agreed to give me enemas if I agreed to another flex sig. That...
Had flex sig in June 2015 when diagnosed. Persistent flare started Dec 2015 and I was told to up my mesalamine which didn't work, was then given 2 weeks worth of mesalamine enemas which started to...
I took a double dose last night so 2g. I have enough to alternate 1g one night, 2g the next night until my apt with professor so will continue like that. God they work quick for me! Today has been...
Thanks guys. All very useful. Today is full week in of salofalk and fingers crossed this morning has been as close to normal as it's been in a long time so fingers crossed!!!...
In the morning it's all a bit mushy stool wise but I think that's also mixed up with the enema. Usually later on in the day I will go again and the stool itself seems normal size and shape etc but I...
I have a flex sig at end of month to determine way forward. They just seem so reluctant with the enemas. They preferred I went on pred than upping the enema when flare started 2 months ago. I had...
I am in the uk. I am towards the end of a persistent flare. I am left with some bright ish red blood daily and some urgency mucus. Everything else is fine. I am tapering of pred but to be honest...
The leaflet says each measure contains 1g of mesalamine. Normal dose is 2 measures which equates to 14 measures so 7 doses. My prescription states 1g mesalamine measure to be used per day...
I have (reluctantly!) been given a months worth of salofalk enemas to help get rid of the last bits of a persistent flare. I am tapering of pred and tbh since 30mg down it hasn't really done much so...
I've been on Octasa since my diagnosis June 2015. I was told Octasa was the brand they offered and it was no different to any of the other brands. It worked within 5 days but unfortunately have had a...
My issues are similar. I have made another 2 calls to the ibd team today asking to supplement with rectal meds as I am tapering and they have said no!! I can't believe it. Am I missing something? I...
I am the same at the moment. On 30mg of pred and still bleeding and mucus. Everything else is pretty normal though. Waiting to hear back from ibd clinic as to way forward. Do you take other meds as...
Thanks. Having a bit of a nightmare with this now. I put myself back up to 30mg of pred as still bleeding and urgency. I am now 5 days into 30mg and there is just no let up. Things aren't awful but...
I had one about 7 months ago. I opted for no gas or sedation as wanted to get straight up and out. It was fine. Not painful. Uncomfortable when they did the turn to the other side but more a bloaty...
Yes unfortunately. Mainly blood/mucus explosions. Once in bed. Once as kids couldn't get out of toilet fast enough so ran into back garden (oh the shame) and once at work but had actually made it...
I got my results straight away (also England) whilst I was still lying on the bed!! So meds were tailored as to where the inflammation was. I know you will have to maybe wait a bit for biopsies but...
They won't go down that route without another flex sig. I only had one 8 months ago which showed mild inflammation on the left side. So maybe something has changed since then but will have to wait...
Currently on max dose of mesalamine and I have another week of mesalamine enemas left. 40mg and 30mg were fine on the pred. It's now I have dropped to 30mg the bleeding has returned. I am supposed to...
So been on a course of pred for few weeks now after stubborn flare not responding to enemas. Started off at 40g for 7 days, then down to 30g for 7 days then 20g for 4 weeks, then 15,10 and 5 for 7...
Thanks for input. Still not decided as to what to do. Left another message for ibd team saying I approciated the professors view but could there be another way forward. The past 2 days have been...
Ye I was diagnosed with uc whilst he the consultant was still doing the sig. He talked me through the areas of inflammation as he saw them and pointed out the little ulcers. They were very clear. I...