Just had my final loading dose yesterday - I was told I should see the full results within 2-4 weeks of that. Honestly, and I don't want to tempt fate, I've tolerated it much better than Remicade...
I have had 2 of the 3 loading doses, currently on 20mg of pred.. honestly, I can't really say I've seen a massive improvement. Perhaps a little bit of an improvement. My IBD nurse said her patients...
I used to eat lentils all the time prior to UC, but if I have them now they are one way ticket to gut ache. They seem quite tough on the digestion!...
Hi all, I was just curious about a technical question - what determines whether or not you are suitable for a j-pouch? I really can't consider life with surgery at all, but the thought of having a...
I have heard they can test remicade levels, but as far as I can tell they haven't tested them, nor do they intend to. Not entirely sure why, I will ask about it. I've already tried Imuran and was...
Hi all. I have been flaring constantly since December of 2014. I was hospitalised back in January and given a dose of IV steroids followed by a course of oral steroids and started on Inflectra (a...
Looking for alternatives if remicade doesn't work out. Anyone in the UK tried LDN? If so, how did you get it? I can't imagine my GP prescribing it, not that I've asked. Did it work? And what dose did...
I'm so torn on this topic right now. UC is a disability, there's no two ways about it in my eyes. I don't want to be supported by the state, but mid-November I took some time off work to really get...
Yeah, I thought undigested food was a simple product of transit time.. but even when BMs are spaced apart often it can be a lot of undigested food in the end, though. Hence why I was somewhat...
Hi, It is hard to tell if there is any improvement yet - as I say, stools have been very variable and I also am on a high dose of pred. Last time I was checked albumin levels were normal, but I will...
Hi all, Need to get my thinking straight and some advice if possible. I was admitted to hospital on the 29th of last month as my UC had been flaring uncontrollably for almost a year. I was...
Yes it is hydrocortisone. I have been told the choice will be 6MP, Remicade or methotrexate because I was intolerant of azathioprine. Right now I have developed a severe cough and the left hand side...
Hello again all. After a long delay due to bed shortages I am in hospital. It is my third night of IV steroids and I have received 9 100mg injections.. and so far have seen a little improvement....
Thank you for your kind prayers. I don't think anyone could ever convince me on surgery. I respect that people have their reasons for opting for it, but I can't see it myself. My GP told me that'd...
The problem is the NHS just isn't equipped to deal with chronic illness. They can patch you up sure, but trying to deal with them on a long term basis is arduous in the extreme. Frankly I wanted to...
I actually wasn't really joking, I feel in the same boat. The medical profession is so focused on keeping people alive it takes no time to examine what the quality of that life actually is; and the...
Hi all, As some of you may remember I posted about IV steroids awhile back but I have been putting off going into the hospital as an in-patient hoping to see some improvement in my condition. I even...
How far has medicine come? Well now you don't die, you just live a Hellish life instead. :smilewinkgrin:...
You're on remicade - that is an option that has been discussed. How do you find that?...
I have tried Pentasa (mesalamine) both oral and rectal, oral did nothing, rectal just prompted more of the D. Then I moved onto Pred which controlled the UC reasonably well but the symptoms came on...
I certainly did try Azathioprine - and the combination of prednisolone (20mg) azathioprine (100mg) and oral iron ended with me being rushed to the hospital in an ambulance with uncontrollable...
Well I worry that I am steroid refractory myself as oral steroids while they did make some small term gains at around 30mg (reduced bowel movements to twice a day, mostly formed but with mucus) did...
Hi all, I just got off the phone with my IBD nurse who told me that my condition has worsened to the point where they want me to come into the hospital as an in-patient and spend 5 consecutive days...
I bought some direct from their website and had no problems, shipped fine here in the UK. As for whether or not it actually does anything, too early to tell yet I suppose....
Hello all. I posted some weeks ago about my situation, but I will quickly recap. I have been in a flare since last December, and was diagnosed with UC (at least left hand sided, probably pancolitis)...
"Ummm... I don't know why you'd want to move on to the harsher drugs without first trying a mesalamine enema." I haven't been offered the choice - and at this stage of the game, I'm not really sure...
Thank you all for your advice. I've looked into the paleo diet and I am trying to move towards it, but I've been vegetarian all my life so it is quite a 180 degree turn to start on such a meat based...
My concern with that is, I've already been on the pred for 4 weeks already, if I go back up to 40 or even 30, that'll be another 6-8 weeks, that seems like a long time to be on a high dose of...
Hi all. I wish I could meet you under better circumstances - but I'm sure the story will be a familiar one. In December of last year I began to feel unwell, but I just put it down to Christmas excess...