I don't have bad symptoms , occasional cramping and only one to two somewhat loose stools in the morning. But I didn't have bad symptoms last time I got scoped in may and there was extensive advanced...
Hi ! I haven't posted in a while. I was on Humera and caught cliff immediatly so I took a break from Humera 6 months ago. I had been doing fine but some mild symptoms came back. I went to the doctor...
Hello ! I just got over a horrendous bout of cdiff for which I missed two doses of Humira. Right after that my Humira injection for spoiled bc of my fridge malfunctioning and we didn't know how many...
So .... The last time I took Humira was June 30 about a month ago. I skipped the dose two weeks ago per doc instructions bc I had cdiff. Anyways I'm done w the antibiotics. Yesterday I was supposed...
I need encouraging news. Anyone get rid of cdiff after just ONE course of Vanc/flagyl ? I'm driving myself insane reading about the difficulties and complications. Everyone's hard long journeys make...
I had to miss my last dose of Humira last week because I had a GI bug. It turns out I came back positive for BOTH cdiff and a parasite called cryptosporidium !!! Gross. The health dept called me to...
I am now diagnosed with cdiff :( currently trying to treat at home with both Vanc and flagyl and isolating myself from my children who are 4y, 2y and 3 months. It's very sad and hard. I feel like...
I am cdiff positive :( they didn't admit me bc I'm hydrating well enough with Zofran to help w the nausea I'm so sad I have cdiff. Going to be started on Vanc and flagyl, any advice what to do about...
I caught a horrid horrid stomach bug. Lots of painful cramping and diarrhea and vomit. Anyways I called my Gi to let him know but they just ordered stool cultures. These won't come back for days. My...
So I started Humira June 2. Gonna take my fourth dose this Friday. When started on it I was at 30 mg prednisone. Finally tapered to 2.5 mg and my symptoms came back ! Ugh. Called the GI doc and he...
Just wanted to follow up. I'm going to do my third dose of Humira this Thursday. As many of you know I've been flaring since last November while pregnant--initial diagnosis-- and treated w steroids....
It's Ramadan and I tried to fast today. The bowel rest was actually pretty good for my UC flare ---the problem is when it was time to break the fast this evening I was so starving and otherwise...
Verucasalt2.0 Lol that sounds like something that would happen to me ! 😳 Just curious how long have you been on humira ? How long did it take to help ? I'm getting tired of my nightly painful hours...
I took it. It's all in Gods hands now....
I am scheduled to start humira tomorrow. I'm freaking out about the side effects. I'm 34 with a newborn, 2 and 4 year old. I need to live a long life for them. If it was just me this decision would...
Thanks for your responses and empathy. NSSG you're right I did want to avoid going up to the biologics but now seeing that I'm refractory to 30 mg prednisone I'm now open to them. My GI doc wants me...
I have not had a steroid free remission since the diagnosis in November. Been on steroids since January and other than 2 weeks after giving birth in early April I have not been off of them. Despite...
Got a bone density scan yesterday and my T score was -1.6. I'm 34 and workout , eat calcium. But after 7 months of prednisone , a pregnancy , and 5 weeks of breasfteeding I guess I shouldn't be...
You're not alone I'm def worse after my scope from Thursday. It's a holiday weekend and I haven't heard back yet from the GI office but I'm considering upping my prednisone even (which I never do...
IPoop I'm just curious why are you on remicade instead of humira ? I know what you mean re crohns colitis and yes UC is continuous. I think the confusion here is that like more typical of UC, my...
DCJ, yes they took several biopsies , he said he will get the results next week and will let me know if they lean more towards one or the other , I'm guessing part of that is checking for the...
I posted my results in a different post bc I had questions about Humera. I had extensive disease, my whole colon was involved but oddly there were some patchy areas. He labeled me as indeterminate...
Had my scope. There was extensive inflammation. Terminal ileum was negative but there were patchy areas of bad inflammation throughout my colon , mostly transverse and descending to the rectum. Bc of...
I feel like there were quite a few people getting scoped this week on the forum (including me tomorrow morning). Would be nice to hear about people's results and then decisions based on those...
I am too lol, doing my gross Colyte prep now (so gross)...
WG3 did you ever hear back ? Also where are you at on your prednisone taper ? I'm still stuck at 30 so they are now gonna cscope me Thursday and decide officially regarding a biologic ... wish me...
I talked to my doctor. He wants me to come in for a scope this Thursday itself and said he wants to move forward with a biologic at this point. I hope this isn't too fast and that I gave my body a...
Is it unsafe to be at 30-40mg of prednisone like this for weeks now ? Prednisone is so bad for you. It can even increase risk of cancer by suppressing your immune system, all those other things we...
I am open to moving on to immunomodulators or biologics. I have some work up to complete before I get to biologics like a full scope and my immunizations/PPD. In the meantime should I just go up to...
I am on Lialda too but I just started it in late April. Not sure how long it takes Lialda to start working. I'm taking 4 pills a day....
I was put on a rapid taper of 40 for 5 days, 30 for 5 days, 20 for 5 days etc. while my symptoms and bleeding improved they never Quite went away as every morning I have a couple diarrheas and mild...
How much prednisone are you on ? Not having symptoms on prednisone is different than being in remission, the goal is to achieve a steroid free remission. Steroids are worse for you than biologics. I...
Im guessing you were unable to breasfteed, or were you able to ? I need bentyl for my cramps and kinda iffy at this dose of prednisone so I was unable to....
I'm guessing you were not able to breasfteed , or were you able to ? I could not bc its iffy to do it at this dose of prednisone and plus I needed bentyl for my cramps....
Im in such a parallel situation as you , thanks for posting. I'm on prednisone now in the middle of a postpartum flare, trying hard to taper prednisone. Delzicol had been subtherapeutic during my...
I hope everyone hasn't lost interest but I wanted to elaborate a little... I'm not sure if I have moderate to severe UC. I have cramping and diarrhea every morning with blood and mucous but after I...
I am in a bad postpartum flare. My GI put me on a rapid taper of steroids going from 40 down by 10 mg every 5 days. Ofcourse after a couple days on 20 my blood in stool is increasing so I'm going...
So I'm back on prednisone for a postpartum flare. My baby is 4 weeks old and I'm DESPERATE to start losing my baby weight. It's bad enough I can't breasfteed anymore because I'm on a high dose...
This flare is getting a little worse while I'm waiting for these meds to kick in. The last GI told me not to take prednisone just stick w the uceris but I can't tolerate this. I have prednisone at...
I was diagnosed during my pregnancy (gave birth 3 weeks ago now) and was put on delzicol which I have now learned is subtherapeutic dose. I was also out on prednisone which I tapered until the csxn...
I have had 3 different GI opinions all three say something different. I am confused and tired of switching medications. I don't know which GI to go with or trust. Ugh....
Muriel I know exactly how you feel. I am 34 just gave birth to my third child. Was diagnosed during this last pregnancy. Before I got pregnant, just last summer, I was so active. Constantly working...
Good luck ! I hope it's successful for you and that you live a happy, healthy medication and pain free life when it's all over....
Some of you already know my story. I just gave birth 3 weeks agonto child 3. I had been on a 4 month long prednisone taper and tapered off of it the week I gave birth so I could breastfeed. It all...
Thanks for all the advice. I had a terrible yesterday and last night in bed w pain and gave in and took a uceris today. It's helping some. GI appointment Monday. I'm actually gonna start a new thread...
I'm having an emotional morning , my kids are tired of me being sick and are eager for their usual energetic mom. They keep telling me how badly they want me to feel better it's breaking my heart. I...
I bought enough to last me a week until we sort out the insurance issues. Read through the instructions ... My doc had recommended only doing half in am and half in pm. How long do you lay around...
Hello, we have Florida blue (bcbs). I'm flaring after giving birth 2 weeks ago and my doc ordered Lialda and Rowasa to help keep me off steroids. The insurance won't cover either Rowasa OR the...
The biopsies showed moderate colitis and proctitis. And yes you're right they're holding off for the full scope until after the birth!...
I may have had some mild GI issues on and off before my diagnosis (for those new to me I was diagnosed during this pregnancy which is my third pregnancy diagnosed in nov 2016 at 19 weeks gestation,...