Hi Marianne! Where are you in NJ? Where did you have your surgeries? I'm in Rockaway and have been seeing Dr. Sonoda at New York Presbyterian. Did you have your dilations under sedation? How far...
Anyone have issues with an anal stricture BEFORE getting reversed? I'm almost 5 months post j-pouch creation and need to see my dr weekly for in office dilation because the darn thing won't stay...
Hi Keith, Thanks for asking! My appointment went very well. Dr. Sonoda was extremely kind, patient and knowledgable. He spent over an hour explaining my situation and detailing my options. I...
From everything I've read, your experience at Mt Sinai wasn't unique, Marianne. The doctors are great but the hospital itself is not as up-to-date as NYP and the staff isn't great either....
Thanks, 3timechamp! I've heard there are also great surgeons at Mt. Sinai also so I'm wondering if anyone's gone there?...
Thanks for the reply, Keith! I am meeting with Dr. Sonoda at NYP. Have you heard anything about him? Do you think it's worth getting a second opinion from Dr. Michelassi while I'm there? Thanks!...
Hi Keith - Who was your surgeon at NYP?...
3timechamp - do you happen to recall the surgeon's name in NYC?...
This is all such great information! I'm bringing my husband with me to my appointment on Friday for a 2nd set of ears - this process is very overwhelming. I'll be sure to let you know how it goes. I...
Hi Marianne! I am brand new to the idea of surgery and really don't know much about options at all! I've had left sided UC for 18 years. 2 recent colonoscopies show low grade dysplasia in my rectum...
Going for a consultation with a surgeon at New York Presbyterian on Friday for either re-section or colectomy. Any advice on what questions should I ask him? Thanks! :confused:...
Thanks for the feedback, Keith. I'm very nervous about having surgery but hearing that you had a good experience at NYP makes me feel better!...
I have a consult scheduled with him for a resection or possible colectomy. Has anyone used him before? Thanks!...
Thanks for the info, John! Does it matter where the low-grade dysplasia is found as to what kind of surgery would be needed? Mine was found in the rectum....
I just saw my doctor for my 2 week followup after my colonoscopy and he told me the pathologist saw low-grade dysplasia. He wants me to get a second opinion to determine if it showed up because I've...
Hey Andrina! What dosage of prednisone were you on when you transitioned to uceris?...
I was wondering if anyone switched from prednisone to Uceris? I know the long term side effects of prednisone are evil so if I was able to taper down to 20 mg of prednisone could I switch to Uceris...
My doctor is currently appealing United Healthcare's decision to no longer cover AsacolHD. In the meantime, he is having me try Delzicol. I'm currently taking 6 AsacolHD tablets per day. How many...
Just wanted to give an update...I was on 40mg for 6 days, then 30mg for 2 days, 20mg for a day and then 10mg for a day. 10 days in total and I am out of my flare and the side effects of the...
I was on the verge of my ongoing (6 week) flare up getting really bad so my GI put me on 40mg of Prednisone. I started on Monday and by yesterday afternoon, my symptoms were practically gone. The...
I've been flaring for almost 6 weeks. Previously, I was on Asacol HD and Canasa once a week to stay in remission. When I started to flare, my doctor added Uceris and I started using Canasa nightly. I...
I am currently in a flare. I've been on Uceris for almost 3 weeks and it's working but extremely slowly. I've also been using Canasa suppositories every night and taking my 6 Asacol HD every day. My...
I was on Uceris for a little over a month. It helped get me out of my flare and I had no side effects like when I was on prednisone. There is also no need to taper since Uceris is non-systemic. I...
I've been on Uceris for almost a month and I can't believe how quickly it helped me. I noticed a difference within a couple of days. Less urgency, gas, more formed stools, etc. I'm almost at the end...
When I have a problem with gas/bloating while using enemas, it's because I'm in a flare. I find that when I take Activated Charcoal capsules right before I do the enema, there is definitely less gas....
I'm sure some of you can relate but lately, my stomach feels tense and I can't get it to relax. I'm currently in a flare and taking Uceris which is helping but the clenched feeling in my stomach is...
I am in Morris county and my doctor is Dr. Matthew Krupnick. He has offices in Denville and Dover. I highly recommend him! I called him today with a question and he called me back in less than an...
I was/currently am on Asacol HD & Canasa...
I've been taking it for a week and it's made a big difference. My doctor said the suggested amount of time to stay on it is 8 weeks but since I'm noticing improvement so quickly, he's only going to...
Hey Josh, Still doing great! Not 100% yet but I only started on Wednesday and am almost back to normal-- for me anyway! I haven't noticed any side effects either, which I'm relieved about. Like...
It's been a little over 24 hours and I already feel significantly better. No urgency or running to the bathroom - at all! I'm also no longer nauseous, in pain or gassy. I really cannot get over how...
I just started taking it today. Luckily, my dr had a bunch of samples so it's enough for about the next 3 weeks. Hope it works!...
I switched from Asacol to Lialda back in November with great results. I was in remission and switched just for the convenience of taking less pills every day. When I was on Asacol, I was taking 4...
ugh, i am having a REALLY hard time. it's making me so nauseous. i'm not really good at drinking fast so i end up tasting it too much. i'm practically gagging. i think i've only had about 1/2 and i...
i have to do this prep today for my colonoscopy tomorrow morning. i'm dreading having to drink so much of that stuff! in the past, i've used the fleet prep but this time my dr. prescribed this one....
I also agree with Leslie. It was a real eye-opening experience. I'm so glad I go the chance to participate. It was great meeting everyone too!...
I live in Rockaway and see Dr. Matthew Krupnick. He has offices in Denville & Dover. I really have a lot of confidence in him. He answers all my questions and I feel very comfortable with him. I feel...
I'm going! I live in Northern NJ so I'm renting a car. I'm really interested in the opportunity to hopefully make a difference. I'm also looking forward to meeting other HW members!...
i also got a check from Brandware yesterday but for only $5 :sad: i just went on their website and saw the companies they work with and one of the pharmaceutical names was Shire, which is the name...
I got a phone call from Michelle also. She is actually from a 3rd party company hired to arrange the meeting. She mentioned the name of the pharmaceutical company but I forget now. I said I would go....