The whole colon being cobblestone when I look up uc it says Crohn's is cobblestone not uc...
Hi all. I just read my pathology report from my colon removal and this is what it says. "Opening reveals dark tan to focally tan-red, predominantly flattened colonic mucosa with a finely granular...
I hope you have a speedy recovery. I have first Aug 6th....
I just found this post. I'm so sorry. What did you find out with the June appt?...
I have been a victim growing up with all the models that everyone thought was beautiful and me not measuring up to it's really hard one young girls and I would assume boys also but I know girls have...
I can't figure how to paste the image in here but have you seen the American Eagle ad with Gaylyn Henderson with her ostomy bag. They are showing real women with all different body types and showing...
Well they scheduled two appointments for me for July 23 without even seeing if I was available those days, I am but I never had doctors schedule me with out asking me let alone 2 appointments. I am...
Looks like tentatively August 6th is the surgery the problem having the endoanal ultrasound scheduled they are having a difficult time scheduling that they are the only ones that do that ultra sound...
I saw you raynaud's. Do your fingertips really get blue/darker or completely pale? They can get almost black at times. Just touching something cold causes pain. I've had Raynaulds since 1978 so a...
Thank you so much this is so helpful. What is WOCN? How long after surgery will I be able to take care of myself I'm a very independant private person and would rather take care of myself then having...
I took everyone's advice and after talking with my prior Dr. I have changed my flight to NY. Any other advice, insite or whatever is truely apprecaited. Thank you all for your help....
I'm sure there are lists out there, but mostly you need to ask what you're worried about. What do you need to know in advance to feel better about the prospect of colorectal surgery: worried about...
Chromoendoscopy sounds smart, they going to do more biopsies?[/quote] Now not sure about the blue dye my current Dr said he talked with others and with how excensive my dysplasia is it wouldn't do...
I saw you raynaud's. Do your fingertips really get blue/darker or completely pale?[/quote] They can get almost black at times. Just touching something cold causes pain. I've had Raynaulds since 1978...
Anyone in the Rochester NY area have the surgery and recommend a surgeon?...
is there a list of questions on here somewhere of what to ask my surgeon before hand. What I need to know about....
my prior Dr who moved called me back tonight and she recommends another colonoscopy with the blue dye never had that done but she really thinks I need to have the surgery sooner rather then later so...
Your story sounds a lot like mine. I never concered the surgery route. I seemed to manange well didn't really take any medication for years when I felt like a flare I was able to manage by altering...
I actually am going to Rochester IBD center. Where do you live because they are about 90 minutrs from me also but nobody near me is any good in my opinion the one in my town wanted me to do my...
There were two pathologists that stated all was low grade dysplasia, what concerns me the most is just one year proir no area was dysplasia to the entire colon having it. I still think I can wait til...
Thank you all for your responses. I did see the report and it said all 29 samples have low grade dysplasa. The reason I want to wait til November is I have a cruise booked with my husband and I...
Hi all, I had a colonoscopy in May 2017, all was fine. I had another one this May 9th I waited at least 2 weeks did not hear any reqults so I called and they sent it out to another lab I thought no...
Thank you I did check out the web sites along with the airlines I might use and the airlines just require a Dr's letter or rx from Dr. I'll ask my Dr. when I see them in September. One airline I use...
Thank you Michelejc, if you don't mind me asking what did your Dr. write and do you have to get a new letter every year? I'm NYS upstate NY. Thank you so much for your help the anxiety I'm having is...
Thank you...
I travel a lot because my husband is up north but my Mom down south and I help my Mom out most of the year. I was just wondering if anyone has gotten a letter from your Dr for an emotional support...
I had a GI that didn't seem to know anything about ulcerative colitis I looked around found an Ibd specialist and what a difference in care unfortunately her husband also a dr got a position in...
I received a letter from my insurance company that it was going generic and to get a new script from Dr with dispense as written so not to get generic....
Thank you for your reply. Now I'm a little worried. I try not to let uc dictate my life so I think I have just become ignorant to symptoms, as long as I know there's a restroom somewhere close I go...
In May my Dr. ordered a cdiff test just as baseline and low and behold I had it. Today I had a colonoscopy and she did a Cdiff test and it was positive again. I didn't realize I had it either time,...
I'm curious on if you have the anxiety on taking pills do you think you could go with needles? To me needles are worse and my daughter has type 1 diabetes for 16 years so I know needle and that would...
Stick around you have good information. So what's your treatment now. Good luck to you....
Hi yes my Dr is concerned he want me to check it every month, I didn't really notice ithe had sent me a message in the portal. My urine is darker but I thought that might be the vancomycin I just...
I hope you find the answers your looking for....
I was above 60 on all my eGFR prior to September. I went back on Asacol (after being off it for a few years) in September changed to Lialda in May. I had a test done in Dec and it was 58 didn't think...
I had a CT scan when I went to er in Sept and they had e drink stuff and it wasn't bad, usually the colonoscopy prep drink I just get to my lips and I projectile vomit, but the stuff for the CT scan...
I agree I'll try this and see if it makes any difference but to tell the truth I didn't even realize I had c diff she said let just do the test, I have dealt with flares for 20 years without telling...
I got metrodonidazole the first drug she prescribed my insurance wouldn't cover....
Thank you useful information. She also did a c diff test and to my surprise it's positive...
I've had uc for 20 years it was always listed as pan but I haven't been to gi in about 5 years and I had a bad flare in September had to find a dr and the one I found didn't know much I don't think...
I saw a new Gi today who specializes in Ibd and I felt like she knows what she taking about. Anyway she asked if I had a bone density test done and I have and I do have some osteoporosis and...
I had very high white blood count 18 to 20 and plates count for a year I really didn't think it was related to my because I never have normal BM I was sent to cancer dr and had so many test don't no...
I was diagnosed when I was 30 and shortly after not really sure how long I had to have my gallbladder removed. symptoms were somewhat what you are saying wuthbthe pain in the shoulder going towards...
I'm not going to call my current Dr. I think I might try to find one here in FL because I'll be here until end of April. Anyone knife any good drs in the Fort Myers area?...
So do you think it's not uc what do you think it is. Before the pathology report he listed me as uc after it he listed me as ulcerative procolitis. The colonoscopy was also done after my hospital...
That's all I felt he didn't take enough biopsies....
This is the result of your recent colonoscopy and endoscopy. Final Pathologic Diagnosis 1. Random right colon biopsies: Moderate to marked crypt distortion with no evidence of active colitis,...
What do you think it is? And I'm not taking budesonide any more only had 3 weeks of it and it was pill....