I've kept a food diary for each flare I've had, and the foods which have affected me have been different each time, so 'a good UC diet' might not even be consistent for one person... Having said...
I've discovered almost everything that's ever helped my UC through this forum, in one way or another, and I've always got the impression that people here are very kind and helpful. Also funny, that...
My husband is about to start immunotherapy for cancer. I am his sole carer. The drug he will be given has various autoimmune diseases listed as potential side effects: it shuts down PD-1. The leaflet...
My flare is almost asymptomatic now apart from a tiny bit of B & M on the TP, so I thought I'd give this a try to finish it off, and took a 500mg capsule of Qing Dai powder yesterday. And I've had...
I've been wearing foam earplugs all night every night, and often during the day too, for the last ten years with no ill-effects. (I live in a city with a lot of building work, noisy neighbours etc)...
It would be great if it encouraged the NHS to start offering or even trialling FT....
I've been plagued by this too. Someone on another forum recommended Mane n' Tail which is actually a horse shampoo! - but it is definitely making my sad flat hair less limp and giving it more volume....
Interesting. I've got both cloves and clove oil in the house. What's in your capsules - is it just powdered clove bud - and how much are you taking?...
I think my flare was on its way out, but then serious family illness happened + no sleep + massive anxiety. Now I'm at 3-5 BMs a day (two of those are usually formed), sometimes blood, some not, only...
imagardener & clo: I'm not in the US & Benadryl has different content here, but I just looked up OTC meds sold here with diphenhydramine and there are actually some sleep aids with it, so I'll hunt...
geezernow: thanks for the good wishes, always appreciated. :) I think my doctor would probably be quite alarmed if I asked for your meds, barbiturates are hardly ever prescribed here! But he's given...
I'm having trouble staying asleep/getting back to sleep after toilet trips in the night. I am practising all of the 'sleep hygiene' blah that the internet recommends, but I'm also under massive...
TT: hell no. :) Suspect overindulgence at Christmas might well have contributed to the flare. The diet does feel rather like I should be getting my mummy to feed me it with a spoon, but it's helping,...
So hello, folks - I'm having my third flare. I have fairly mild (touch wood) proctitis and there's been a lot of remission over the seven years since I was diagnosed. I'm allergic to mesalamines and...
I had an extraction (also after a tooth snapped) with no antibiotics and just did frequent mouthwashes with a strong salt water solution for a week, and the socket recovered well. The dentists were...
Maybe try white rice? Brown rice might be too fibrous for you atm, if you're eating a lot of it. I noticed a whole lot less gas since I ditched wheat and cereals, so it's worked well for me. Hope it...
:D thanks soy. I will do my very best to ensure its ass stays kicked for as long as possible!...
worriedUCer - I had no idea flares could be short, it's a huge relief to know that it might really be over for the moment and I can go back to my morning college class when it starts without spending...
So my weird flare which started on the 22 July, apparently triggered by the 'push' megadoses of vitamin D3 I was prescribed, seems to have got better, touch wood. I'm completely confused by this. At...
I laughed out loud at the pooping-with-bears part. Hooray for a great vacation and well done for going!...
chicken wings: I'm vaping nicotine, taking VSL & l-glutamine morning and night, & sticking to a strict diet - could all be snake oil I guess but things definitely seem to be improving. There's still...
I wondered how you were doing. It's great that this is working for you! And really good to know that there's another option for those of us who can't take steroids. Hope your arsol continues to be...
This time two weeks ago: no appetite, nasty cramps, lots of lying down, three hours' sleep, many uncomfortable bathroom trips of mucus and blood. Today: four little meals, no gut pain, no morning...
Came across this article today on results of tests on herbs traditionally used in Austrian herbal medicine: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3791396/ - extracts were tested, not whole...
Typical foods of the day: A banana (after the l-glutamine in the morning) Breakfast: rice, egg & spinach (with a drop of soy sauce) Lunch: chicken & veg soup (home made, it's got carrots & onions &...
I've now been taking the LG powder for just over a week - 3g in the morning after the bathroom trip(s), & 3g at bedtime with my VSL3. And I'm down to four bathroom trips a day, and two of those are...
I am also NHS and my GP, hospital etc has been fine about giving me printouts of blood tests, sig results, etc. (Well, when their printers are actually working!) I so get you about the food boredom....
I use cheap antiseptic cream with cetrimide in it - the stinging goes away quite quickly. Using TP with aloe vera in seems to help also, as it seems to leave less tiny fibres behind - and carefully...
I found another trial: https://www.sps.nhs.uk/articles/can-acetarsol-be-used-to-treat-proctitis/ - click on the link further down the page to get the Word doc. It looks encouraging! Maybe it's called...
What a fantastic result! Hope the improvement continues and you get to eat all the tasty foods more often :)...
jessa33: hope you're doing okay too.:) My appetite abruptly reappeared on Sunday and I ate a bowl of rice & took some l-glutamine - only 3g, but I haven't had a bathroom trip since! Not quite what I...
I used to make myself mashed boiled carrot-and-lentil 'baby food' with a spoonful of turmeric when nothing else would go down & soup was too much fluid for me. Quite tasty....
When do you find is the best time to have it? Morning, evening, before food, after food?...
Thanks Jessa! Mine should arrive on Monday or Tuesday. I've only been flaring for a week but it's already quite bad, so hopefully this might help - fingers crossed. I'll try to add to this thread if...
Just bought some, I'll try it :) How are you taking the powder? eta: and what time of day do you take it?...
Old Hat: I shall mention that to my GP, & thanks for the good wishes :) Tropitude: when I was in my last two-year-long flare I tried nicotine gum and then vaping, but neither of those worked. So I...
juststud: not so sure about easy, but thanks for the encouragement!...
DutchessCountyJim: the knee pain is in both knees & it hurts to climb stairs, or squat, but neither knee is inflamed, and I've got no other joint pain. (Yet!) I got them checked out by a physio and...
notsosicklygirl: I wondered that too. I have been very slack with the nicotine over the last couple of months. But there was no gut pain or anything like it until I had the big vit D doses, so I'm...
D3 20,000 unit capsules, one a week. I've just had the three doses. Obviously I shan't be taking any this week! But I am most definitely having a flare now and I don't think it's going to be easy to...
I haven't posted here in some time as I've been happily in remission for 3 years, during which I have not had one single problem with my bowels. Anyway, recently I was having some knee pain and my...
NiceCupOfTea - am also NHS & same here, the GI specialists are uncontactable and I usually have to phone the hospital numerous times to get hold of any of the nurses, who never return calls....
Hi, I also have UC and menstrual migraines. I've found beta-blockers good and with minimal side-effects - dry eyes can be a problem, but are easily fixed with drops and worth it for less migraines....
geeker - yup, they are pretty nasty. I don't think I'll find it hard to give up this time. I skulk off into the woods and hide in a bush to have mine, because of the shame of my polluting ways :D...
I'm an ex-smoker. I was diagnosed in October last year but I've had UC for two years. I turned out to be allergic to mesalamines and didn't fancy steroids for various reasons, so I cut out wheat,...
I've been taking VSL#3 packets for four months - it was recommended by a hospital consultant. It's definitely helping me. I'm down to 3 normal-consistency BMs a day (which is the same as pre-UC days)...
No idea really. I don't drink, I don't eat junk food, nobody in my family has ever had stomach problems. I originally thought the blood and stuff was a reaction to the mefenamic acid I was taking for...
My hair also fell out quite drastically on the same dose of mesalazine suppositories, and I had a bunch of other scarier reactions, too. No longer taking it. Hair loss is listed as a rare side effect...