Hello! I've been taking isatis cooling for many years with great results. Recently I haven't been able to find it for sale anywhere. So I've lowered my dosage to stretch out what I have. Well, within...
I would agree, but it just seems odd to develop it after you stop prednisone. In fact, I had some slight moon face when I first started this current round of prednisone, when I was taking 40mg. It...
Hello all! I recently started entyvio (only one infusion at the moment). Hard to tell if it's working as I haven't been flaring since June. Isatis cooling and prednisone seem to have been working for...
Aren't those similar to Remicade? I thought if you failed to react to one type of Biologic, you will most likely fail the others as well. Hence why they want to try Entyvio. I'll ask my doctor about...
Glad to hear it's working for you! Hopefully you continue to improve. I hope Entyvio works for me if I end up taking it. I started with suppositories when I was first diagnosed 5 or 6 years ago. I...
I failed due to the medication not working any longer, at least not enough to provide relief. My symptoms are very very mild at the moment which is nice, but I have terrible side effects on...
My recent tests confirmed Remicade is no longer effective for me. My doctor has given me two options at this point. She said I could take an immunomodulator in combination with my Remicade since I...
Thanks for replying iPoop. I thought I had the antibody test done (or does the test check both antibodies and levels?). My doctor did not give me any info about my test results, just to get it...
Traveling always seemed to aggravate my UC when in remission, but it usually calmed down after a day or two. Hopefully that's the case for you! I also have to watch my salad intake....
About 3 weeks ago I had a blood test done to check my Remicade levels to see if the medication has failed me completely, or if I just need an increased dosage. I had the test done about 10 days after...
The past year has been such a roller coaster for me. Last July I was hospitalized for the first time due to a flare. Over the next 2 months I was hospitalized 3 more times due to not being correctly...
That's awesome! I've been dealing with a paticularly stubborn flare myself, and it seems as if remicade isn't working anymore. I just started isatis cooling with good results so far! If you don't...
I recently began taking isatis cooling herbal supplement after reading that it has helped some people with UC. While I can't say for sure yet (due to being on prednisone as well) it does appear to be...
My understanding is CD can affect the entire GI tract, including the colon. Maybe your CD attacks the colon more? Someone more knowledge on CD may be able to give a better answer. I've had a fever...
I really hope it isn't CD! I sort of always comforted myself about UC that if worst comes to the worst I would just have my colon removed. Remicade only worked for about 3 to 4 months. I'll probably...
@noodlesnoodles I've been on and off PPI's throughout my life. They put me on Protonix at the time, I currently still take that. At the time I was having terrible middle to lower abdominal cramps,...
Thanks for all the input everyone. By the time of the colonoscopy I had been hospitalized 2 prior times within the previous 3 weeks. I was treated with various antibiotics both times, so I doubt I...
Here's info in my biopsies. The colonoscopy more or less mentions moderate inflammation found throughout the colon with moderate wall thickness in the sigmoid and rectum. DIAGNOSIS A. Small...
Last year when I was very very sick with a flare I had a colonoscopy and endoscopy done as a CT scan indicated my entire GI track was inflamed. The doctors thought I had Crohn's on top of UC. I was...
I'm on Remicade and 1200mg of Lialda....
In January, during my yearly check-up, some of my blood levels came back low or near low. My PCP was mostly concerned about my WBC being around 3700. I was to get follow-up bloodwork in three months....
Thanks all! I'm not sure why my doctor didn't order this. She's going to be out of town this next week, so not sure if I'll be able to get the test done. Going to look into it....
Good to know, thanks for the advice....
@DBwithUC, It is most likely anxiety. I forgot to mention, they did do bloodwork but I'm not sure what exactly they were checking for. I think she mentioned WBC and electrolyte counts....
Hey All! So I started Remicade last October after a horrible flare that put me in the hospital four times. It worked, and allowed me to come off pred (thank god). I've been doing well on it up until...
I understand. Hopefully things improve, but thank you for the info and advice!...
@iPoop I'd say about 3 1/2 months. I was on 40mg of prednisone for 2 months, then tapered about 5 mg every week more or less. When I reached 10mg, I started doing 2.5mg every 3 to 4 days. Do I have...
Hi all, I was on a relatively high dose of prednisone for about 2 months and tapered down for about 6 weeks. I finally got off the drug about a week ago, but im experiencing some terrible withdrawal...
Sounds terrible! :( Thankfully I get to taper after my first infusion. Hoping it will go well....
Sorry to hear you had such an awful time with it! Hopefully I will lose the weight quickly. Last time I tapered, I was back in the hospital within three days. So the doctors want me to wait until I...
Sodium intake is about the same, and doesn't appear to be an ingredient in the sweet tea. I can try to reduce the amount I have though....
Hello all, I'm back! I doubt anyone remembers my previous post, but I'll give a quick update since then. About a month ago I was in the hospital for a flare and my GI doc team seemed ready to remove...
@iPoop, The green vomit and stool occurred upon my first hospitalization. After about 2 days in the hospital it subsided. I was on antibiotics for those 2 days, but theytook me off when I tested...
I'll be sure to do that. Thank you. I'll give remicade a chance, and my family and I want to get a second opinion before any surgery is done....
@notsosicklygirl They are working on getting me to try remicade (running test to make sure I'm a canidate). But the GI doc said it would take weeks to go into full effect so there would be no use if...
I had my stool tested about 36 hours ago. I was also tested twice during my other hospitalization. It was negative then too. They currently have me on cipro, I guess to just make sure there is no...
I was tested for c.diff, it was negative....
I want to give a short bit of back story before I get to the main topic. I was diagnosed with Ulcerative Proctitis about 5 years ago. Usually my flares were mild and passed on their own. Only once...
@iPoop, I agree something is not working. My old doctor did not seem concerned if it was only a little blood and no other serious symptoms; hence why I recently got a new doctor. He wants me to try...
@garylouisville, I take the canasa during remission and I started taking a vitamin D supplement this winter, but it didn't seem to do much. @iamagardener2, I had to take a round of antibiotics for a...
Hello All, I have viewed this forum for a long time, but this is my first time posting. I want to give a quick summary about my current diagnosis and then go into what I've recently been...