I haven't been on humira long, but my GI mentioned when I started they have regular blood work to monitor how things are going. That way if you do fall into the percentage of people who get cancer...
I have had very small fevers (~99.3) with my recent flare mostly at night, but sometimes into the morning. The are accompanied by chills as well as an added bonus. At first I thought I was just...
My dr said 4-6 weeks before I should expect any improvements. No such luck for me on that front though. I'm past that and now on to adding more medicines into the mix...
The side effects of some of these medicines are quite scary, but being sick in a flare is also not good long term either either. I was very nervous about starting azathioprine and then same with...
When I was feeling better I used MyFitnessPal to track what I ate and also ran/walked using couchto5k along with the spin bike at my work gym. After all the steroids, it felt much harder to lose the...
I was lucky my first year, I started feeling better really quickly after taking lialda and prednisone. I only had mild symptoms, mostly blood and some urgency, but not horrible. I was in a period of...
I will add a +1 to saying you aren't feeling well and you don't want to get them sick. I've had some yucky colds and said that and people often say how much they appreciate me doing that...
Once I finally catch the triage nurses it's usually a couple of days of phone tag. They leave messages but it's never anything helpful just call us back. I have thought about trying an new GI once...
Diagnosis was Ulcerative Proctitis. I've been on lialda 4.8g since 2014. Presidaone was 40mg with a taper, no positive effects this flare just chipmunk cheeks and awesome neck sweating 😝 I started...
I'm a frequent ghost reader, but first time poster! I had a bad UC flare in 2014 that was quickly controlled with prednisone and lialda. Fast forward to April this year, flaring again.. nothing has...