Mark, I would never make fun of someone with an illness. My intent is to warn people of the goofy remedies and snake oil salesmen that occasionally post in support groups. I have tried some myself....
A friend asked me about UC meds, if I had experience with them. My answer was I am taking the generic Lialda, 4 tabs daily. When I had a flare in 2015 I was prescribed Uceris and it worked like a...
I have also been switched to the generic and before starting, I wanted to see how everyone else was doing. I still have a couple of weeks worth of Lialda. Been on it without issue since 2009. My 90...
During my first severe flare I was prescribed uceris along with hydrocortisone enemas. Within 3 days I experienced great pain relief and less sysmtoms. I have pan colitis. Did 30 day course uceris...
This was sent to my e-mail this morning. Hope it will bring a smile instead of a cringe. Subject: FW: Colonoscopy ABOUT THE WRITER: Dave Barry is a Pulitzer Prize-winning humor columnist for the...
Elpis and Rocker, Thank you for the input. I do think my doc is now rushing me and I'm kind of resentful that she didn't order labs until 10 days after I phoned in that I was having severe cramps...
This new flare came on very hard and painful. I have never had any cramps or serious bloody d in the past and blame(d) the new rowasa. After phoning in my symptoms on 12-21 I was advised to up my...
Sorry q but I am without any doubt the enemas are the culprit making things worse. I was almost completely symptom free until I used the new scrip. The insane disabling cramps again started after I...
Tried my last canasa and found it did calm the storm a bit. Christmas day got bold and took 1/2 enema. Next morning, 2 firm and much less blood bms. Phoned GI answering service to get on call doc to...
I had a great deal of trouble with holding and using the rowasa enemas. I found a small syringe at the pet store, emptied the contents of the rowasa into a paper cup and used the syringe. You don't...
Thank you for going through all that trouble! I really hope I will not have to change docs again. I like my current one it is just the nurse, if she is one, is a bit dippy. I should be more assertive...
Dikid, You are so kind! I am in Arl Hts by the way. I have to admit I was very suspicious of this nurse not knowing about the meds and wondered if she even correctly passed on the info about the...
Thanks Ipoop I won't be able to speak to anyone until Monday unless I go to emergency or something. I don't feel that bad yet. I think the rectal meds made things much worse as I didn't have bloody d...
Thank you for the quick response. I was practically sysmptom free until I tried the newer same brand enema. The 5 plus a day bloody d started about a day later. I will be trying the extra Metamucil,...
Stared a small flare on around 11-25-15. Been taking 3.6gm Lialda religiously. Started my stash generic rowasa and meanwhile had a backup supply ordered. I have never been able to hold more that 1/2...
This took me out of a flare when I was off my Lialda. I think that was in the fall of 2012. Had a really bad flare again in 2013, still off meds but not so lucky with the diet this time. Got a new GI...
Old post from me! I have since been reinstated and did not lose any coverage dispite the fact my oncologist gave false info to social security. That was back in the day when insurance companys did...
I am all for keeping a little mystery in the marriage! My application of meds are private and if my husand is doing the same thing he can keep it to himself. Of course that would never happen. It...
Things will get better when your are on the right therapy. Most have had much of the same problems and had to try other meds or combinations of them. I changed GI's and I'm so happy I've done so. She...
Thank you all for the input! I have not stopped the Lialda, 3 pills daily since 11-2013. I hoped to stay med free with the sunflower/spinach diet (since around 11-12) because of my ever changing...
I was off my Lialda for about a year until a flare in 10-2013. New GI gets me back on Lialda and everything is good until a stressful event puts me in a really bad flare. GI provided me with Perrigo...
Eva, I don't come to this board often but your post made me so happy for you. Ditto to what the others have posted about how glad we are that you are no longer in pain or suffering. Thanks for...
So thats my problem. I did intervals on my treadmill yesterday morning and had to take an hour nap by 1:00pm. I've been mentioning to my oncologist that I'm ALWAYS tired and even had a thyroid test...
I'm new to the enemas too. I'm still having some trouble after 29 bottles already. It helps to put the bottles in warm water to get them closer to body temp. I hope you have great success and get on...
Hi John, I am on ssd for my stage 4 lung cancer that spread to my brain. Compassionate allowance. Medicare does not kick in untill 2 years after you are approved for ssd benifits. You can use the...
Thanks hateuc, you just "cured" my peanut butter craving!...
Sadly, I have discontinued this treatment. I worked up to 13 drops daily and saw an increase in mucus and no decrease in blood. Stuck with it for 3 days at that dosage. Lialda did work in the past...
Hi Proto, Thanks for the quick reply! I did print out your suggestions and I suppose it is time for me to amp it up a bit. Today I'll do 3 drops 3 x. I think it is wonderful that this has worked so...
I've been taking the Telia woo since 11-3 and have not noticed any change. I wonder if I'm taking too many probiotics for this to kick in. 30 million 2 x with 2 drops woo. 1 Reuteri daily with 2...
I was dx'd 2 years after I quit smoking and was dx'd with lung cancer....
The stupidest thing I did was eat clay because it was being heavily promoted by someone one this board. The thing that did work for me was the spinach sunflower seed diet. I kid you not, I've been...
kerplunk, Like many others, things got worse before they got better for me. My adverse reaction time was only about 3 days. A lot of people took longer with their recovery time. I had the same...
Hi Kiss520, I am doing very well on just maintenence with this diet. about 1 can spinach weekly and a tablespoon or 2 sunflower seeds or sunflower seed butter daily. No meds. Thank you for asking!...
Twiggs, I did a google search and a cut and paste from Dr. Weil's web site. Hope this helps. I wouldn't go overbooard on ANY one given food anyway. Take care. Oxalic acid is a natural product found...
My update. This sunflower and spinach diet worked for me! I was off my Lialda and was in the beginning of a flare-D only. After a couple of days on the diet I did pass some blood and after that white...
Ta Da! I am now in the getting better phase, day 8. I'm down to my last couple of tbls Trader Joe's sunflower seed butter. Not sure how much frozen spinach I gagged down. Of course it does go down...
Onecure, Thank you for the shot in the arm! It looks like you are also on the mend. Hope this is THE one for everyone who can do the diet. I started with very mild symptoms, but I intend to continue...
I have also started this diet about 4 days ago. I guess I'm at the getting worse part. Blood showed up yesterday but not today. I cut back to 1 cup cooked spinach and 1 cup raw yesterday....
I am an ex-smoker and had my first flare almost 2 years after my last chemo for lung cancer. Quit smoking in 2006 when first dx'd with stage 2 lung cancer, had half of my left lung removed. 3 years...
This is great news! Discover magazine (Oct 2012 issue) has a write-up on this very subjuct. Others have done this and gone into complete remission. I saw posts on this board dating back to 2009. Hope...
Max Gerson <!-- /firstHeading --><!-- bodyContent --> <!-- tagline --> From Wikipedia, the free encyclopedia <!-- /tagline --><!-- subtitle --> <!-- /subtitle...
lookforcure, Your response is a little worrisome. I am sure others can interpret the results from reliable sites such as pubmed.gov and additional sites that will come up if they are to do a search...
Lookforcure, And anyone else that might be interested.... I don't mean to be a buzz kill but I urge everyone to do a web search on "colloidal minerals" as well as "cancer and iron" and make your own...
Lookforcure, I am so grateful you posted this info. After reading maybe thousands of posts, I must have the mildest form. Never had any pain or cramping and I have been on Lialda only since 12-08. I...