Hi All, I've been doing a bit of research into Phosphatidylcholine and I am keen to try it. There is an enteric coated version sold by PC Medicus that I have been looking at but want to check if...
TroubledTurds - As in any solid food makes the pain and diarrhea worse so sticking to fluids for a few days to help slow it down if possible. About 6 or 7 bms a day and the urgency is immediate or...
The flare is pretty bad, I can't tolerate any solid food at the moment. There's not a lot of blood but just some blood clots with each bowel movement but the pain is bad. It's not quite as bad as ny...
Hi All, Looking for your advice and experience. I am currently flaring again and have been on and off since January, everytime I try and taper off the pred enemas the flare comes back. I am...
Just come back from seeing my Dr and she has changed me from salofalk to basalazide to see if that might work better for me and lessen the diarrhea. She also said my calprotectin came back as 456...
Thanks Quincy, I should have said I've been on pred liquid enemas since my colonoscopy but they don't seem to be working as effectively (I've used them on and off for several months this year) so my...
Hi All, After my colonoscopy last week I have been prescribed salofalk granules 3g a day. Think it might also be called Apriso... I am experiencing some worsening in diarrhea. I've only been taking...
Just to add I was told by my GI that I had ulcerative colitis back in March and have been using enemas since then. At my follow up appointment my GI told me that the biopsies came back as IBD...
Yes it happened to me when I had my colonoscopy in March, I did not have sedation just gas and air which is offered here in the UK. Apparently my colon is very twisty and it got quite painful to the...
Ipoop and Quincy I would hug you both if I could! Your translation is what I needed and is more information than I received from either my GI or my General Practitioner so thank you. I left my...
So I called into see my General Doctor this morning and she printed off the biopsy results for me to give some more clarification as I left yesterday's appointment not even knowing if I had been...
Thanks Quincy, that link is really helpful. Definitely doing more research! Good idea to start another list 😉 I'd been on the enemas about 3 weeks before the colonoscopy. I was told I'd have a...
Thanks Quincy. I'm not sure he has ruled out UC, he said that the enemas probably healed the rectum and sigmoid but couldn't get to the splenic flexure when he did my colonoscopy. What's more is the...
Hi All, Just come back from my first appointment with my GI following a colonoscopy i had in March during which my GI was going to prescribe me oral mesalazine until I explained the reaction to the...
Thanks iPoop. You've given me a lot to think about for my appointment. I had a reaction to the mesalazine enemas so hoping I won't have a reaction to the oral mesalazine, I'm keeping open minded re...
Thanks Yes plan on staying gluten free. Hate going on medication so have started diet modifications and supplements in the meantime. Have you managed to go medication free?...
Hi All, Looking for some advice. I've finally got my first appointment with a gastroenterologist on Monday after being formally diagnosed with IBD during a colonoscopy on the 10th March. I'm...
Yes the basic concept is easy to understand, it's when I start digging into the detail it all gets very complex. Thanks for sharing the information, I'm still reading back over a lot of it to get my...
There are some vegetarian sources of protein with SCD such as eggs, scd yoghurt and green leafy veg. The other sources shouldn't be introduced to early in the diet but they include almond milk,...
Wow this is really interesting, I've been taking a probiotic supplement that only contains lactobacillus strains. I'm definitely going to stop taking them as of today. I'm still flaring so don't...
Thanks IamCurious. I'll have to try Psyllium seed, I'm currently in a flare and on prednisolone enemas which seemed to have stopped working as well as they were in the beginning. I had a reaction to...
Thank you for sharing this information Old Mike. I've just been trying to get my head around all of this information and being new to UC this is a massive learning curve. So it sounds like that once...
My Doctor told me to stop taking medication for it the week of the colonoscopy which I did so that I could get an accurate diagnosis. I think when you have the initial diagnosis this is needed...
Ewa, that's interesting it's being talked about elsewhere. I am also confused why if it's a supplement consisting of amino acids with said no side effects why it isn't sold other than for research...
From what I've researched so far it is in research and not to be sold for human consumption yet unless anyone else on here knows any different. Found some more interesting articles about it though:...
Struggling to find out where it can be purchased from.... wonder if Csantamaria knows of a source? From what I've researched a lot seem to use it for healing injuries relating to tendon and ligament...
Thanks to Csantamaria who referred to a supplement worth trying I think I'm going to try it out. It's called BPC 157. Just wondering if anyone else has any information about this supplement or...
Definitely give that prep a miss next time. That's good news your colon looks completely normal, hopefully the inactive inflammation will improve soon too....
Jane, sorry to hear you've had horrible symptoms taking the suprep. It did take about 2 hours before the bowel prep worked for me although I took something called moviprep. Hope things moved along...
Avocado and asparagus omelette, try and get it to souffle a little under the grill, mmm yummy! Or cut an avocado I half, remove stone and make the holes a little bigger so that you can break an age...
Csantamaria really hope the entyvio works for you and you get into remission. I'm new to UC had a real bad flare in January and have been trying to stick to the scd diet as close as possible and I...
Yes I was allowed to have a light breakfast the day of my bowel prep but it had to eaten before 9 in the morning so I had some yoghurt. It had to be low residue, no fibrous foods. My colonoscopy was...
I've just got a basic kenwood juicer so will have to test it out with the veg. Imagardener good point broccoli hasn't got much juice. Will try some kale instead. Soynomore I've learnt something new...
Fab idea to juice vegetables, I'm currently flaring and wondering what to eat. Going to try juicing some veg, is it ok to juice any raw veg i.e. pumpkin, celeriac, broccoli etc I love my veg and miss...
Thanks iPoop and soynomore. I got into several the Doctor today and he said it's.nasty viral chest infection which should clear on its own in a few more days so no antibiotics. He did say that I may...
Tried to get in to the Doctors yesterday but appointments were full. Woke up this morning with horrible stomach cramps and urgency plus passing blood clots like I had in January. Absolutely gutted to...
Thanks Ipoop, notsosicklygirl, and quincy going to try and get in to see the Doctors to get checked out. Notsosicklygirl you must have been so poorly with sepsis, that must have been pretty scary....
This thread has opened my eyes a little! I was wondering how much to tell work colleagues when I go back to work all they know at the moment is I'm off on sick leave and having investigations done to...
Hi All, I'm newly diagnosed with left sided UC and not on any oral tablets at the moment just rectal steroid enemas. I'm still waiting for my follow up appointment with the Consultant for a proper...
Soynomore thank you for that advice :) something just didn't feel right about the Nurse saying to stop the enemas when I haven't been given anything else to take. Going to pick some more up tomorrow,...
Thanks John, the Nurse knew about Lialda but said it is called Mezavant here in the UK. I've basically got to wait for my appointment with the gastroenterologist before staring oral medication so I...
Fingers crossed for you with the Remicade, if it's a stronger medication hopefully it will get you into remission quickly. Let us know how you get on :)...
Thank you for the moral support Fletch10 :) I don't know much about Remicade other than its a stronger medication. Will you be able to take that long term to get into remission and stay there? I know...
Fletch10 definitely sounds like you had a bad reaction to mesalazine. I am nervous to start the oral mesalazine after my reaction to the enema but will give it a go starting 1 tablet a day as Ipoop...
John and Trixy, yes I'm hoping it's the sulfa I had a reaction to and not the mesalazine. Good idea to try a low dose initially to see if I can tolerate it and then build it up, I'll mention that to...
I have UC up to the splenic flexure diagnosed recently via colonoscopy. The Doctor wanted to start me on oral mesalazine the same day but when I explained the reaction I had to the mesalazine enema...
Phattwoohie, thanks so much for the advice and tips and sorry you are having a similar experience. I didn't realise these enemas could cause so much soreness and irritation! Funnily enough I have...
Thanks everyone for the advice. Yes from what you've said Chicken Wings and Bull101 it must be that I haven't put the nozzle in far enough, will see if that makes a difference. Giving it a miss...
I've been trying to use the Entocort enemas but really struggle with them it's so difficult to squeeze all the liquid out of the bottle and the nozzles are a nightmare. I was able to use the predsol...
Thanks 3timechamp. Seen my GP today and he confirmed that the liquid budesonide enema would reach higher up the colon so he's given me a prescription for entocort enema. Hopefully the pharmacy will...