Oh my NSSG, You sure have been through a lot! Curious if you don't mind me asking, how long was your journey with all the meds before the surgery? Yea, I hear ya on feeling defeated. Sorry you have...
Beave, I actually forgot your question about the labs, sorry. I actually have labs every 2 weeks. Did a specific lab for the Humira and everything was good - except my body's response. Your #1, being...
Beave - Uceris foam and Colocort enema's - neither changed a thing. Hard to believe but true. Still doing Canasa but of course that isn't improving the situation. I haven't tried Remicade - my GI...
So it has been a while since I ventured in to post. I'm on month 9+ with this UP flare. Been on Humira since early June but there has been no change. None. I'm currently on weekly shots. We are now...
Yup IP, just picked up the script for the Allopurinol. I've actually been on Humira for around 3 months now. I did see an IBD specialist a few weeks ago on recommendation of my GI. I was given 6...
Today has sucked. We have blood, bloat and pain again - and to top it off wont be upping 6Mp to 125 since my blood work came back bad - in fact I'm going down to 25. I already upped the pred to 20...
Thank you for your response. Yesterday was a little better....
Finally have gotten to 15 mg of steroid but this week has been kinda rough. I'm so dang tired. Forcing myself to do normal stuff. Is this normal reaction when tapering the med?...
I'm a couple shots ahead of you so that's around the 3rd month of Humira for me. This past week I've had no blood for 4 days in a row - which is huge progress for me. From what I've read this drug...
So sorry for all that is going on with you!!! Maybe your PCP could call the new Gi and ask for an expedited appointment for you. My GI did this recently for me to get me in quickly to a IBD...
Darn, was hoping if Humira worked positively for one autoimmune condition it would automatically work for the other. Interesting appointment. Truthfully, much of the info I received today I already...
I just thought of something. could be just a fairly newbie to long term flare situation - but - my psoriasis is completely gone! So the 6mp or the Humira cleared that up, so if its the Humira does...
Thanks for your response, Ipoop The improvement has been so slight, I may have dropped a daily bathroom visit or two. Blood is a big concern because I deal with that daily. After reading my reports...
I asked about this at today's appointment. The response was basically since I have had zero change that upping the dose wouldn't help - but - since I'm being referred to one of the leading...
Welp, had a sig done about 2 weeks ago and there has been no change to the UP ulcerations/inflammation, not even a little bit, since colonoscopy in March. I'm being referred to a specialist in...
Hi Doggie Just had my Humira shot. The nurse, from Abbvie, said within the next 2 weeks I'd see a lot of improvement. I'm going to hold off on trying to taper again until this shot kicks in - and I...
Hi Mom2boys - id love to alternate between 25 and 30 but cant even get to 25 without symptoms increasing. I guess I should also be completely honest, with myself, that at 30 I still deal with some...
Its been a little bit since I've had a question. Still use this great place for info and advice. Well twice now I've tried to taper from 30 to 25 without success. 40 to 30 wasn't much of an issue....
I just started Humira last week, my shots are in the stomach....
Hi Eekseel. My Doc and I did not discuss one of those meds. After my colonoscopy he told my husband that he wouldn't be surprised if we had to get aggressive with this flare. Maybe that is the...
Thanks for the link, John! I didn't want to start a new thread so just throwing this on here. Wth!!!!!!!!!!!!!!!! Just when I'm good with going on Humira, I have a decent weekend. 2 days in a row and...
Still riding on the bumpy road. I thought I could see some faint light at the end of the tunnel last week but then slid backwards in a big way this week with just trying to taper the Pred from 40 to...
Thank you all for your responses, advice and reassurances!! You guys and gals are the best and it makes this flare a little more bearable knowing we have this place to ask questions, vent and...
kinda pretty much like you described. I called it "purgatory" today. Head racing with thoughts but body not able to follow through cause of the fatigue. Crimeny , do I really need another lesson in...
Thanks for your responses, John. I can't even explain this to my people - they don't know what to do, nor do I. All of this is top priority for my Doc appointment tomorrow. I really really appreciate...
Thanks for your reply. I'm a hot mess - and I cant stand feeling this way. Symptoms have been congestion, phlegm, thick mucus, and loss of taste for 5 days now, even a red sore in my left nostril. My...
I have been sick for the last 2ish weeks which is also about the same time I started this med. I am completely and utterly fatigued. I am still on 40 mg of Prednisone and for energy it is doing...
Sorry, TP, for no profile history. I tried to add it but apparently I'm inept. I hit submit but it doesn't show my edit. This is my first time on the prednisone. 2nd major flare but this one is much...
Did blood work today to make sure I will be a good candidate for Humira. Currently still having 10plus urgencies per day, although 90% of the time it's mostly water/blood/mix. Been a full week on the...
Thanks, iPoop. I didn't know the 6mp would take that long, thanks for the info. I am on 40 mg of Prednisone....
Thanks - not so sickly. I love my PA, more so than the GI Doc. He's so supportive, takes his time, has empathy - I really really like him. He actually was going to prescribe Llada (that was the plan...
I haven't been around because I've taken a nosedive the past week. I'd work my 8 hours and then Id be down for most of the evenings. Energy level is gone. Passing clots 2 days ago finally got my butt...
FG - Just the word "prep" and now I shudder. This last one was the worst. I don't know if I can do the Suprep next time. This time I puked a few times even on anti nausea meds. Both ends had a party....
well Soy, I'm not entirely sure I understand your question and what explanation you're looking for. Whether I'm flaring or not, raw veggies impact my stomach health. I haven't been able to...
Great responses - thank you everyone. Good description of bumpy road, Ipoop, hopefully smooth roads are in the near future for you, too. CureUC - unfortunately for me I have barely/sporadically...
During this flare, Malt-o-meal, banana and or cinnamon toast have pretty much been my daily breakfast. I had given up cereal and milk a couple years ago, huge trigger even not flaring. I save the...
Yup! Recently someone told me to just wear a pad and go out, he said he has similar issues at times after eating, not IBD related at all. really Really REALLY...
Thanks for the info, ipoop. Doesn't sound too awful now so thank you. Frustrated! Common theme :skull: I figured out that my good mental state days start with littleblood, the bad ones start with a...
I second that you need to call the Doc and get in. If youve been on vacation they may also want to do blood work and such to make sure you didn't catch anything viral, bacterial etc. This is my 2nd...
add me in too as a groupie that is hoping for good Entyvio results for you. My Doc mentioned at the beginning of this flare that we may eventually we may need to get aggressive with the meds - so...
FG - we will definitely be having banana cream pie again someday! Im so sorry your flare has been going on for this long. It's maddening. Glad your humor is intact (: Ipoop - thanks for more info! I...
lol soynomore. I appreciate the recommendation (the 2nd one) for calling the Doc for an oral med - gotta get up my nerve to do it. At least he did mention LLada would be our next step. Flowersgal -...
Commiseration welcome! Ahhhhh, FlowersGal.....cake and ice cream is a must for this pity party! Flowers, too. I have also tried to get back at myself by eating something that wouldn't be good, haha....
I wish I were pissed off! haha. Thanks for your response. My symptoms are more blood now than before the scope. Before it was maybe 2, 3 wipes out of the day, little in the bowl...now its...
This disease can throw an optimistic person into some bad places. I am sure a lot can relate. My proctitis flare started in January. Started doing Canasa twice a day instead of once, no change. Had...
Just curious - did you have angioedema prior to this? I have a close relative that has this condition (along with a multitude of other auto immunes) and he can't work due to his condition is so bad....
Posting my human error hoping maybe someone else can learn from it, 2 weeks of using the foam completely wrong. Although I was pressing down on the pump, I apparently wasn't pressing down hard enough...
ommmmmmmmmmgeeeee I love the sharing - correct no shame. lol Last summer while doing some tourist shopping out of leftfield had to go NOW, went running to public stalls and a little kid was in there...
I'm with you, was kinda hoping for more results from the steroid. That's good you can tell you received the foam. I am bleeding more now since the scope which was over a week ago. Today is kinda one...
Poppie - just curious if you've tried 2 cigs a day instead of 4? If I find out that the cigs do help remission I'd like to go as minimal as possible with them but I'm assuming it would be trial and...