I was in remission for an entire 8 years and ate whatever I wanted to eat. I didn't even believe I had a disease that would reoccur......in my case I think chronic stress was more likely the culprit...
Also, I've been told that a single stool specimen examination will miss many pathogenic protozoan infections in symptomatic persons, so maybe more than one test is best?...
Yes, in my case I have absolutely no symptoms of IBS though (no diarrhea or pain). In fact mucus is the ONLY symptom I have unless I go without meds. If I go completely without meds, blood returns....
Hi, I am actually interested in your replies here. I have been seeing 'mucus' on my stools now for almost 18 months. And this is true even though I used both oral/rectal mesalamine and now steroid...
I am not diagnosed with lupus (yet anyway) but for the last 3-4 months my butterfly rash has been getting set off from the heat of my magnifying lamp. I am an artist and deal with incredibly small...
Poo'dPiper, oops....I actually posted my past history on Joe's thread and not yours. Lots of new people here right now, it seems......
What???? I had no idea such silly and benign conditions were on the list. That is absolutely maddening. I have a congenital heart defect and was diagnosed w/ lupus of the skin in my 20's so I was...
No, right from the start our country was built by taking what wasn't ours (is that capitalism ?). No matter how wrong we have been in the past, and at times that has been heinously wrong, we can...
Hi piper, I actually wrote my whole history on your post yesterday. In fact, your post and the replies had good insight for me for my upcoming GI appt Tuesday. So thanks :-) You can read my biopsy...
Yeah, I'm sure it'll get sorted out in time. But if I was a person without solid health insurance and no other existing conditions.....I'd be GLAD I had no IBD diagnosis and wouldn't push for one (as...
Yeah, I guess great minds think alike? I was actually wondering if this was a candida issue. And also a food allergy scenario and planned to ask my primary to get those test run, as well. I could be...
I know how frustrating it can be to want to zone in on a definitive diagnosis with this stuff. My problems have been going on since 2008 and my GI has called it "acute proctitis", "cryptitis",...
Thanks, NSSG......what's even stranger is that I was not asked for a stool sample in 2008 either. Maybe this GI just doesn't like poop? I am actually going to insist on it , in a really nice and...
Hi Joe, I have a similar situation. I am really happy you posted this question, as it has given me a good outline to talk to my doctor about on Tuesday. I am going to push for a stool sample now. My...
tinabones, try typing in "oral & maxillofacial surgery locations (and add your town or largest city close by if it's tiny like mine)" into google..... I am sorry this has been such a long termed...
Thanks for this post..... I have done a probiotic enema the last 2 days and I am really astounded by the relief I am feeling. I just added 2 caps of my 20 billion multi strain probiotic to an almost...
Aha......so what's missing in my 'marihuana protocol' is some extra hot peppers. Because all by itself, the cannabis hasn't changed a thing for my symptoms (for better or worse). It is legal here for...
I hope the assistance program works out for you, marciac12. If it doesn't though, just an FYI that I am using a generic mesalamine enema that is 4g. per dose, so they do exist. Good luck !...
@Bull101 ......Thanks, I definitely am open to the possibility of continual maintenance these days. I kind of fit into Jane974's scenario, too, though. I had a medicine free remission of over 7 years...
Hi Carlos, I am currently in a huge probiotic self education period myself. I have been determined to "cure" my UC with diet and natural nutrition based ways, too. Unfortunately after a solid 14...
I agree, thanks for sharing your story, Abbie......I wish you all the very best !...
Thank you cupcakespinkgal, I will look into that one :-) I just received one called saccharomyces boulardii that is also supposed to be good for it (and I have stopped all the others). I had this...
Thank you for reminding me of this. I had forgotten........
Yes, as a matter of fact this DID happen after I began the probiotics. And I then got the impression that there must be a lot of candida in my system, so I began really doubling down my efforts in...
Wow, thanks......I am actually 47 days sugar free and processed food free (with the exception of a piece of pie and sweet potatoes w/ candied pecans on Easter). I am a stickler about oral hygiene and...
Hi quincy, no I'm not taking those. Just mesalamine (both ends). And I have absolutely no idea why I have oral thrush. It's a mild case, but it's the 3rd time I've had it in about 6 months. I have...
Hi all, I am having a bit of an issue with oral thrush at the moment......I have decided to blend up a few cloves of garlic and add them to my spinach smoothie as they are known to be a great defense...
^^^ Thanks, good to know :-) I think I read somewhere that VSL3 successfully handles the transit though stomach acid into the colon where as many other probiotics don't? that would make it worth the...
Imagardener2, do you take probiotics with food or without? is there a consensus here on that?...
There is a great Turmeric Users group on Facebook.....I joined awhile back. I may have to revisit this idea!...
Have you taken pepto-bismol or iron pills lately? there are quite a few benign reasons that this could be. You are doing everything right, so try and calm yourself down with that knowledge. Most of...
EDIT: we posted simultaneously, Wolsnik, lol.....ok, mine is only in a holding pattern until about 6 or 7am. That may be why (or maybe the reason I mentioned below). I'm not worried. That's good to...
Telemc, my insurance wouldn't cover the asacol enemas either, but there was a generic version which is DOES, might you have that option? or is there a reason that isn't a good option?...
Wolsnik, this is surprising......every bit got absorbed? no white skunk stripe on the poop? I wonder if I am having a problem absorbing because I am passing a lot of the white stuff w/ my two BM/s...
^^^ Off to look at my chart of the colon (again, lol) someday I'll have it memorized :-)...
Yeah, that's true chicken wings......I thought the enema might be "pooling" and I was getting worried. In my case my inflamed area is the entire rectum, well 15cm anyway. I have been trying to stay...
Wolsnik, they aren't hard for me at all. In fact, right after administration last night I hustled downstairs and let the dogs out, shuffled around in the kitchen until they were ready to come back in...
Wow, very interesting thread. thanks for posting !...
Yes, chicken wings, they are 60ml.......maybe I better just stick to every other night on the last 3. I know some of the inflammation this time WAS higher up. I think this is why he chose to...
This is an interesting idea. I think I'll employ it for my last 3 enemas (1/2 per night) instead of a taper. I will still be on oral mesalamine.........
I am using generic 4g mesalamine enemas and you just described my 'movement patterns' on them to a tee.....including the remission, although today is only day 8 symptom free, so maybe I ought to slow...
^^^ Great point. People who don't have issues won't be looking for info like that..... I just completed my 3rd week with it (oral and rectal) and my symptoms have been gone for a week now. But last...
Thank you for sharing this. There is so much exciting research going on now around the micro biome. I started a round a month ago and it may be a coincidence but my mood and depression levels have...
Food can also heal. My liver enzymes were sky high due to some meds I was using and I treated it with plain old milk thistle for 6 weeks----BOOM-----right back into normal range. I had a bacterial...
I have been taking type 1&3 collagen to help heal my gut and it is supposedly a great pre-biotic, as well. A double win. And on a side note, even if it isn't feeding them----my skin has never been...
Great thread ! I am glad I read every answer before replying. I think in my case there are a constellation of reasons: #1) Family history of digestive and autoimmune conditions (mom had RA an...
Thanks, songlady :-) I am going to see my doc before new meds are prescribed and when I do, I am going to ask him to see my biopsy reports and also ask for a conclusive diagnosis (more than just the...
Raleigh, the mesalamine enemas I have are generic. They are by Perrigo and say "Rectal Suspension Enema" they are 60ml (4grams) each and come in a box of 28. With insurance they cost $5.00 co-pay is...
I think I am one of the 'UC diagnosed outliers' here because I eat anything I want. I have cut sugar and processed foods and go light on the bread products, but I still consume gluten & dairy without...
Thank you, Flowergirl......I am actually doing really well these days and feel very upbeat and grateful....