This was a pretty cool read and may explain this reoccurring sensation I've experienced when eating very sugary desserts. I attribute a Belgian waffle to be the final nail to my gut coffin, because...
Are you on any medication at the moment or tapering off? If it's not a vitamin deficiency/anemia it could be that your adrenal system is just fried. Maybe you can do a ACTH test to determine if it's...
Thank you for the info! I always brushed carrageenan off despite it's presence in a nut milk product I consume every day....
Hey OP since you're asking specifically about diet I want to throw my 2 cents in there as I myself have experimented through trial and error with diet. I'm lucky enough that my new GI is willing to...
What is the condition of your UC at the moment? Looks like you're already taking the initiative to try natural approaches, but it must mean you are currently in an active flare? With the blood work...
In the early stages of battling my flare ups I would usually drink a litre or more of juiced veggies, but I found that drinking "shots" of the juice instead of large amounts was equally as effective....
What anti-med people? Yes there may be some short term posters like Nato9 who may be considered anti-med but these guys are generally put down and quickly run out of the forum. [/quote] Messed up...
I wasn't going to reply, because I prefer not to debate others on their belief systems and ideologies(your last post pretty much sums up that you cannot be reasoned with)- but if I was a...
At least post meds that UC patients actually use - the only med that's used for UC in that list is azathioprine. I've been on its sister med, 6MP, for a year now without any issues. There is about a...
How are they highly toxic to the body?[/quote] If we're talking about immunosuppressants in general there's alot of info about their toxicity online....
I get where you're coming from. I'm all for pharmaceuticals in times of emergency, but if there's even an smidgen of possibility to heal my colon to the point of remission via lifestyle change-...
Maybe you guys should consider cannabis oil/RSO as a supplement if you can get your hands on it. Small doses of CBD oil allowed me to be able to consume garbage during a flare, but I soon learned...
Haha what are the chances. That's pretty interesting!...
Not gonna lie, it's a little risky. Out of my first flare I had 2 remicade infusions. 4 months after that I volunteered as a nursing student throughout east Africa. I wasn't able to get the live...
Immunosuppresants like prednisone affect everyone differently, but although the drug's half life is only 2-4hrs- side effects can still be experienced months after tapering. Your body's metabolism,...
Hey, are you currently taking any medications for your UC? What is your daily hygiene routine for your face? You say you're not flaring so I'd guess it's hormonal. My first 2 experiences with...
I used to eat 3 meals a day, tons of snacks in between and ate as early as 5AM till as late as 2AM. Nowadays I liquid fast in the AM, maybe have a light snack for lunch or mono-meal one fruit, then...
Hey it's good to know you can resort to the sulfa medications instead of relying on prednisone. While travelling East Africa I was in a horrible flare- american educated doctors prescribed me...
Yes now that I know what true remission is, I feel basically 99% my optimal self again. Although the symptoms of my UC were non existent for 4 consecutive months, I was still fatigued and experienced...
Geez stress really kicks our asses... For me the same thing: crazy stress training in the army, messy relationship break up, financial stress moving across the country, alcohol, coffee, acute...
Interesting. Just wanted to note that this was studied on patients who have already reached remission and is used as an anti-inflammatory response via reduced stress. Personally yoga has helped me,...
These days I keep my mornings light. Herbal teas, green smoothies, fresh juiced veggies/fruits, lots of water. If I'm going to have a very active day and NOT in a flare up, I'd follow up with solid...
Yup love and hate relationship for sure! 60mg of prednisone is always immediately effective in decreasing BMs, but even if the inflammation is starting to heal you're still stuck tapering with nasty...
Wow this is the first time I am hearing about this option. Maybe all hospitals should normalize this treatment for all patients just as sodium chloride IV's are routinely given upon admittance....
Never had food allergies while growing up (minus mcdonalds frequently causing diarrhea), but I did experience IBS symptoms throughout middle-high school as my diet became poorer (excessive junk food,...
That's a pretty extensive list. I have done option 1: prednisone + vsl + SCD with good results, but I sometimes feel there is a gamble with probiotics (when there's an excess of bacteria in the gut...
How about focusing on foods that biology recommends are nutritious? Specifically the fuel our mitochondria tend to favor for energy production and cellular regeneration. I mean, one can say they can...
I am sure you will get lots of useful advice browsing these forums. In terms of seeking professional alternative help- I'd recommend a nutritionist that works with digestive disorders. I feel like...
Thank you for sharing your experience! Sounds like another possible correlation between stress and overgrowth of harmful gut bacteria. That's part of my theory for the cause/development of my UC. It...
While flaring with bleeding and inflammation, I could NOT tolerate grapes or citrus fruits unless they were juiced and even then I'd stay away from citruses. My bowel transit time usually took 1-3...
I don't believe people should rely 100% on anyone but themselves and their informed discretion when it comes to personal health, but that means using the internet to research alternative experiences,...
Coming out of my first hospital discharge I was on prednisone/remicade and never strictly adapted to any particular diet besides avoiding alcohol and dairy. Remission was slow if not unsuccessful...
Interesting, what's your degree?[/quote] Biomedical sciences majoring in anthropology. For my epidemiology paper I wanted to do the role of diet and gastrointestinal disease since I'm so close to...
Hey Emma, I've tried the vegan diet a couple of times now and have lasted no more than 6 months on it. I'm usually an advocate for diet change, because it helped me heal but of course not everyone...
I'm lucky to have had the time and resources to play with trial and error, diet vs medication, conventional vs traditional therapies prior to and in between flare ups. I understand correlation does...
I realize it's a pretty general question. If we wanted to do a case study on this many other factors would be questioned. I found that following my hospital discharge from a severe flare, I didn't...
Hey all, I've been curious about how long IBD/UC'ers stay on a particular diet before determining whether or whether not it is helpful towards recovery. In my support groups as well as the online...
I often wonder how long people actually stay on a diet to notice improvements. I had to stick to my diet protocol for 2 months straight before noticing substantial results and another 2 months to...
Honestly I have only confided in using CBD oil(RSO) extracted from a plant with THC because I enjoy getting the euphoria as well as the anti inflammatory/appetite/pain/nausea benefits. The one time I...
I just saw CBD/hemp products being advertised at the local convenience store. Kinda skeptical that it's not refrigerated, but I suppose it isn't required to. Last year I was traveling east Africa...
Hey Wrenny I get where you are coming from. I'm not anti-pharmaceuticals, but I've always been weary. Before UC I was dx'd with Cervical cancer (s1t2) so when my GI doctors put me on Remicade and...
Yes you absolutely must give your body the rest it needs! It's assumed you aren't absorbing nutrients efficiently and the prednisone has your adrenal system all whacked out. Seriously don't beat...
I've experienced that sticking to the FODMAPS diet (no gluten/wheat/lactose/limited sugar/no alcohol) allowed the medication to do it's job more efficiently than when I was trying to heal without...
Very happy to hear of another spoonie who's found solace in cannabis oil. I used RSO/CBD/THC oil throughout most of my flare ups and it proved to be very effective for pain, appetite and lessening...
Don't worry it's likely going to take some time to adjust to a new lifestyle or diet. When I am flaring I'm very disciplined with diet due to the desire of wanting to avoiding discomfort and pain, so...
Alcohol has been attributed to inflammation which I'm trying to avoid it all costs. Gave up alcohol even casually/in moderation. Had a glass of wine during a light flare, the next day bleeding...
Very happy to know that you've been able to manage your UC symptoms. I've also been successful through diet/lifestyle changes in finding a balance that has allowed me continual remission so far. My...
Interesting, didn't know they had isolated studies of this. The only Ayurvedic therapy I have tried that showed positive effects was 'Racemosus Asparagus/Shatavari tea'. It helped me tremendously...
Juicing got me through the toughest of flare ups, but also in tandem with other natural therapies- so I can only point it out as one healing factor and not the "cure all". It helped me absorb...
This is encouraging news for the IBD community and those looking to ease symptoms of UC naturally. Personally I have only experienced positive results/remission when I strictly follow...