I got the same advice....
Never heard of that, but after googling it, it seems there is some science to back it up as an anti-inflammatory in the gut. Interesting....
"A friend" actually made some of these at home (it's not terribly difficult and there are good instructions on the web), and tried them out for a few weeks. No noticeable benefit for UC, though who...
Thanks for clarifying. Just wanted to make sure it wasn't a safety issue of which I was unaware. I happen to be among those for whom Entyvio does work, whereas Remicade was of no use and left me...
Out of curiosity, what's his beef with Entyvio?...
If a musical instrument is making your ass bleed, I think you may be playing it wrong....
I have been unable to get it for six months or so. No pharmacy around here can even order it. Clearly there's a production problem. My doctor prescribed me Uceris Foam instead, which seems more or...
That would make a good name for a punk band: Rumbling Anus In all seriousness, I'm not sure what you mean by that. Stomachs rumble. Anuses? Hmmm...unless you are referring to flatulence....
Still no luck with Cortifoam, but my Dr. prescribed me Uceris foam instead. Pretty similar....
Perhaps so, but Vancouver isn't exactly the sticks. Maybe things are better in the middle of Saskatchewan someplace, though I doubt the best doctors tend to gravitate there. Anyway, not claiming to...
American health care is far from perfect, but reading stuff like this it amazes me that anyone would suggest that Canada's system is worthy of emulation. Glad it worked out for you in the end....
No, I have not asked him if he knows about it. But good point: I should. And will. Thanks....
They say they can't even order it....
Yes, I do have some hydrocortisone enemas I can use, which I guess I will. The foam has a few advantages, of course, but if it's not out there, it's not out there. Thanks for weighing in....
Trying to fill a prescription for Cortifoam and not finding it anywhere. Called five different pharmacy chains and all tell me some variation of "it's back-ordered at the warehouse." No estimate as...
The new shingles vaccine, Shingrix, is not a live virus vaccine....
In NJ you're good to go with either form of IBD....
Choice of biologic is an individual thing. Remicade didn't help me much, if at all. Entyvio has stopped a flare that nothing else but prednisone could. Your experience may be the opposite. As...
I'm coming up on a year with Entyvio myself. Am in what I would call a complete remission, insofar as I have no remaining UC symptoms--and this after a horrid two-year-long flare, steroid dependency,...
Many thanks for the insight. Perhaps we'll cross paths anonymously in the waiting room!...
I suspect we share the same doctor and I am planning to follow him to Mt. Sinai. What's the deal over there? Why do you hate it? I must say the Cornell setup seemed to be in constant disarray,...
Your doctor is woefully ill-informed, and I'm living proof. Remicade did nothing for me. Entyvio has worked very, very well. As noted above, totally different drugs that work in totally different...
First off, let me say I understand that choice of medication is a deeply personal decision, and like all deeply personal decisions, is not necessarily arrived at rationally. That said, smoking is...
On the positive side of the ledger, Entyvio has been working very well for me, whereas Remicade did not. Have been steroid free for several months, with no particular trouble, which is a huge leap...
I find the restrooms in CVS stores to be pretty reliable, and seldom occupied. I'm not sure the average shopper is even aware they're there....
Nothing to get too worked up about at all. I am having one (my 5th or so) tomorrow. Easy, painless, takes 45 mins or so, plus some time maybe for some IV hydration before and a quick IV flush after....
Out of curiosity, why are you not a candidate for a J-pouch? What are the disqualifiers, if anyone knows?...
I find that 2 of the OTC-strength caplets keeps me worry-free for 6-8 hours. In rare cases, I might supplement with a third pill part of the way through if I feel any rumbling....
Doctors vary on the Immodium question. Most seem reluctant to give a full OK because there is some theoretical risk that it can contribute to the development of toxic megacolon (which you don't...
Want....
You're not eating beets once a week are you? Just a thought......
As others have said it can take a while for things to kick in. I would not panic yet, though i would note that 30mg is a bit on the low-side for an initial dose of prednisone. It's all well and good...
Thanks for the further perspectives. Lest there be any doubt, I am very happy with and confident in my doctor and the overall care there, just scratching my head at times at how disorganized it...
Some helpful tips in there -- thanks!...
Longtime lurker, finally registered because I'm very curious if anybody else shares my impression of this operation, which is that the doctors are top notch, but that the place as a whole is wildly...