Well it didn't kill me immediately lol. Though they gave so much Benadryl as a premed I was no functional all day lol. I went to work after and just kept loading up on coffee to try and counter act....
First infusion in in hour. Both excited to see if this makes me me again, and terrified lol....
I hope it's not. I was very healthy no problems at all before I suddenly got it at 30 after a stomach bug went around my house. But it sounds like your symptoms are super mild....
Oh no that is no fun. The day can not get better right.......
Oh goodness. That sounds crazy! How were you even supposed to relax so you can heal in that environment?! I will never complain about my little hospital again. I'm glad you're home....sometimes it...
Yeah, they didn't really tell me much about it other than it naturally occurs in the gut and that I couldn't get my kids sick. Im someone who just wants to know why and I hate not really figuring out...
Have them check for different infections. Same thing is what happened to me. I was feeling bad, went on Pred, then it went downhill fast until they found they had cultured bacteria....
Aeromonas Veronii biovar. Can't find much about it. I got sent home though yay!!!!!...
They won't let me out. I asked about the infection bug...Aeronus? My spelling may be off. Fun times. Anyway I do great during the day, right about now till 7 I'm in agony unless they give me...
That's great!!!! I'm hoping for the same results....
Wow you have been the wringer. I'm glad you are recovering well though....
It's very daunting. I know what's safe to eat for me when I'm not well, but as far as food causing a flare well, I don't know. A functional medicine doctor put me on grain free, dairy free low...
Such a rollercoaster. Ended up back in the ER after I completely broke down Monday morning and noticed I had a 100.5 fever. Thought I was surely crazy. Well apparently one of the cultures they did...
I'm happy to hear it's gone well. It gives me hope....
Ha. No nice soft fuzzys but I didn't really care i was about to flop over on the towel a child left on the floor!!!...
So I talked to like 3 different people yresyerday about setting up the Remicade AsAP and heard back from no one. So and so was sending the paperwork to so and so like so and so requested right now...
Awfully tempting to just go to sleep on the toilet lol. In fact I think I did for a second there lol. I mean why get up, go try and find a comfy position start to doze off then bam, pain says wake up...
So happy to be going home. Not quite up for much than laying around there but it's one step closer. They're trying to schedule my Remicade ASAP. Still nervous about it but just want to feel better...
I'm sorry OP. Sometimes it does suck very much. There are a lot of positive stories on here to read when feeling down. I understand being anxious about Remicade, as a parent. I'm about to start it...
I hope you are able to taper off Prednisone and feel amazing!!!!...
C.diff is negative thank goodness. So I'm just on a ton of solumedrol/pred IV till they can get me to a point to release me and start me on Remicade. I do want to switch...the GI I see now is close...
Anyone with more experience have suggestions? I've been a clear liquid diet since Thursday morning. Not really all that interested in food, but omg my stomach is clearly trying to get some attention....
I'm sorry OP. I'm in the hospital right now because of that pain that just makes you heave...I was ready to beat my head in to make it stop. Started feeling a bit better yesterday evening then the...
Thank you. I was dubious but hopeful. I had in my mind I was gonna be the person who'd be okay, like so many success stories, but I'm now the person crying in the hospital for them to cut it out...
Troubled- I was failing immuran and pred but with a mild flare up. My GI told me to discontinue them as I ran out, but then my family had the flu and I missed an appointment. They couldn't schedule...
I haven't updated it. In the last few weeks I've been back on Prednisone and Rowasa. I've been preparing to start remicade, but then the GI couldn't see me for a few months and the flare that I...
Fantastic. After a crazy night of pain and low grade fever, my GI nurse sent me to the ER. They admitted me and here I lie. Two weeks ago it was just my usual left side on the CT scan....today they...
Well that's interesting. It makes me curious to have it done myself. Several months ago my functional medicine doctor did and it was clear but the last few weeks have been so miserable with so much...
Yes that's why I'm not sure why they gave me that. I may not start the pred until I see my GI Monday....
I've read some previous posts and it seems there is some love/hate with these. I remember the first time I got sick I was on them, but that is all such a haze. I was pretty bad off before I was...
Good to know. I had to fight to get them prescribed too....
Hey OP. I hate the thought of meds too....and I see a functional medicine doctor. Even he has told me however to keep seeing my GI, and even though what I got from him helped a lot, it still hasn't...
It's crazy. I notice my appetite gets real odd to match it to...though sugar becomes a craving and I'm usually a savory kind of girl. French fries are oddly safe, this morning I ate lucky charms, and...
No tests back yet...guess I'll find out at my appointment Monday. Though now I have a low grade fever and definitely bleeding. Ugh. So done lol!...
Thanks. I was scared of the Immuran too. I remember I cried when I took it. It's just me imagining I'm going to be that one person who gets lymphoma, or a fungal infection or what have you. At this...
Anyone want to share their medication progression? I feel like I've been pushed to the "Big guns" really quickly. I've been on Lialda and Immuran as far as maintenance meds. I was on Lialda forever...
Going on two weeks though?...
Thanks for the replies. All they did at the hospital was a abdominal CT scan as they were worried I had appendicitis. They did a cbc and said all was normal except really elevated wbc. My PCP just...
Hello! A bit confused what is going on NOW. I have an appointment with my GI next week but oh my goodness I'm not sure I'm going to make it. This disease keeps you on your toes! I don't know what to...
I hope it works for you!!! I wish I had that option!...
Hello! So in a desperate bid to feel better and avoid Remicade/Humira, and also get me through a few work trips before that deciding appointment, I..perhaps unwisely...started taking.. 10/14/16-...
This is perfect timing as I was looking for this when I was out this morning!! I'm at a point of having to choose Remicade, Humira or a clinical trial. This isn't my worst flare by far, but this is...
I'm so sorry. It's hard when someone is so right and there are major issues in the way like that. My partner and I have been through some issues, but he is awesome at caring for me!!! The first time...
Yup!! I was in an incredibly stressful situation when I has my first flare....combined with eating junk cuz we were flat broke. A lifetime of exercise and healthy eating didn't matter at that point I...
Quincy, I guess that makes sense then. If it started off if slow soon after I dare off the preferred and that's just when it it comes to a point I notice. Mrs. Brady. My first thought is no,...
I have downloaded apps to my phone I really like. It seriously takes practice and you have to make yourself do it, but I have some for self hypnosis, sleep, meditation, and one supposedly has sounds...
I've seen this mentioned a few times and it seems my pattern so far with this disease is a flare up in the fall, regardless of how great I was feeling. My doctor asked about stress but honestly when...
Yeah. I started on lialda and Prednisone, stayed on lialda though I think was never full in remission on it. Went on a round of uceris which worked for a little while, then didn't the second time....
I'm so frustrated. Just had a colonoscopy, three weeks into Prednisone on this current flare up. Current left sided moderate. I was then told clearly immuran isn't working anymore( went on it last...
Wow. That's scary. The only reason I'm considering it is this guy DID regular medicine and was a GP before switching. We spoke on the phone before he scheduled me and he seemed knowledgable about UC....