Evening everybody Anybody found that either forms of Salofalk has made their symptoms worse ? Trying to figure this one out...
Hoda how long were you on the prednisolone for ?...
Thanks Hoda , your history sounds similar to mine ! I think I expected miracles quickly and maybe need to be more realistic I am slowly gaining more control...
I wish it was weight based , it might help , lol ! Thanks for your help ! It’s hard work understanding how they are meant to effect you , not in a side effects sense but in a healing / stopping sense...
Cheers Ipoop I’m currently on 40 mg a day since last Wednesday afternooon , meant to be tapering down after 1 week ? I also question this , I’m 6,6 and about 20 stone , sort of look like Sully from...
So if prednisone doesn’t work, is that saying your immune is overriding the pred? Or should I give it more time to halt the attack? I was on salofalk granules and have been on pentasa suppository, I...
Cheers DB I guess my same point here , with pred do you guys still take our other meds ?...
Cheers Ipoop So much literature on the side effects of pred but very little about what to extually expect to happen your body and your actual UC ? I guess that whilst you take pred you would also...
Morning all , So I started 40 mg of pred last Wednesday and have been doing ok with it , but if hiccup last night but I’m putting that don’t to me thinking I was magically fully healed and eating too...
I think in the USA it’s a lot easier to see the GI despite having to have insurance , it’s hard getting that close to one over here ! Thanks Ipoop...
Thanks guys , all helpful , I questioned the strength of the pred supps and the IBD nurse said 5 mg is the strongest , and I said that’s not strong enough so she actually said take 2 at a time but...
I think I was last scoped in 2015 , a long while back , that scope was clean ! Previous scopes showed proctitis and I have had it for around 6 years roughly , never flared this bad though ! When you...
So I haven't been on here for a while ... Started flaring badly around middle of November, usual pred supps / salofalk sachets haven't helped and I have been getting progressively worse. Does anyone...
Been taking prednisolone suppository for about 3 weeks, completely cleared up any bleeding and by the looks it has also cleared up any inflammation. However I am now getting abdominal pain, wondered...
Not sure if mine is related but I've been poorly the last few months with either a flare or infection ... then the last few days I have had exactly the same thing with my Jaw and both ears ! I...
Hi Jen Are you in the U.K. Or elsewhere ? Considered goog private to see a GI quickly if your in the UK ?...
Lol , I can tell it's blood , just about ! I was looking for help determining how you describe it ? Fresh ? Old ? Black or red ?...
Morning everyone , So I have had no bleeding for around a week , think due to pred foam / pred supps Now it's back http://tinypic.com/r/51acdz/9 Can anyone help me describe this colour of if it's...
Any comments or thoughts would be massively appreciated...
So even when you go do pass a stool it's not like that of a typical constipated stool ? You have much pain ?...
So what symptoms do you get for the pancolitis ? Thinking I may have this ! How bad is your constipation ?...
Hello , I'm not going to be much help but I have a question .... With the constipation do you have the "usual" bleeding ? Fresh blood ? Thanks...
Thanks again both , I was diagnosed back in 2013 but never flared as significantly as I have the last year or so ! The pred is the foam enema 20mg dose , rectal foam - supp is 5mg pred Not the scheme...
Evening / good morning both .... Stool is type 3 or 4 on Bristol Stool so class it as normal 1 - 3 times a day for the last 2 weeks Before ... "text book" bleeding fresh blood , really bad urgency ,...
Cheers for replying ipoop!! Pain appears to be around the outline of my large colon , so a bit left sided and then basically follow it around to the right side , well I'm assuming it's where my...
I'm no longer have any blood issues and no more 20 trips to the toilet Butttttt I do stil have some intermittent abdominal pain ? Could this be from the pred foam enema or pred supps ? I'm also...
Thanks for replying so quickly ! I meant I was smashing 2 - 2 1/2 sachets not grams .... so almost 3 sachets ! I'm on pred foam and pred supp , seems bleeding has gone and it appears a bit further...
Thank you Ipoop What I mean by smashing is probably taking more than I should have , I was supposed to take 1 of the 3 grams sachets a day , but some days I was taking 2 or 2 and a half sachets .......
So the last few weeks I've been smashing the sachets of salofalk and I thought I was unlucky enough to come down with the flu as well! Anyone ever had a bad chest / cough s nose or abdominal pains...
Cheers both , I say empty stomach I mean as empty as possible colon ! Definitely drinking enough fluids maybe too much...
Morning everyone, been using 20 MG Pred Foam the last couple of days in the morning , usually on the most empty stomach I can, but around 1 or 2 hours after use I am getting spaced out / dizzy ?...
It's all bizarre and I think the more I try to understand it the more it confuses me !...
I was diagnosed with poctitis for the first few years but my last 3 flares were pancolitis and they were long and messy and I suffered a lot. I eventually went through all of my options, and I...
I was on pentasa supp and salofalk sachet but now I'm on pred supp and pred foam , pred foam seems to make my head go...
Hi gdl , You seem to have the opposite of me , when I was first dxd I was passing lots of blood and I mean just blood , I now have streaks along my stool and nothing coming out of me , could just be...
Emergency kits are the way forward here, i'm fortunate enough to get a decent train to work with decent toilets on there ! Life savers ! In flare I would hate the car / going for a walk / leaving the...
Firstly im probably completely different .... I was Dxd with Crohns Colitis around 2013 and was bad for a few months, blood / mucus / urgency ... flared regularly. Was completely fine for about 3 -...
Cheers Ipoop...
I was genuinely thinking the same thing myself about 2 hours ago , I'm 6 ft 6 and about 20 stone , so I've been think is what I'm prescribed enough to make a difference when considering my size...
Had 2 days using the pump , getting better but your right ta not easy ! The symptoms are what are crazy because I'm having all over abbominal pain , basically shadowing my colon , so the upside down...
Ahhh I'm with you , I'm struggling to keep the pred foam in without needing to go to the toilet How were your symptoms ?...
Dan you need to ring the IBD nurses or the consultants secretary and ask them to tell you the results , my GP would have no clue about UC or CD , they wouldn't even give me and emergency prescription...
Thanks for replying ! Feels like I have it around the whole colon , or at least the gas feels like it's around the whole colon ! When you say you couldn't use the Canasa ?...
Initial diagnosis was Crohns Colitis .... I've flared on and off since the initial diagnosis , at the worst probably 4 - 5 months when I did actually end up poohing myself due to urgency...
Think this is how I tag you , any advice in this one would be appreciated...
Hi Quincy , thanks for replying Until today I was taking a salofalk sachet orally and a pentasa suppository.... I think they healed me as much as they could ... Now it's just the mucussy blood around...
So I have told the IBD nurses about my ongoing symptoms - - Darker blood wrapped around stool, not much - Stool colour itself looks good - Slight discomfort all over abdomen So they told me to try...
Any news Dan ?...
My bad , removed...