Hi Sassy, glad to hear about your improvement. If it was me I’d stay on the enemas. A few good days isn’t necessarily remission in my experience and the fact that you are going less means better...
Update: Just spoke with my nurse and she said that we should wait until I’m feeling better. Since I have to go out of town for work this week I won’t be able to get the infusion until next weekend....
Thanks for the responses. Does anybody know how long the meds keep if stored in the fridge? If I don’t get the infusion today I’ll have to wait a week because I’m going out of town for work tomorrow....
I wasn’t aware of a foam version of Uceris. I also found that Uceris pills have no effect on me but man do I hate taking Prednisone, that stuff works but it turns me into another person. I’m curious...
Hello UC community. A quick question or two. Let me set the table first. I have an Entyvio infusion scheduled for tomorrow morning and this afternoon I started to feel like I might have a cold coming...
I take 150mg extended release twice a day. The first week or two was crazy; my sleep, mood and energy levels were all over the place. I've adjusted well though. Been on it for 2+ years now. Didn't...
I have been experiencing a mild flare for about the past eight months. My doctor wanted me to start biologics about five months ago but there were some insurance problems I had to work through;...
I just had my second infusion last week. It's pretty easy really. You just show up and the nurse will start an IV and then start the Entivio drip. It takes about 30 minutes for the infusion and then...
Check out this thread for good info on how others, including myself, administer Rowasa: https://www.healingwell.com/community/default.aspx?f=38&m=4047868...
I saw you were on Accutane and recalled a friend of mine losing most of his hair while on it. It did end up growing back but oddly enough it his previously strait hair grew back with a good amount of...
Thank you all for your advice and testimonials. I feel much better about things now. I have another question now. Suppose I do start a biologic, is it possible that I may need to use Rowasa or oral...
A little over a year ago I was diagnosed with UC. For the past year I've been taking Pantasa (1000mg, 4 x a day), have had to use Prednisone twice to calm my flair, and had to use Rowasa once every...
Get a box of latex gloves and baby wipes. Lay a tissue down, fold a tissue in half and lay it on top on one side of the tissue, put a baby wipe folded in half on the other side, shake the Rowasa, put...
I've experienced this during a flair before. The foamy, yellowish liquid with blood. Not pretty. It might partially just be from gas, mucus and liquid kinda bubbling up. For me it was just associated...
Well, I got through it. Thanks for letting me vent and sympathizing. The colonoscopy went well this morning. I guess the news was good. Only the left side of my colon is flared this time....
Hey there. I just had a colonoscopy this morning. Third one now. The prep is the worst part but it's not that bad. I just struggle with drinking the stuff they give you. Some of the cocktails are...
The Suprep prep kit is the worst. It is so nasty. Just had to say it. Trying to chock this stuff down. One down, on my second cup now. The struggle is real. This is the last time I use Suprep! This...
I'm guessing by the premium you have a term policy; can you confirm this. Also how old were you when you got that policy? On your point about applying with multiple insurers at the same time, going...
I'm actually in the market for some term life insurance myself. I'm getting to that age where the employer life insurance is starting to increase every year and annual premiums for private insurance...
The Wellbutrin is for high epinephrine levels. It mellows out my stress levels and my flight or fight reactions so it might inadvertently help with UC since stress and anxiety can trigger flares. I...
After nearly a year in remission I'm starting to flare again. My GI wants to do a another colonoscopy to see what's going on. In the meantime she prescribed me Uceris (9mg). I've only taken...
Congrats. Remission is a great place to be. As far as the grain thing goes, if you were eating whole unprocessed grains like oats and brown rice, those things don't digestive very well and can be...
Oh the joys of picking up boxes of enemas from the pharmacy. Lol. Luckily we usually only have to use them daily for a month or two or three in severe cases (like me). I was so happy when my GI told...
Sweet!...
My preference is to sit in the back of the plain. Two reasons, (1) there are 2 bathrooms and (2) you don't have a whole plain full of people watching you get up and run to the bathroom every 30 mins....
Thanks for the info everybody. I was unaware of the potential for withdrawal side effects so I'll keep a look out for it. The adrenal gland thing is interesting. I had no idea. Today I went down to...
When tapering off prednisone, at what point do people tend to see their flare up coming back on? I started at 40mg/day for about 3 weeks, now I'm at 30mg/day and tomorrow I go down to 20mg/day. In...
Thank you all for the good suggestions with the cold sensitivity! I'm ganna pick up some Sensodyne tomorrow and be a little more gentle and see how it goes. I have noticed that healing is taking...
To start I doubt this would be considered a side effect but my first BM every day is partially covered in white. I imagine this is just residue or whatever from the Rowasa but I thought I'd double...
Using a straw can be helpful too. Pop the pill in your mouth then start sacking. Pills go right down....
I just got diagnosed with ulcerative pancolitis and I'm on the low residue diet too. My plan is to stick with it until I'm done tapering off of prednisone and then reintroduce different food items...
I know two people who needed to get hip replacements after taking prednisone. It doesn't happen to too many people but you should tell your doctor. Prednisone is thee savior and the devil all in one....
I wouldn't worry to much about a little blood on the tissue paper. Could just be from the anus being irritated. If you start seeing streaking on her stool or she's passing straight blood, that's when...
So open season for health insurance is just around the corner and I'm newly diagnosed with UC (pancolitis) and my first flare was really bad; had to spend 5 days in the hospital plus a couple weeks...
I just had my first flare and was given 40 MG a day. I've been on that dose since 9/13. Unfortunately, my flare was so severe by that time (took 3 weeks to get a GI appointment) that I ended up being...
SayItAintSo, so glad to hear you're feeling better and on the path to recovery. Sounds like you had a rough time but came out on top. Thanks for touching base!...
I'm newly diagnosed with UC (pancolitis). After a 6 day stay at the hospital two weeks ago and continued use of meds I'm feeling much better and back to eating solid foods (low residue), have...
TD, was just trying to illustrate that until a couple weeks ago I've been a relatively healthy person who didn't need much medical attention. That all changed a couple weeks ago when I had my first...
Well,if you need it, you need it. But if it can wait until next year or all be done before this insurance year is up (which for me is in February) save yourself some money and do it all so you only...
Without binding agents I'm not sure this will help but on America Test Kitchen, a popular public access cooking show in the States, I seem to remember them doing some tests on this. If I recall...
FYI, while at the hospital they were able to do more tests and get results right away. After they got me down to about 10 BMs a day they did a colonoscopy and EDG. Took a bunch of biopsies for IBM,...
SayOtAintSo, I was in a very similar situation as you two weeks ago. I am new to all this too. It sounds like you are severally dehydrated and malnourished. If this is the case, you need to consider...