I have a son with liver disease and have learned over the years that AST/ALT can and will go up and down for a variety of things. Those values are high and you should ask your doctor about them....
That's way too long in my opinion. I have had a really rough past 9 months and whenever things get bad I can usually get in to see the GI in 2 to 3 days at the most. Part of the decision to choose...
Be careful how much vitamin A you are getting in Airborne. It is very easy to overdose when using Airborne. Vitamin A toxicity is serious. Please be careful. I would second the idea of washing hands...
Remicade was a life saver for me. I was in bad shape and getting worse and ended up in the hospital for a week. Remicade is what pulled me out of that nasty flare and gave me my life back....
Has anyone used PLAQUENIL? My GI doc is recommending it to treat the severe joint pain and swelling I am dealing with from my Drug Induced Lupus. He says it should allow me to come off the prednisone...
Thanks to everyone for sharing their experiences. I have an appt with my GI on Thursday and have a call in to a rheumatologist but was told it will definitely be after the 1st of the year before I...
Brief history : Started Remicade in July due to massive flare that led to diagnosis. Ended up in hospital after several months of trying different meds while continuing to get worse and worse....
LDN has worked great for me. I've been taking it for about a month now. I started at 1.5mg and have now moved up to 3.0mg daily. I got lucky I guess as I did not notice any worsening of symptoms or...
What dose of prednisone are you taking? If you're not getting relief you could ask your doc to up your dosage of pred to help get things under control if you're not on too high a dose now....
Feeling "normal" After getting drug induced lupus from Remicade, my GI wanted to start me on Entyvio. I asked if we could try LDN first. He agreed right away, said he has other patients who have had...
I was in the midst of a horrible flare (running to the bathroom 30+ times a day with bloody D) and ended up hospitalized. I had been on prednisone for several months at that point. While in the...
I was on 40mg for several months, then 30, then 20, then 15, 10, 5, and finally got off completely after about 6 months. I wouldn't worry about taking a couple tylenol if it helps with the headache....
I hope not. We have chickens and I eat eggs every day. So far so good....
They are located in New Jersey, their website is https://cfspharmacy.com/ They have a price of 54.95 for 120 pills and free shipping on their website. That price is for anything from .5mg to 4.5mg...
bloody diarrhea 30-40 times a day and the eventual dehydration. I was spending more time in the bathroom than anywhere else....
A little back story on me: Started having symptoms in Feb 2017. Saw a GI, got scoped started on mesalamine March 2017 with UC diagnosis Kept getting worse, added budesomide Ended up hospitalized in...
Lialda made me much worse. It is possible it is causing you problems. It took several days for me to improve after stopping....
Back from the GI, here's the latest. based on lab results, the delayed reaction, the joint pains and the rash he believes this is most likely a drug induced lupus type reaction and is recommending...
Thanks Connor77. And don't worry, you're not going to scare me by telling me what may happen. Knowledge is power. More is always better. Its hard to advocate for yourself when you don't have the full...
ANA came back Positive. ANA Quantitative Pattern 1 : Homogenous ANA Quantitative Titer 1 : 1:160 I don't know what this means... If any of you can shed light on this let me know....
Thanks for the replies, here's a mini update: Yesterday I was able to see my regular doc and he ordered an ANA, CBC/Diff, and Rheumatoid Factor. The CBC and Rheu came back normal. Still waiting on...
Hello! I started on CPAP/APAP about 9 months ago. I have not had any issues with the CPAP affecting my UC. There are things you can do to minimize the "terrible wind" you are experiencing. I would...
I completed my induction doses without issue and had my first "regular" dose of Remicade on Oct 14th. Since then I have developed moderate to severe joint pain in my feet, knees, hips, shoulders,...
I don't have an answer for you, but am interested in the responses you may get. I am allergic to mesalamine so I have been looking into LDN to take along with Remicade, as so far Remicade has not yet...
I haven't really established a schedule for labs yet. I was only diagnosed a little over 6 months ago in the middle of a bad flare that put me in the hospital. I just recently finished up my...
I did significantly worse when taking Apriso and also with Lialda. I can not take any mesalamines. Glad you discontinued the meds and have a call into your doctor....
iPoop - Sounds like you had a mesalamine-intolerance to me, whether it was lialda, asacol, delzicol or any number of medications would not have mattered. Thanks iPoop. I wasn't sure if people could...
Well, Back around the first of the month I was hospitalized for a week and while there they didn't give me Lialda. I also started some heavy steriods and Remicade. The last couple of weeks have been...
How did it go? I got my first Remicade infusion earlier this month while inpatient at the hospital. I ended up there for 5 days. Just got my 2nd infusion earlier this week. I can't even begin to tell...
That matches my line of thinking. It would be a wonderful coincidence if it would help. Eating at restaurants and even at well meaning friends houses can be a challenge. Thanks for offering your...
So, I am doing my 2nd dose of Remicade today. After the first dose two weeks ago, I would say am I finally in remission after 7 months of flare. My question to you is about my Celiac. It was...
Thanks everyone for your comments and support. Finally got home from the hospital late yesterday. So nice to sleep in my own bed after 5 days in-patient. C.Diff was negative. But white count spiked....
Just got cultures back this morning. C diff was negative....
Sorry for the delay in responding. Ended up calling the on call GI doc Saturday morning. After discussing he recommended going to the ER. They admitted me and got me started on 40mg solumedrol twice...
So, I have been on Apriso and then Lialda for the past 4 months with no improvement. I was visiting the toilet with urgent watery (but not bloody) D at least 10 times a day. I was also on budesonide...
Why should you have to change your meds? Because you chose a health plan that doesn't cover the ones you want to use. Looks like they publish their formulary for all to see. Your drugs weren't on...
Thanks for the response iPoop. So, having tested negative for lactose intolerance, I SHOULD be able to incorporate dairy with no problems. This is good news. Thanks again...
So I read a lot about avoiding dairy. Is this because dairy itself can be a problem for those with UC, or is it that many people with UC are lactose intolerant so therefore should avoid dairy. I ask,...
Wish I could offer some help. My symptoms started about the 1st of the year. I have been on several meds, nothing has worked. Its been nearly 7 months of declining quality of life. Its a crappy...
Well, I called the pathology lab myself and they confirmed it is UC, they screwed up the diagnosis code and assured me my doc would be getting an updated report. I'm starting 40mg of pred daily for 2...
The celiac was diagnosed way back in 1999. Have been symptom free (except for accidental gluten exposure) since then. New symptoms began in January of this year. That led to the scopes and the UC...
That was my thought as well. In the lab it should be quite obvious one way or the other I would think. But humans make error and a diagnostic code would be easy enough mistype I suppose. Still...
Error in that it should have said colitis, not crohn's. Apparently the pathology lab will be sending an updated report today. I have been having symptoms since the first of the year. First doc I went...
Ok, so the doctors office called me back. They say the pathology report is in error. False alarm I guess. I do have a copy of the pathology report if there is something on there I should/could be...
OK, I'm confused now. I've had and upper and 2 lower scopes. Both times diagnosis was colitis/pancolitis. Just got my pathology report from the 2nd colonoscopy and the diagnosis from pathology is...
Actually, when I was scoped back in March, there was no inflammation in the rectum at all. Although it now seems weird, the inflammation was worse the farther you went into the colon. Seems backward...
As promised here is my update after the colonoscopy this morning. Diagnosis updated to Pancolitis Graded as Mild to moderate With the slight improvement in grading based on the scope the doc wants me...
I am at the beginning of this journey. I have been having multiple urgent trips the bathroom daily since early January of this year. I am averaging 8-12 trips a day. I don't believe I have had a...
I can't tell you all how helpful your experiences are as I continue to learn more about UC. It's been a rough week, I will be doing my prep day tomorrow and scope on Friday. Hopefully I will have...
Excellent info. Thanks again to everyone....