Thanks for the input. I’m glad Remicade is working for you. I’ve talked with my husband and read all the replies here and I do think I will remain on some type of medication for maintenance. I had...
Thanks for the input. I think I’ll definitely stick with some type of medication as I agree and think med free may be asking for trouble. Maybe I’ll try lialda and see if it can keep me in remission....
This is good advice. We did discuss checking my Humira levels since I’m not always taking it on time. I’m really deciding between sticking with the Humira or doing the lialda at this point. Med free...
I’ve been on Humira for almost 7 years and have had only one minor flare in that time. It was quickly resolved with a short prednisone taper. When I’m in remission, I go once maybe twice a day....
I met with my GI today, who is an IBD specialist and whose opinion I respect and trust. We discussed possibly coming off of Humira and either trying lialda or trying to go med free and see what...
I flared mildly at the end of my last pregnancy. I was on humira before and after the pregnancy and had been in remission and doing well on it. After I had my baby, I did a quick prednisone taper and...
My UC is currently in remission, which was confirmed via a colonoscopy in early August. I take humira every two weeks, and blood work done in August showed normal levels and no antibodies. In terms...
Hello all, I’ve been on Humira since September 2017. I was put on it while hospitalized for cdiff and a severe UC flare. It worked very well for me until I got pregnant in August 2018. I flared...
Firstly, I’d like to say that I completely understand the anxiety you’re feeling right now. My daughter is 3 and any time she has a loose poop or bad gas or a stomachache, I immediately fear the...
I’m currently 32 weeks pregnant and will be having a scheduled c-section on 4/19. I had c.diff in September 2017, and have avoided antibiotics since then. I am getting very anxious about the dose of...
I’m so sorry about your son’s diagnosis, but very happy to hear that he’s doing well! Have they retested you for c.diff? Are they sure it’s gone? I got an awful case of cdiff last year and it took a...
Im sorry to hear that you are flaring. Flares can be so stressful, especially during pregnancy. I would go back on Lialda and Canasa if I were you. You know it worked in the past to get your...
I’m on Humira and have had a cold a few times when I was due for an injection. My GI said that it’s okay to go ahead with the scheduled injection as long as there’s no fever. Ask his doctor what they...
I get mine delivered by a specialty pharmacy. When the Humira nurse came to my house, she said that it can actually be left at room temperature for about 24 hours before it would need to be thrown...
i noticed that my hair was thinning and a lot was coming out omg he shower and throughout the day. I’m not sure exactly what caused it, as I was very hospitalized with a UC flare and cdiff, and then...
In 2010 I had a colonoscopy after experiencing blood in my stool for a few months. Colonoscopy showed inflammation in the rectum and the sigmoid colon. Biopsy came back that it looked like an...
I’m sorry you’re going through this while pregnant. Your doctor will probably prescribe mesalamine enemas to use, if not, I would definitely request them. They should get your symptoms under control,...
Thanks for the feedback. I wish there was a more accurate, less invasive measure of inflammation. iPoop, I think I had a calprotectin test when I first had symptoms in 2010, but I don’t remember the...
I’ve been on Humira since September, and I’ve been doing really well on it. I want to get pregnant soon, so my doctor ordered bloodwork and a stool test to check inflammatory markers. I did the...
The last colonoscopy prep that I did was over the counter. I took dulcolax laxative pills and then drank miralax mixed with Gatorade. I can’t remember the exact amounts for the pills or the miralax,...
Yikes. That’s kind of scary to me. It seems a lot of people end up eventually having to switch biologics at some point. I’d hate to think that eventually there would be no more medication options...
I’ve seen this stated a few times here. What is considered “failing a biologic”? Is it just people who never responded at all to the biologic? Or is it still considered failing the drug, if it...
I agree about prepopik. It was by far the easiest prep I’ve done. You just drink a small cup of the prep, and then you can just drink water at your leisure afterwards....
I would ask to speak to the doctor, or to the nurse. Hopefully once you explain your symptoms to them, they’ll either squeeze you in sooner. I think sometimes the receptionists don’t understand the...
I haven’t gotten the flu at this point. My daughter has been fever free since Thursday afternoon, so I’m hoping I’m in the clear by now. I’m still taking the tamiflu and I took my Humira injection...
Thanks for all the feedback. As an update, I saw the nurse practitioner yesterday, and really liked her. She was very attentive and answered all my questions. She said that I can send any messages...
Thank you. I’m going to look into it =)...
Hace you tried any of the mesalamine drugs, like Lialda, yet? I would try one of those before jumping to Humira. With that being said, I’m currently on humira and haven’t noticed any negative side...
If you don’t mind me asking, which GI doctor do you see on Long Island? I also live on long island and I’m not too pleased with mine. Thinking about switching at some point. Are you happy with your...
Thanks for all the replies. I just wanted to make sure I wasn’t overreacting and getting upset over things that happen at most practices. Clearly that’s not the case. I’m going to voice my concerns...
Also, if anyone has a suggestion on how to handle the Humira situation, I’d really appreciate it. I’m due to take the injection tomorrow, and have no idea if I should hold off or do it. And if anyone...
I’ve just about had it with the new GI I’m seeing. I switched to her in the spring because she’s associated with a university hospital and is a specialist in IBD. She made me wait so long for the...
Happy for you! Sounds like a remission to me![/quote] Thank you =) Everyone here has been so helpful!...
Thanks for the info, iPoop! Countess, I called my GP and talked to the nurse. She called back and just said that he sent the prescription to the pharmacy for me. I’ll probably pick it up today, but...
My husband was just diagnosed with both strains of the flu. Im not showing any symptoms of the flu, but I’ve been on Humira for about 3 months, and I’m worried I’ll end up coming down with at least...
I just took prednisone for the first time in September. I was very hesitant to take it for the same reasons as you. I had just lost the last of my baby weight, and the thought of gaining weight made...
I didn’t have that exact issue, but I do think that prednisone effected my cycle. The period I had right after I finished the prednisone taper was 15 days after my last period. I have shirt cycles,...
Make sure you can get refills. Keep us posted please ☺ q[/quote] Thanks for all the suggestions, Quincy! I called the nurse at my doctors office and she wrote me a prescription, so I will be able to...
Thanks for the feedback iPoop and Quincy. I think I have some mesalamine enemas somewhere in my bathroom. Im going to start using them tonight. Hoping that’s the key to getting into remission,...
Hi guys. I just wanted to check in with my current situation and make sure things are headed in the right direction. I think I’m getting close to being in remission, but I’ve made that mistake before...
I used the enemas during my pregnancy. I totally understand being hesitant and worried about it, I was a total mess before I finally decided to use them. My daughter is completely healthy. It’s...
I think two weeks is definitely too soon for your doctor to be concerned. This weekend I’ll be on Humira 10 weeks, and while I’ve made a ton of improvements and I definitely feel like I’m on my way...
I did Prepopik for a colonoscopy prep last year, and I found it to be the best of the ones I’ve done. I believe it was only 8oz the night before and then again 6 hours before the colonoscopy. Of...
I definitely still had cdiff when I started the Humira. I was in the hospital for 9 days and started the Humira on day 8, the day before I was discharged. When I was discharged from the hospital, I...
I’m so sorry for everything you’ve been through. I agree with DB and Totes. I think you need to be tested again for cdiff. I believe the tests aren’t always that reliable, and they often need to be...
I was terrified of moving up the medication ladder. I knew it was inevitable, but was still having trouble accepting it. Then I got really sick with cdiff, which set off a pretty severe flare and...
I started humira on 9/23, so I’ve been on it almost 7 weeks now. I’m feeling much better than when I started it, but I wouldn’t say I’m in remission yet. I actually started it while I was...
I started Humira on 9/23, and started feeling some relief in symptoms within days. My situation was a little different than yours because I also had c.diff and was being treated with antibiotics for...
I’ve taken it a few times. It worked to control my symptoms while I was taking it, but the symptoms always came back after I stopped. Like iPoop said, it usually works best for mild inflammation. I...
I'm supposed to take my first maintenance dose of humira tomorrow. My daughter has had a cold the last few days and today I woke up with a sore throat and a little bit of stuffiness. Is it okay to...